A new paper on “The language of behaviour changes in dementia: A mixed methods survey exploring the perspectives of people with dementia” has been published (early view) in the Journal of Advanced Nursing (JAN).
This study adopted a human rights approach and employed an online and paper-based questionnaire to collect data, between November 2019 and March 2020. In total, 54 people with dementia, including members of the European Working Group of People with Dementia (EWGPWD), completed the survey. Participants felt that the language we use to talk about changes in behaviour could influence how people with dementia are viewed and treated and how people feel about themselves. While there was no universal agreement on terminology, there was an overall preference for terms that reflect the unmet needs likely to underlie perceived changes in behaviour.
Authors include Alzheimer Europe Director for Projects Dianne Gove and Project Officer Ana Diaz, together with members of the Interdem network.
