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After diagnosis - What next?

This section of the website is the end result of a European project carried out within the framework of Alzheimer Europe’s 2002-2006 Business Plan and which resulted in a manual entitled "Alzheimer's disease: After the diagnosis - What next?". The writing of the manual was a joint collaboration between Alzheimer Europe and its member organisations from Austria, France, Germany, Italy, Luxembourg, Poland and Spain. Several people with dementia in Scotland also kindly volunteered to review the various drafts in order to contribute their ideas and experience on coping and to ensure that the information provided was relevant and understandable.

As suggested by the title, the manual is mainly intended for people with Alzheimer’s disease and their carers. However, as people with other forms of dementia encounter very similar problems, the term “dementia” is also mentioned in the title and is used throughout the manual.

There are two potential audiences for the manual i.e. people with dementia and their carers. This is not intended to imply that people with dementia all live with a partner. Indeed, many people with dementia live alone. Therefore, in some cases, carers are likely to be close friends, relatives or neighbours rather than spouses. Nevertheless, we hope that our publication will be of interest to all of you.

On behalf of Alzheimer Europe, I would like to thank Dianne Gove, our Director for Projects, for her invaluable support in preparing the different drafts of this publication and in tirelessly incorporating the corrections and comments of the different members of the working group until all participants were happy with the end result.

Similarly, I want to acknowledge the expert contributions of our member organizations and in particular the contributions of the members of our working group. The expertise of Patrice Allard (France), Antonia Croy (Austria), Pierluigi de Bastiani (Italy), Mireille Elsen (Luxembourg), Sabine Jansen (Germany), Alicja Sadowska (Poland) and Micheline Selmes (Spain) contributed their ideas, experience and knowledge. Equally, the personal experiences of people with dementia from Scotland greatly improved our publication. In particular, let me single out James McKillop for his continued support.

Finally, this project would not have been possible without the financial support of Janssen-Cilag, Lundbeck and Pfizer who generously agreed to support the different programmes of our business plan.

I hope that the manual will prove to be a source of useful information and encouragement to all those concerned in the period of time following a diagnosis of dementia.

Maurice O’Connell
Chairperson of Alzheimer Europe


Last Updated: Friday 14 November 2014