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Benefits of taking part in research

Participating in research

Most of us have in some way benefited from research without necessarily realising it (e.g. by taking medical drugs, benefiting from the use of certain equipment, being treated in a certain way or being in certain environment). People who take part in dementia research are contributing towards the care, treatment and wellbeing of countless numbers of people who have dementia, as well as others who may develop it at some time in the future. They may have different reasons for wanting to be involved in research and different expectations about it might bring but examples might include:

  • To contribute towards the advancement of science
  • To take an active role in one’s own healthcare
  • To help combat feelings of helplessness
  • To do something interesting
  • To exercise one’s autonomy and take an active role in society
  • To have the possibility of trying an experimental drug (perhaps but not necessarily when all other established treatment possibilities have been exhausted)
  • To access treatments which are not yet widely available
  • To receive high quality, free healthcare from leading experts during the trial
  • To improve one’s own condition, wellbeing or quality of life

Researchers as well as ethics committees are keen to ensure that participants are treated well and that their safety and wellbeing are respected. There are, of course, pros and cons to participating in research which people should consider before agreeing to take part in a study. Some are general and some are linked to specific types of study. However, generally speaking, participating in research should be a positive experience.



Last Updated: Friday 21 August 2009