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Alzheimer Europe hosts Public Affairs meeting and PACE consultation in Brussels

Wednesday 28 June 2017

On 28 June, Alzheimer Europe (AE) hosted a Public Affairs meeting in Brussels. 18 representatives from AE member organisations, and 7 AE staff members were in attendance, alongside 5 expert speakers from the 2nd Joint Action on Dementia and 3 members of the PACE project. AE Chairperson Iva Holmerová chaired the meeting.

In the morning, the agenda focused on:

  1. The 2017 AE Yearbook and Ethics Report, with updates being given by Project Officer Ana Diaz on the former and Director for Projects Dianne Gove on the latter.
  2. The 2nd European Joint Action on Dementia (2016-2017).

AE is grateful to the following expert speakers, for providing a detailed update on the 2nd Joint Action, to date:

  • Rona Tatler, Senior Policy Officer, Scottish Government, who gave delegates an introduction to the project as a whole and also shared findings and recommendations of the Joint Action regarding dementia-friendly communities.
  • Audrey Maillet, a researcher from France, who shared findings and recommendations regarding timely diagnosis and post-diagnostic support.
  • Jacqueline Hoogendam, Senior Advisor, Dutch Ministry of Health, Welfare and Sports, who shared findings and recommendations regarding care coordination and crisis management.
  •  Øyvind Kirkevold,Norwegian University of Science and Technology, who shared findings and recommendations regarding residential care. He was joined by his colleague Kari Kristiansen.

Some of the findings discussed at our Public Affairs meeting will be published later this year. For news about these and for other updates on the Joint Action, you can sign up to the newsletter via the holding website (which will go fully live after summer 2017):

In the afternoon, delegates were invited to participate in a consultation with the PACE project - Palliative Care for Older People in care and nursing homes in Europe. Katherine Froggatt, Lancaster University, chaired two plenary sessions, presenting the project to the participants and putting a number of questions to them for consideration and feedback, to support the project’s policy recommendations. These recommendations are being jointly worked on by PACE partners AGE Platform Europe (AGE) and Alzheimer Europe (AE). AE and AGE split the participants into two consultation groups during the afternoon session, with Dianne Gove, AE, Borja Arrue, AGE and Helen Rochford Brennan leading one group and and Ana Diaz, AE and Nhu Tram, AGE, leading the other. The PACE project expressed its gratitude to all participants in this very interactive and productive session.

You can find out more about the PACE project and sign up for the newsletter here:

The PACE project has received funding from the European Union’s Seventh Framework Programme for research, technological development and demonstration under grant agreement no 603111.

AE looks forward to welcoming its member associations to the Annual Conference in Berlin from 2 to 4 October and to the next Alzheimer’s Association Academy, to be held in Brussels on 5 and 6 December.