Alzheimer Europe Policy for Involvement in EU Projects

Alzheimer Europe welcomes the opportunity to contribute to European research projects on dementia, brain health, and related areas. Alzheimer Europe has developed a number of valuable resources which can support research activities, in particular:

  • tthe European Working Group of People with Dementia, composed of 15 people with dementia who have been nominated by their national associations, can provide input on how research is designed, conducted and disseminated,
  • the European Dementia Carers Working Group, composed of 13 carers, relatives and supporters of people with dementia who have been nominated by their national associations, can provide input on how research is designed, conducted and disseminated,
  • The European Public Involvement Pool, which comprises people who are affected by, or interested in dementia and brain health, can provide input on how research is designed, conducted and disseminated, 
  • its well-developed communication tools such as its website, its monthly e-mail newsletter reaching over 7,500 recipients, its YouTube channel and its social media presence on LinkedIn, Instagram, Facebook and X (Twitter),
  • its Annual Conferences, which attract over 1000 participants a year and provide unique opportunities to network and present projects and research results,
  • its established network of European and national policy makers comprised of its European Alzheimer’s Alliance (with almost 100 Members of the European Parliament who have an interest in dementia) and the European Group of Governmental Experts on Dementia (with representatives from national health ministries and government agencies).
  • its Dementia in Europe magazine focusing on policy and research developments.

As a result, the organisation welcomes the possibility of participating in research projects by:

  • providing the views of people with dementia, their carers and those of national Alzheimer’s associations
  • contributing to the discussions of ethical issues raised by the research 
  • convening meetings to engage key stakeholders including clinicians, regulators, industry representatives and policymakers, and
  • supporting or leading the dissemination communication of the project aims and results to the wider dementia community and the general public.

Alzheimer Europe already partners with a number of Horizon Europe, Innovative Medicines Initiative and Innovative Health Initiative projects. The organisation is also accredited with the Luxembourg Ministry for Research and is entitled to receive funding from the Luxembourg “Fonds National pour la Recherche” for its involvement in projects funded through the JPND, ERA-NET, and other joint research schemes.

Criteria for involvement in research projects 

Due to the great number of requests to join research projects and Alzheimer Europe’s own limited staff and financial resources, Alzheimer Europe will prioritise those projects where the organisation has a meaningful involvement. In order to evaluate its involvement in EU projects, the organisation needs a minimum of a week to discuss its contribution and budget. For that reason, requests to collaborate sent with less than a week before the call deadline will be declined automatically.

Alzheimer Europe is open to join additional projects as full project partners or to play a more limited role (for example on Advisory Boards) as long as the organisation’s involvement is duly remunerated. This entails reimbursement for travel and accommodation of AE staff, and for the time required to to prepare for and attend meetings. For public involvement activities with the European Working Group of People with Dementia, the European Dementia Carers Working Group, Public Involvement Pool, or representatives of national Alzheimer’s associations, travel and accommodation costs of meeting participants, as well as the staff time for AE staff supporting or organising and writing up the consultation will also need to be reimbursed.

Alzheimer Europe will not write letters of support for research projects in which it has no meaningful involvement.