The 1 PARADIGM General Assembly was held on 18 September in Brussels. During the meeting, project partners were informed about the progress of the project and also had the opportunity to discuss its upcoming mid-term review. During the afternoon of 18 and on 19 September, the PEOF took place. The event was co-organised by PARADIGM, EUPATI and the Patient Focused Medicines Development (PFMD) initiative, and brought together a range of stakeholders interested in and committed to making meaningful and systematic patient engagement a reality.
Over the two days, 260 people from 140 different organisations actively participated in the different sessions and workshops and over 400 joined the live streaming sessions. This included people from pharmaceutical companies, academia, regulators and HTA agencies, patient organisations, patient advocates, and patients living with many different conditions and their carers, among many others. It was a very lively event with a combination of plenary sessions and workshops, where participants had the chance to discuss relevant topics on patient engagement, such as tools and recommendations for effective patient engagement, methods for monitoring and evaluating the impact and outcomes in patient engagement activities, and fair market compensation for patient input.
From Alzheimer Europe, Ana Diaz, Dianne Gove, Angela Bradshaw and Hilary Doxford and her husband Peter Paniccia attended the PEOF. If you are interested in finding out more about this event, please visit the following links:
PEOF agenda: https://patientengagementopenforum.org/
Related blogs: https://imi-paradigm.eu/blog/
Streamed sessions: https://twitter.com/PEOForum
