EPND launches its Cohort Catalogue preview, featuring over 60 neurodegeneration cohorts with sites in 17 countries across Europe

24/11/2022

Currently, there is a lack of disease-modifying treatments and accurate diagnostics for neurodegenerative diseases such as Alzheimer’s disease, which affects millions of people in Europe. Critical progress in the diagnosis, treatment, and prevention of these conditions is challenged by longstanding barriers to collaboration across the research process. Despite robust research efforts and significant amounts of data and samples, there are few secure, accessible, and sustainable ways for clinical data and biosamples to be discovered and shared at scale.

On 24 November, the European Platform for Neurodegenerative Diseases (EPND) project announced the launch of its Cohort Catalogue preview. Featuring an extensive list of international cohorts across the neurodegenerative disease spectrum, the Cohort Catalogue hosts metadata on research participants, biosamples, imaging and cognitive data, and more. In total, 66 research cohorts are included in the Catalogue, with sites in 17 countries across Europe and beyond. These neurodegenerative disease cohorts represent 159,575 research participants over 12 different disease areas, including Alzheimer’s and Parkinson’s disease as well as frontotemporal dementia, amyotrophic lateral sclerosis (ALS) and Huntington’s Disease.

Alzheimer Europe is a partner in EPND, together with 28 other public and private sector organisations. Funded by the European Union’s Innovative Medicines Initiative, EPND aims to accelerate the identification, development and validation of biomarkers for neurodegenerative diseases, by establishing a data- and sample-sharing platform for collaborative, large-scale research. The Cohort Catalogue is a first step towards establishment of the EPND platform. Using this Catalogue, researchers can search and filter cohorts by metadata characteristics, to discover cohorts that could be useful in their own research. Through the Catalogue “contact cohort” feature, researchers can then request contact with cohorts of interest, to kick-start new collaborations, and initiate the sharing of clinical data and biosamples.

Want to learn more? Navigate the Cohort Catalogue, here: https://discover.epnd.org/