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European Patients' Forum publishes Survey Report on the Impact of the COVID-19 Pandemic on Patients & Patient Organisations

Monday 10 May 2021

On 10 May, the European Patients' Forum (EPF) published the results of its survey on the impact of the COVID-19 pandemic on patients and patient organisations. The aim of this survey was to gather more information on the lived experience and impact of the COVID-19 pandemic on patients with chronic conditions, their communities and on patient organisations.

Conducted from 18 September to 18 October 2020, this survey received a total of 125 responses. 46% were patient organisations and 54% were individual patients or carers. Individual patients or their carers answered questions related to the challenges they faced, access to healthcare, their concerns and the quality of information provided by governments and healthcare professionals during the pandemic. The results of this survey show that there is significant room for improvement for both healthcare providers and national authorities on the clarity of information, communication and public health guidance, concludes the EPF.

Overall, 57 patient organisations responded to the survey with 43% representing European or national organisations. They were asked a variety of questions revolving around their operations during the pandemic, opinions on protection measures and their involvement in the management of the pandemic. These survey results indicate that the pandemic had a huge impact not only on the financial stability of patient organisations, but also on the way they work. The EPF plans to complete a second edition of this survey, in the near future. To find out more and to download the report, visit: