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France calls on international experts to evaluate the implementation of its recent neurodegenerative diseases plan

Wednesday 18 March 2020

The French neurodegenerative diseases plan for 2014-2019 ended in December 2019. For France Alzheimer, this national strategy, which started with almost one year of delay, was deployed unequally on the French territory. Despite some significant progress in the diagnostic pathway and the therapeutic patient education, its global budget of EUR 470 million and the lack of mobilisation of some public operators, made it difficult to implement all of its 96 measures.

Nevertheless, after multiple calls to action from France Alzheimer, the French Ministry of Health finally invited all the stakeholders to meet on 13 February 2020. At this meeting, the government took the time to listen to the associations’ priorities and concerns about the future. It was also announced that two international experts have been nominated to lead the evaluation of the Plan.

It appeared to be a great opportunity for all the associations and foundations involved (France Alzheimer, France Parkinson, the French League for people living with multiple sclerosis, Fondation Médéric Alzheimer…) to work closely on the identification of the remaining priorities in terms of healthcare pathways, support of informal caregivers and a more inclusive society.

This collaborative document was presented to the two chosen experts, by the stakeholders, on 18 March 2020. The experts will send their final report to the government before the end of June, pending possible changes due to the current international situation. In any event, France Alzheimer will keep lobbying the authorities in the coming months. It remains essential that the French Government understands the issues at stake, when it comes to the needs of people living of dementia and their caregivers. As Alzheimer Europe’s “Dementia in Europe Yearbook 2019” shows, the estimated prevalence of dementia in France will almost double by 2050, and the country’s current health system is not yet fully prepared to address everyone’s needs.