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PARADIGM organises informative sessions for patient communities

Tuesday 27 October 2020

The four patient organisations members of the PARADIGM consortium (i.e. European Patients’ Forum, EURORDIS-Rare Diseases Europe, European AIDS Treatment Group and Alzheimer Europe) have jointly organised a series of “Questions and Answers” sessions for their members.  The first of these four sessions was held on 27 October on the topic of “Raising awareness on managing competing interests in a multi-stakeholder environment: Guidance to patients and engaging stakeholders”. Maria Cavaller (EURORDIS) presented the different tools developed by PARADIGM on the topic of competing interests. This was followed by a very interactive discussion where attendees were able to ask questions and share their suggestions and comments. The following sessions are plan for November: 

 9 November

  • Recommendations on required capabilities for patient engagement
  • Patient engagement in medicines development: Recommendations on how to find the right match for the right patient engagement activity

 16 November

  • Patient Engagement Monitoring and Evaluation Framework

 20 November

  • Working with Community Advisory Boards: Guidance and tools for patient communities and pharmaceutical companies
  • Guidance for reporting and dissemination of patient engagement activities.

For further information about the PARADIGM Patient Engagement Toolbox please visit: