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References/reading list

2015: Ethical dilemmas faced by professionals providing dementia care in care homes and hospitals

Baldwin C, Hope T, Hughes J, Jacoby R and Ziebland S (2005).Making difficult decisions: the experience of caring for someone with dementia. Alzheimer’s Society

Beck U (2006). Living in the world risk society. A Hobhouse Memorial Public Lecture given on Wednesday 15 February 2006 at the London School of Economics. Economy and Society, 32: 329-345

Cayton H (2006). From childhood to childhood? Autonomy and dependence through the ages of life. In Julian C. Hughes, Stephen J. Louw, Steven R. Sabat (Eds) Dementia: mind, meaning, and the person, Oxford, UK: Oxford University Press, 277-286

Dresser R (1986). Life, death, and incompetent patients: conceptual infirmities and hidden values in the law. Arizona Law Review, 28, 3: 373-405

Dworkin R (1986). Autonomy and the demented self. Milbank Quarterly 64 (suppl. 2): 4-16

Fulford KWM (2004).  Facts/values: ten principles of values-based medicine. In: Radden J (Ed.)The Philosophy of Psychiatry: A Companion. New York: Oxford University Press; (pp.205-234)

Fulford KWM, Peile E & Carroll H (2012).Essential Values-Based Practice. Cambridge: Cambridge University Press

Gzil F (2009). La maladie d’Alzheimer: problèmes philosophiques. Paris, Presses Universitaires de France.

Gastmans C (2013). Dignity-enhancing nursing care: A foundational ethical framework.Nursing Ethics, 2, 42: 142-9.

Hughes JC and Baldwin C  (2006).Ethical issues in dementia care.Jessica Kingsley Publishers

Jaworska A (1999). Respecting the margins of agency: Alzheimer’s patients and the capacity to value.Philosophy and Public Affairs, 28, 2: 105-138

Kohn LT, Corrigan JM, Donaldson MS (Edit.) (1999).To err is human: building a safer health system. Washington, DC: National Academy Press, Institute of Medicine

Longneaux JM (2014). L'éthique à la recherche bien-être, l'engagement de chacun.Speech at the colloque "Maladie d'Alzheimer: L'éthique à la recherche du bien-'etre".Huy, Belgium, 24 April 2014.

López D, Callén B, Tirado F and Domènech M (2010). How to become a Guardian Angel. Providing safety in a Home Telecare Service. In: Annemarie Mol, Ingunn Moser, Jeannette Pols (eds.).Care in practice. On tinkering in clinics, homes and farms, (pp.71-90).

Mahieu L, Van elssen K & Gastmans C (2011) Nurses’ perceptions of sexuality in institutionalized elderly: a literature review.International Journal of Nursing Studies,48, 9: 1140-1154.

Mahieu L and Gastmans C (2012). Sexuality in institutionalized elderly persons: a systematic review of argument-based ethics literature.International Psychogeriatrics,24: 346-357.

Mahieu L, Anckaert L and Gastmans C (2014). Eternal sunshine of the spotless mind? An anthropological-ethical framework for sexuality in dementia care.Medicine, Health Care and Philosophy,17: 377-387.

Mahieu L, Anckaert L & Gastmans C (2015). Intimacy and sexuality in institutionalized dementia care: clinical-ethical considerations.Health Care Analysis(in press)

Misselhorn C, Pompe U & Stapleton M (2013). Ethical Considerations Regarding the Use of Social Robots in the Fourth Age,GeroPsych, 26, 2: 121-133

Mitchell P (2008). Defining patient safety and quality care. In: RG Hughes (Ed.),Patient safety and quality: An evidence-based handbook for nurses(Vol. 1; pp 1-1–1-6). Rockville, MD: Agency for Healthcare Research and Quality (AHRQ).

Niemeijer AR, Depla MFI, Frederiks BJM, Francke AL & Hertogh CMPM (2014). The use of surveillance technology in residential facilities for people with dementia or intellectual disabilities: A study among nurses and support staff. Exploring the benefits and drawbacks.American Journal of Nursing.                                      

Parsons C (2008). The dignity of risk: challenges in moving on.Australian Nursing Journal, 15: 28-29

Perske R (1972). The dignity of risk. In: W. Wolfensberger (ed.),Normalization: The principle of normalization in human services(pp. 194-200). Toronto: National Institute on Mental Retardation.

O’Neill DJ (2013). Should patients with dementia who wander be electronically tagged? No.British Medical Journal, 346: 3606

Sharkey A and Sharkey N (2012). Granny and the robots: Ethical issues in robot care for the elderly.Ethics and Information Technology, 14, 1: 27-40

Villar F, Celdran M, Faba J & Serrat R (2014) Staff attitudes towards sexual relationships among institutionalized people with dementia: does an extreme cautionary stance predominate?International Psychogeriatrics,26, 3: 403-412.



Last Updated: Thursday 26 November 2015