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Findings of our carers' survey published in open access article

Thursday 11 October 2018

The article “Timely diagnosis of dementia? Family carers’ experiences in 5 European countries” was accepted for publication in the International Journal of Geriatric Psychiatry in September and has now been published online.

The article reports some of the key findings of a study carried out jointly by Bangor University, Alzheimer Europe (AE) and five of AE’s member organisations (the Czech Alzheimer Society, Alzheimer Society of Finland , Federazione Alzheimer Italia, Alzheimer Nederland and Alzheimer Scotland).

It shows that nearly half of the 1,409 carers who participated in the study felt that an earlier diagnosis would have been preferable. Delaying factors reported by carers included reluctance of the person with dementia, lack of awareness of dementia, the response of professionals and delays within health systems.

The article also highlights that the diagnosis is now often shared with the person with dementia (except in Italy) and that timely diagnosis and higher quality diagnostic disclosure may be associated with better adjustment.

The article is open access and can be downloaded using this link: