DemACE (UK)
Minority ethnic groups (in general), BAME/BME
Title/name of initiative:
The Dementia Alliance for Culture and Ethnicity (DemACE)
Type of initiative:
Website containing a wide range of documents and video links
Country:
United Kingdom
Details/description:
The Dementia Alliance for Culture and Ethnicity (DACE) is an alliance of groups currently providing information and support to people from Black, Asian and minority ethnic communities in the UK. DACE aims to promote improved understanding of dementia in Black, Asian and Minority Ethnic communities and improved services and support for all those living with dementia and their carers and families. Their "Call to Action" demands increased investment and resources for grassroots organisations such as faith and community groups, which are described as containing largely untapped potential. See https://www.demace.com/video-resources
Of interest to people with dementia:
Video: "Finding Patience" (produced by NHS Health Education England, www.hee.nhs.uk/dementia): https://youtu.be/Q7zJL8nPqFg
Video: "Older people from BME communities in Bristol talk about their experiences of dementia" (produced in collaboration with Bristol Aging Better; Bristol and Avon Chinese Women's Group; Bristol City Council; UWE Bristol): https://www.youtube.com/watch?time_continue=505&v=FWuRjrdlxAI
Video: "Purani Yaadein (Old Memories): Raising Awareness of Dementia in Rochdale UK" (produced as a partnership project between BME Health Matters and Cartwheel Arts): https://www.youtube.com/watch?time_continue=1355&v=oNNh4tDwEE0
Video: "Dementia: Special Issues Related to Ethnic & Racial Minorities (Spanish Subtitles) (produced by UCLA Health)": https://www.youtube.com/watch?time_continue=1993&v=id4GsfxLq-Y
Video: "It's OK to talk about Dementia. Developed by Liverpool DAA BAME Dementia Champions Project": https://www.youtube.com/watch?time_continue=160&v=veWILEVO434
Video: "What is Dementia? Developed by Liverpool DAA BAME Dementia Champions Project and HUDA Somali Community": https://www.youtube.com/watch?v=JYcHxLVufZo
Video: "Recognise the symptoms of dementia. Developed by Liverpool DAA BAME Dementia Champions Project and African Elders": https://www.youtube.com/watch?time_continue=2&v=y2oWgXCzRac
Video: "Myth Busting Facts about Dementia. Developed by Liverpool DAA BAME Dementia Champions Project and Alive Centre": https://www.youtube.com/watch?v=VAB1VDsPfwI
Of interest to Health care professionals:
Video: "Finding Patience- the Later Years" (produced by NHS Health Education England, www.hee.nhs.uk/dementia): https://youtu.be/VgVKw-Wfxy4
Video: "Race and Dementia" (attributed to www.end-racism.org): https://www.youtube.com/watch?time_continue=2&v=FKjtO4WiPvM
Video: "NABSS Week 2014-Dementia in the Black Community" (DACE): https://www.youtube.com/watch?time_continue=71&v=r0aguc6Elxc
Which ethnic group(s) are covered?
Various/ Asian/ BAME communities in the UK
Which languages are covered?
English and a range of other languages (i.e. through the links to a wide range of documents and video clips)
What is the target audience of the initiative:
It is stated on the website that the aim is to provide information and support to people with dementia and carers from BAME communities. A lot of information would probably also be valuable to healthcare professionals and service providers.
Duration:
Open ended
Where or from whom to obtain more information:
David Truswell, Chair, Dementia Alliance for Culture and Ethnicity, Email: admin@demace.com
Last Updated: Tuesday 16 July 2019