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Public experiences of Alzheimer's disease

Value of Knowing

Majority of public have personal experience with Alzheimer's disease

The survey found a large proportion of the public has had some sort of experience with Alzheimer’s disease. Majorities in all five countries say that they know or have known someone with Alzheimer’s disease, including about seven in ten in France (72%), Germany (73%), Spain (77%), and the U.S. (73%), and 54% in Poland.

In addition, about three in ten have personal experience with a family member with Alzheimer’s disease. Experience with a family member ranges from 19% in Poland to 42% in the U.S.

Public experience with knowing someone

About one in seven have had significant life experience in giving support to someone who has Alzheimer’s disease. Between 13% (Poland) and 27% (Spain) report that they have been one of the people most involved in
decision-making, financial support, or day-to-day care for someone with Alzheimer’s disease.

Public experience with caring



Last Updated: Wednesday 13 July 2011


  • Acknowledgements

    The Value of Knowing Survey was designed and analysed by the Harvard School of Public Health and Alzheimer Europe, in collaboration with the following national Alzheimer associations: Alzheimer's Association (US), CEAFA (Spain), Deutsche Alzheimer Gesellschaft (Germany), France Alzheimer (France) and the Polish Alzheimer's Association (Poland). The survey was supported by a grant to Alzheimer Europe from Bayer AG. Bayer was not involved in the design of the survey or the analysis of the findings.
  • Deutsche Alzheimer Gesellschaft
  • France Alzheimer
  • Polish Alzheimer's Association
  • Bayer