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European Working Group of People with Dementia holds first meeting of new group for 2020-2022 term

Friday 23 October 2020

The European Working Group of People with Dementia (EWGPWD) began its fifth two-year term of office with an online meeting on 23 October 2020. During this meeting, the group welcomed six new members.

The EWGPWD for 2020-2022 is composed of the following 15 members:

Chairperson: Chris Roberts (UK – England, Wales and N. Ireland)

Vice-Chairpersons: Bernd Heise (Germany), Kevin Quaid (Ireland) (new),

Members: Idalina Aguiar, Portugal; Stefan Eriksson, Sweden; Tomaž Grižinič, Slovenia; Nigel Hullah, UK – England, Wales and N. Ireland, (new); Petri Lampinen, Finland; Margaret McCallion UK–Scotland (new);  Danny McDonald, UK-Scotland (new);  Erla Jόnsdόttir, Iceland (new); Angela Pototschnigg, Austria; Helen Rochford-Brennan, Ireland; Ditte Sigsgaard, Denmark (new), Geert Van Laer, Belgium.

The EWGPWD was launched by Alzheimer Europe and its member associations in 2012. The group is composed entirely of people with dementia who are nominated by their national Alzheimer associations. They work to ensure that the activities, projects and meetings of Alzheimer Europe duly reflect the priorities and views of people with dementia. The group operates independently and members elect their own Chairperson and Vice Chairs. The Chairperson is also an ex-officio member on the Board of Alzheimer Europe with full voting rights.

During the group’s first four terms of office (2012-2014, 2014-2016, 2016-2018, 2018-2020), members have actively participated in Alzheimer Europe’s annual conferences and contributed towards consultations for European projects in which Alzheimer Europe is involved, as well as to other areas of Alzheimer Europe’s work. They have also contributed to research conducted by external organisations on topics such as outcome measures that are meaningful to people with dementia and their carers, social health, people with dementia as peer-researchers, Public Involvement in dementia research and dementia-inclusive initiatives, and have attended a number of international dementia-related events, including one at the European Parliament, as representatives of the group.