This discussion paper has been prepared by a multi-disciplinary group of experts in the field of ethics, the experience of dementia, ageing, psychiatry, psychology, dementia research and policy. This group was set up by Alzheimer Europe to respond to growing concerns about the ethical implications linked to the changing defi nitions/use of terms related to Alzheimer’s disease with regard to individuals, families, informal carers, health/social care professionals, researchers, the media and policy makers. We would like to express our utmost gratitude to the following members of this group for having generously shared their expertise and invested their time and energy during 2016 to make this publication possible (further details about the experts can be found in Appendix 1):

• Ms Hilary Doxford, Vice Chair of the European Working Group of People with Dementia, United Kingdom
• Dr Karine Fauria, Barcelonaβeta Brain Research Center, Spain
• Mr Jean Georges, Alzheimer Europe, Luxembourg
• Dr Dianne Gove, Alzheimer Europe, Luxembourg
• Prof. Julian Hughes, University of Bristol, United Kingdom
• Ms Tina Leonard, Alzheimer’s Society of Ireland
• Dr Anneli Sarvimäki, The Age Institute, Finland
• Dr Mark Schweda, University Medical Center Göttingen, Germany
• Dr Sarah Smith, School of Dementia Studies, Bradford University, United Kingdom
• Dr Hinesh Topiwala, Centre for Dementia Prevention, University of Edinburgh, United Kingdom
• Prof. Guy Widdershoven, VU University Medical Center, Amsterdam, the Netherlands