Members of the European Working Group of People with Dementia (EWGPWD) and their supporters met in Brussels, from 25 to 27 June 2019. During the meeting, the group discussed and provided feedback on different issues linked to Alzheimer Europe (AE) activities such as the work on ethical issues in dementia research and dementia-friendly communities that AE is currently developing. Members of the EWGPWD also dedicated some time to the preparation of their Special Symposium at the 29 AE Conference (#29AEC) in The Hague, and updated the group’s internal guidelines for participating in meetings.
All members actively contributed to several EU projects, such as RADAR-AD (Remote Assessment of Disease And Relapse – Alzheimer’s Disease) (ethical issues and dissemination), AD Detect-Prevent and SPAN+. Hannah Fitzgibbon from the Alzheimer’s Society (UK), Sébastien Libert from the INDUCT (Interdisciplinary Network for Dementia Utilising Current Technology) project and Federica Lucivero from RADAR-AD took part and contributed to different sessions in the meeting. Dianne Gove and Ana Diaz, together with the Vice-chair of the group, Chris Roberts, facilitated and supported the different sessions.
