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Public-Private consortium publishes the first interactive overview of available outcomes in European data sources for AD research

Monday 06 May 2019

On 6 May, the ROADMAP consortium, a public-private partnership launched by the Innovative Medicines Initiative, opened access to its data cube tool. The data cube is an interactive tool with which interested people can get an overview of the different outcomes that are available in various data sources such as clinical trials, Electronic Health Records and cohorts. Although it offers a variety of functions, the cube is easy to use, offering insights on the importance of various outcomes from the point of view of people with dementia, carers but also health professionals along different stages of the disease.

This tool is the result of two years of collaboration and combines efforts from different working groups who each contributed to different aspects of the data cube. These include workshops with people with dementia, a public survey on the importance of outcomes, literature reviews, collaboration with data custodians from the various data sets and much more. Dr Jacoline Bouvy, Senior Scientific Adviser, National Institute for Health and Care Excellence (NICE), explains: “The Data Cube is an important outcome of the ROADMAP project as it provides a much needed, overarching picture of priority outcomes, across the disease stages, and whether data is available. It helps to identify gaps in the evidence and provides a useful tool for regulatory and Health Technology Assessment purposes.”

You can read the press release here: http://bit.ly/RoadmapPressRelease

The online version of the Data Cube is available here: https://datacube.roadmap-alzheimer.org

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