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Idalina Aguiar tells us about her former EWGPWD colleague Nina Baláčková’s visit to Madeira Island

Thursday 29 November 2018

I recently had the privilege of a visit from my (former) European Working Group of People with Dementia (EWGPWD) colleague, Nina Baláčková of the Czech Republic, to our wonderful island, Madeira. After a few tours around the island, we visited the Madeira branch of Alzheimer Portugal and the day centre “Garouta do calhau” (place of memories), for people with dementia like me.

I was delighted to show Nina the activities I carry out on my island, about living with dementia and to show the work we do for a better, more inclusive society for people with dementia and their carers.

We also went to the Madeira FNAC shopping centre, to be part of an information-sharing activity. There, in front of a varied audience, we had a conversation on the theme “Life with dementia”. Together with our caregivers/supporters, Nina and I aimed to demystify dementia for members of the public present. We talked about how it is possible to cope with dementia, despite the limitations it imposes on us. Nina and I had the opportunity to share our first-hand experience of living with dementia. We talk about what we do, the way we approach things and especially the experience we have had since joining the EWGPWD.

Idalina is supported by her daughter Nélida, to whom we are grateful for her help in translating Idalina's words to English.