One of the key priorities of the EU Commission in the area of health is the creation of a European Health Data Space (EHDS) which, it is hoped, will facilitate exchange of health data between organisations and across borders, supporting collaborative decision-making between Member States and enabling research on new treatments and care. The EHDS will be supported by a new regulatory framework - the Data Governance Act - that will govern the conditions for access to health data.
In developing the EHDS, the EU Commission wants to ensure that the rights, needs and values of individuals are respected, whilst also enabling personal, health data to be shared for greater benefit. To this end, a public consultation on the EHDS has been launched, aiming to collate the views and experiences of a broad range of stakeholders including members of the public, health organisations, NGOs, industry and academic researchers. The consultation will remain open for responses until 26 July, and can be accessed via the link below.
https://ec.europa.eu/commission/presscorner/detail/en/ip_21_2083