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Idalina, member of the EWGPWD, advocates for recognition of carers in Portugal

Thursday 21 June 2018

A few years ago I was diagnosed with Alzheimer’s.  This changed my life since I needed to be supported and cared for. My daughters and sister are providing the care and support that I need. Becoming a carer and caring for someone can be difficult. I know about this as about 35 years ago I had to become a carer myself. My husband and father of my daughters had an accident which caused severe brain damage. After a period in deep coma and long hospitalization, and against all medical expectations, he began to recover, but he needed a lot help and family support to relearn everything. Then, despite a limited quality of life he lived for two decades. As his carer, I learned how to fight against setbacks and to face obstacles in life. We (myself and my daughter) have recently joined a group of citizens in Portugal that intends to create a statute for informal carers. This is something very close to my heart as I was a carer and now I am receiving care from my family. Like me, there are many other people in Madeira who provide or receive care from their families and friends. I therefore completely endorse this cause and think that it is urgent to create this Statute, which recognises the importance of the dedication and work of all informal carers in Portugal and guarantees their rights. Idalina is supported by her daughter Nelida, to whom we are grateful for her help in translating Idalina's words to English.