Alzheimer Europe set up the European Working Group of People with Dementia (EWGPWD) in 2012. The members of the group are nominated by their national Alzheimer associations and serve two-year terms.
In 2016, there were elections to nominate people to the group for the next two-year term. The new group had its first meeting at the end of October 2016 in Copenhagen, Denmark. The EWGPWD is comprised of a minimum of ten people with dementia (each from a different country) and a maximum of 15 people, all nominated by the member organisations of Alzheimer Europe.
Alzheimer Europe supports the travel and accommodation costs of members of the EWGPWD as well as those of a carer, should this be necessary. The working language of the EWGPWD is English: people wishing to join the EWGPWD should be able to follow discussions and read documents in English and to express their ideas (with the help of the accompanying carer of their choice if necessary) to the group in English.
Contact details of the member associations of Alzheimer Europe can be found at: http://www.alzheimer-europe.org/about-us/who-we-are/members