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Idalina Aguiar celebrates Statute of Informal Caregiver being passed in Madeira

Wednesday 24 April 2019

I live on the island of Madeira, Portugal, which has an Autonomous Regional Government. In an unprecedented act in Portugal, the proposal by the Regional Government on the Statute of the Informal Caregiver in the Autonomous Region of Madeira has been unanimously approved. I am proud that my region is a pioneer, at the national level, in recognising this social function. This is a real milestone for carers fighting for their rights, and it marks the beginning of a new stage, giving hope to hundreds of carers in Madeira.

My daughter Nélida and I were invited to be involved in discussions as part of a joint action between Alzheimer Portugal and ANCI (National Association of Informal Caregivers). We are immensely proud of being a part of this work. At the national level, discussions are still underway, but I hope that in the coming months, progress will be made for all of Portugal’s informal carers. Idalina is a member of the European Working Group of People with Dementia (EWGPWD) and is supported by her daughter Nélida, to whom we are grateful for her help in translating Idalina's words to English.