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From Seldom Heard to Seen and Heard: England’s Dementia Action Alliance’s newest campaign

Wednesday 08 November 2017

The Dementia Action Alliance (DAA) is an alliance of organisations across England that aims to connect, share best practice and take action on dementia. The DAA is hosted by Alzheimer’s Society and Jeremy Hughes, CEO, chairs the DAA Steering Group.

This autumn, DAA members came together to campaign for improved outcomes for people living with dementia and their carers who come from seldom heard groups. Their 2017 campaign, From Seldom Heard to Seen and Heard, focuses on improving care and support for people affected by dementia who come from seldom heard groups. People from seldom heard groups face barriers to accessing good health and social care, which at time fails to meet their needs. Challenges can include a lack of awareness and cultural understanding across health and social care settings. This problem has become more acute as public service budgets have been cut. Through their diverse membership the DAA is well placed to improve this situation by harnessing the resources and ideas of its members and of other organisations operating across health and social care.

The campaign has three primary objectives:

1. Raise awareness of the challenges faced by people with dementia from seldom heard groups

2. Influence system-wide change

3. Bring about organisational change

As part of the campaign they held a series of roundtables, each focusing on a specific seldom heard group. Through the roundtables they explored areas where progress is needed and where the DAA, through the influence of its members, can affect wider change.

They ran roundtables focused on dementia in the following groups and produced recommendations:

  • Prisons
  • Lesbian Gay Bisexual & Transgender
  • Learning Disabilities

At their launch event in September, they additionally discussed the following communities:

  • Black, Asian, Minority Ethnic (BAME)
  • Young onset dementia
  • Social deprivation
  • Irish
  • Gypsies and Travellers

You can find further information on From Seldom Heard to Seen and Heardon the DAA’s website.

You can follow them on Twitter at @Dementia_Action and use the hashtag #dementiaseenandheard to track their campaign.