We are pleased to share a new video produced through a collaborative effort between University College Cork (UCC), Dementia Ireland Empowering Communities, and the Alzheimer Society of Ireland as part of the VISION-DEAR project. This resource highlights the critical role of Patient and Public Involvement (PPI) in dementia research, demonstrating how meaningful engagement with people living with dementia and their carers can shape more relevant and impactful studies. Dementia research has made significant strides, but involving those with lived experience remains key to ensuring research addresses real-world needs. This video presents perspectives from people living with dementia, family carers, and researchers, emphasising the value of co-production and partnership in the research process.
In addition to explaining what PPI entails, the video shares practical insights on successful collaboration, the benefits of PPI for research outcomes, and guidance on how researchers and public contributors can become involved. It is designed to inspire researchers, healthcare professionals, policymakers, and advocates across Europe to embed PPI more deeply within their work. This video serves as an important tool to raise awareness and promote the voices of those affected by dementia, ultimately supporting the development of research that leads to better care and support. We invite you to watch the video and share it within your networks to help advance the culture of inclusion and partnership in dementia research. Watch the video on YouTube here: http://bit.ly/4lCW7OS