On 18 May, the NEURONET Coordination and Support Action (CSA) held an online meeting of the Working Group (WG) on Sustainability. Chaired by Carlos Diaz of Synapse Research Management Partners, who co-leads NEURONET alongside Lennert Steukers of Janssen Pharmaceutica, the meeting was attended by Working Group representatives from Innovative Medicines Initiative (IMI) neurodegeneration projects such as ROADMAP and EMIF, as well as by members of the NEURONET consortium.
The aim of the Sustainability WG is to work collaboratively with experts within IMI neurodegeneration projects to support these projects to maximise their long-term sustainability. Among other aspects, the WG discusses common issues relating to sustainability beyond the IMI funding period, such as IP, legal and financial issues. During the Sustainability WG meeting, the sustainability plans and models of the EQIPD (European Quality in Preclinical Data) and AETIONOMY IMI projects were presented by their project leaders. Discussions centred around the complexities of ensuring the sustainability of different types of assets, in particular those that include sensitive personal data from patients and research participants. The next Sustainability WG will be held in the summer.
