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Idalina Aguiar, member of the EWPWD shares her experiences at a series of awareness-raising events

Tuesday 06 August 2019

Recently, I had the opportunity to actively participate in awareness-raising events about dementia for informal carers. Together with my daughter Nélida, I told the participants about my history and experience, fighting for and defending the rights of those living with dementia and carers. I also talked about the recently-approved Informal Caregiver Statute.

On 6 August, we were invited to the premises of the parish council of Caniço (in the Municipality of Santa Cruz, Madeira) to attend the closing ceremony (pictured), at which participants received their certificates. In attendance at this ceremony, were: Susana Prada, Secretary for the Environment representing the Regional Government of Madeira; Augusta Aguiar, Chair of the Board of Directors of the Social Security Institute; Filipe Sousa, Mayor of Santa Cruz; Jaime Silva, Councilman with the social department of the Chamber of Santa Cruz; Milton Teixeira, President of the parish council of Caniço and the remaining Executive of the Board.

Nélida and I were also honoured, earlier in the summer, to participate actively in a number of inspirational talks organised by the municipality of Machico, Madeira. We shared our perspectives - as a person with dementia and a carer – with the public. We discussed what it means to take care of someone out of love, dedication, or just because there are no other options left (social responses), and having to provide home care. It was an excellent gathering. Special thanks to Councilwoman Mónica Vieira and social worker Sandra Nunes for this opportunity. Idalina is supported by her daughter Nélida, to whom we are grateful for her help in translating Idalina's words to English.