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PO11. Awareness and policy campaigns

Detailed programme and abstracts

PO11.2. Adapting the Dementia Detectives workshop for Malaysian students

GRIFFITHS Alys1, PARVEEN Sahdia2, CHEONG WING LOONG Mark3, SAW Pui San3

1Leeds Beckett University, Leeds, United Kingdom, 2University of Bradford, Bradford, United Kingdom, 3Monash University Malaysia, Subang Jaya, Malaysia

Within Malaysia, there is limited awareness or understanding of dementia and its impact on families. Lack of understanding can lead to stigma and is a major barrier for seeking and accessing support, diagnosis, and treatment. Therefore, reducing stigma towards people with dementia is an international priority. As stigma often appears early in life, early intervention is important to ensure that future generations do not hold negative views towards people with dementia. Increasing awareness can reduce stigma, however, there has been no evaluation of dementia awareness sessions in Malaysia. This study aimed to adapt a UK focused dementia awareness session (Dementia Detectives) to be culturally appropriate for use in Malaysia, evaluate the impact of a one-off dementia awareness session on attitudes towards and knowledge of dementia amongst healthcare undergraduate students in Malaysia, and explore students’ opinions and reactions to the dementia awareness session. We found that it was possible to adapt the workshop to meet the needs of Malaysian students. Undergraduate students (N = 110) attended the workshop and showed improved knowledge of and attitudes towards dementia using pre- and post- workshop questionnaires. Focus group discussions with 20 participants demonstrated that participants had enjoyed the interactive aspect of the workshop, but wanted a longer workshop to learn more about dementia. Participants felt that the workshop was culturally appropriate and relevant to their family and community. The successful adaptation of the workshop for a Malaysian audience may suggest that the workshop is suitable to be delivered within other countries, although further research is needed to establish whether this is the case. The workshop will now be delivered more widely with continued evaluation of its impact, relevance and appropriateness.   

PO11.4. A cultural and practical approach to fight the stigma of dementia and to promote awareness among young people

D'ANASTASIO Clelia1, FERRIANI Elisa2, STINZIANI Sabrina3, ROMANO Luciano2, LINARELLO Simona3, RIBANI Valeria1

1ARAD onlus, Bologna, Italy, 2Centers for Cognitive Disorders and Dementia and Clinical Psychology Unit, AUSL Bologna, Italy 3Centers for Cognitive Disorders and Dementia, AUSL Bologna, Italy

Stigmatization is the social phenomenon that attributes a negative connotation to a member/group of the community to downgrade it to a lower level, and tends to determine a distance between "us", the normals, and "them", the different.

This attitude is greater among those who have little knowledge of the disease, have limited/no contact with the person with dementia (PWD), in men, in young people, in contexts with low education and/or in ethnic minorities.

One of the main actions of the project carried out by ARAD, an association of voluntary professionals that takes care of PWD, concerns the awareness of young people towards dementia, in order to counteract stigma and negative connotations, to promote better knowledge and a more adequate social inclusion.

We have used the opportunities provided by Law 107/2015 on school-work alternation, aimed at “encouraging the orientation of young people to enhance their personal vocations, interests and individual learning styles and to correlate the educational offer to the cultural, social and economic development of the territory".

The project involved 100 students from two high schools in Bologna and their teachers. Two interactive seminars have been carried out at these schools, in which training has been made both on the physiopathological and clinical aspects of dementia, both on psychological and social aspects, on relational difficulties and on best practices to guarantee good quality of life to PWD and their carers. Subsequently the students practiced the period of school-work alternation at ARAD, participating in the Alzheimer Cafés, meeting activities and psycho-occupational stimulation. At the end of this experience, they produced short essays that document how they managed to come into empathic contact with PWD, to become aware of a reality previously not considered by them, to feel enriched by what they experienced. They also made videos and a graphic novel.

PO11.5. Art as public engagement: Using creative artefacts to disseminate research and raise awareness of dementia

TISCHLER Victoria

University of West London, London, United Kingdom

Creative research artefacts such as art made by people with dementia can stimulate public imagination and and can be used to share research. This paper reports on Public Engagement (PE) activities that followed a three-year prospective, multi-centre study Dementia and Imagination (D&I). This project developed, implemented and tested the impact of visual arts activities with people with dementia living in the community, in care homes, and in clinical settings across three parts of the UK. The PE activities included art exhibitions, installations at music festivals, and multi-sensory tea parties. These aimed to engage the public with the D&I research, to raise awareness of evidence-based creative approaches to dementia care, and more widely, to destigmatise the condition of dementia. 

We found that artwork made by research participants and creative activities effectively engaged a range of audiences and challenged negative ideas about living with dementia. Creative approaches to dissemination are recommended in order to make research findings accessible, relevant, and (if possible), fun, as a way of creating interest in the topic, where it might otherwise be ignored or avoided. For D&I, utilising art both within the research and as a means of communication, encouraged a wide audience, beyond the scholarly community, to engage visually and interactively with the project. The creative outputs used within this project present an image that is synonymous with the emerging message: that people can live well with dementia, with visual art activities being one modality that promotes this.  Further work could explore public engagement in diverse settings to assess which approaches are effective in maximising research value.

Reference: Tischler, V., Howson-Griffiths, T., Hedd-Jones, C. & Windle, G. (in press) Using art for public engagement: reflections on the Dementia and Imagination project. Arts & Health 

PO11.6. Senior Friendly Communities: A five step approach to making municipalities’ health policies more friendly towards people with dementia and depression

SCHICHEL Mignon1-2, VEENSTRA Marja1, KEMPEN Gertrudis3, VUGT, DE Marjolein1, VERHEY Frans1

1Department of Psychiatry and Neuropsychology and Alzheimer Center Limburg, School for Mental Health and Neuroscience (MHeNs), Maastricht University Medical Centre, 2Department of Psychiatry & Neuropsychology, Alzheimer Center Limburg, Maastricht University, Maastricht, Netherlands, 3Department of Health Services Research, Care and Public Health Research Institute (CAPHRI), Faculty of Health, Medicine and Life Sciences, Maastricht University, Maastricht, Netherlands

Background: Municipalities have a responsibility for creating health policies for people with dementia, people with late-life depression and informal caregivers. So far, the exchange of knowledge and best practices on older people’s public health between municipalities has remained limited, especially across borders. The cross-border Senior Friendly Communities (SFC) approach focuses on older people’s public health in the Euregion Meuse-Rhine (EMR). 

Methods: The SFC approach makes use of the World Health Organisation’s frameworks of Active and Healthy Ageing, with the pillars health, participation and security. The methodology of the SFC approach consists of a five-step approach: (1) creating an infrastructure for the SFC project; (2) including municipalities; (3) conducting baseline assessments in the participating communities; (4) creating an activity buffet of a variety of activities promoting older people’s wellbeing; and (5) implementing the activities, conducting post-implementation assessments to measure the impact of SFC and creating a sustainability plan for communities to continue on this path. 

Results: Implementing the SFC approach in the EMR has given a first insight into what steps need to be taken to support municipalities in gaining more age-friendly public health policies.  The project assisted local coordinators of 32 municipalities in implementing interventions for people with dementia (80 activities) and depression (90 activities). Participating municipalities reported that they expanded their service offerings for and increased their awareness of people with dementia and late-life depression since the start of the SFC project. 

Conclusions: We will further discuss the activities and impact for the 32 participating communities, and how these can be made sustainable for the future. The SFC approach can serve as a guideline for the cross-border exchange of health policy in other regions. 

PO11.7. Air travel connections: Creating a hub of collaborators to enhance flight experiences for people with dementia and their companions

WARREN Alison1, SHERRIFF Ian1, TURNER Katherine1, BOURNE David2, ROBERTS Chris3, GOODRICK Jayne4, CHAMI Hayley5, FREMANTLE James6

1University of Plymouth, Plymouth, United Kingdom, 2 Four Rivers Dementia Alliance, South Hams, United Kingdom, 3European Working Group of People with Dementia, Wales, United Kingdom, 4Carers Advisory Panel, Dementia Carers Count, Wales, United Kingdom, 5South Devon College, South Devon, United Kingdom, 6United Kingdom Civil Aviation Authority, London, United Kingdom

Dementia is a global challenge with people needing and wanting to travel on domestic and international flights. Evidence suggests that engaging in air travel can be a varied experience for people with dementia and their companions. There are particular points in the journey from home, through airports and inflight that can prove challenging. While some improvements have been made to support travellers, there has been limited research developed to tackle transport barriers for those living with dementia.

The Prime Minister’s Dementia Challenge Group for Air Transport, based in the United Kingdom (UK) highlighted the urgent need to raise issues associated with air travel that was debated in the House of Commons. Group members include people living with dementia and carers who have been able to help others affected by dementia to claim what is theirs by right. Other collaborators include academics, healthcare professionals, researchers, aviation industry representatives, aviation regulators, mental capacity law experts and those involved with policy development.

This presentation will outline the work undertaken to date by group members that seeks to promote dementia friendly societies. It will also set out how the group has been a key to helping the UK’s air transport regulator, the UK Civil Aviation Authority, develop and implement guidelines for airports and airlines on providing better support to people living with dementia. The focus will be on identifying issues, sharing practical solutions and strategies that have been successful in bringing key stakeholders to collaborate on this important area. Information and resources will be shared in order to assist others interested in informing guidance and policies across Europe and further afield. Future plans for the Prime Minister’s Dementia Challenge Group for Air Transport will be presented, with opportunities to widen the collaboration hub offered to take this work forward at a global level.

PO11.8. Connecting with minority groups (Indonesians in the Netherlands)

UTOMO Amalia Fonk

Stichting Alzheimer Indonesia Nederland, Groningen, Netherlands

Background: There are 16.151 registered Indonesians living in the Netherlands (source: Indonesian Embassy in the Netherlands). Around 800.000 Dutch people in 4 generations have Indo-European roots. Besides Indo-Europeans, around 40.000 people from Moluccan descent live in the Netherlands (source: latitudes.nu) and 1.500 Indonesian are studying in the Netherlands.

Alzheimer Indonesia Nederland & Alzheimer Nederland have a collaboration under the Twinning Program of Alzheimer's Disease International. This is a three-year program for 2017-2019 and a renewal of the previous program and funded by the Dutch government. Part of the funding is directed to activities for Indonesians in the Netherlands.

Objective: To access Indonesian immigrant as minority group in the Netherlands.

Activities: In 2017 a foundation, Stichting Alzheimer Indonesia Nederland was created in the Netherlands to support and raise awareness within the Indonesian community living in the Netherlands about dementia and efforts in Indonesia.

Accessing Indonesian Communities: religious, art and culture, professionals and government sharing information about the foundation and developments in Indonesia by connecting to more than 20 Alzheimer Indonesia’s chapters. By mid 2019 more than 2000 Dementia Friends and 50 volunteers are arranged in 8 cities: Groningen, Den Haag, Eindhoven, Amsterdam, Arnhem, Rijswijk, Zoetermeer, Rotterdam –Netherlands and 2 cities in Indonesia: Jakarta and Malang.

The foundation also connected to home care and nursing homes, an Alzheimer centre at the University and Alzheimer Café and two migrant organisations.  We found that it is useful to explain Indonesian culture and behavior with the aim to help them to make their care accessible to Indonesian people. This is useful for both home care and nursing home care.

Alzheimer Nederland received a three-year grant from the Ministry of Health to support the program financially in collaboration with Alzheimer Indonesia and Alzheimer Indonesia Nederland.  

PO11.9. Twinning Program: Netherlands and Indonesia

UTOMO Amalia Fonk

Stichting Alzheimer Indonesia Nederland, Groningen, Netherlands

Background: Alzheimer Indonesia and Alzheimer Netherlands have a strong collaboration under the Twinning Program of Alzheimer's Disease International. This is a three-year collaboration for 2017-2019 and actually a renewal of a previous program.

Objective: To exchange information, support and learn from each other and for Alzheimer Indonesia to benefit from the organizational experience from Alzheimer Netherlands to improve quality life of people with dementia and caregivers.

Activities: The main elements of this projects by mid 2019 are:

Support (knowledge transfer) for the ADI Asia Pacific conference in 2-7 November 2017 in Jakarta including 7 expert speakers from the Netherlands with result 700 participants including multi disciplinaries: health care workers, chapter leaders, youth community leaders, volunteers, general public and government officials. 45 representatives from 20 countries.

Capacity building for Alzheimer Indonesia by increasing to 21 chapters, 173 caregiver meetings and 12 home visits.

Training of Indonesian volunteers in Dementia Care Skills with 7 trainers and 26 caregivers.

Hope, love and care public event in Malang, Indonesia in 19-21 October 2018 19-21 October: Public Event, Malang Indonesia with more than 700 participants in 3 days (multi disciplinaries: health care workers, chapter leaders, youth community leaders, volunteers, general public and government officials), 6 international speakers (3 from ALZI Netherlands; 1 from University of Rotterdam, Netherlands; 1 from University of Tasmania, Australia; and 1 from ADI Asia Pacific) and 8 national speakers.

Support for awareness activities for Indonesian in the Netherlands through Stichting Alzheimer Indonesia Nederland.

Presentation of Twinning results at European Alzheimer conference 2019 in The Hague, Netherlands.

Alzheimer Nederland received a three-year grant from the Ministry of Health to support the program financially in collaboration with Alzheimer Indonesia and Alzheimer Indonesia Nederland. And we hope to extend the Twinning Program for the next couple of years.

PO11.11. The national dementia friendly community’s campaigns in Zhongzheng district of Taipei City, a community with care, humanity, respect and technology

LIU Chien-Liang1, CHANG Hui-Mei2, WOUNG Lin-Chung3, HUANG Shier-Chieg4, LIN Meng-Hui5, LIANG Ya-Hui6, CHANG Kai-Hsiang5, CHENG Yi-Chiao5

1Dementia Center, Taipei City Hospital, Taipei, Taiwan, Province of China, 2Zhongzheng District Health Center, Taipei City, Taipei, Taiwan, Province of China, 3Taipei City Hospital, Taipei, Taiwan, Province of China, 4Department of Health, Taipei City Government, Taipei, Taiwan, Province of China, 5Health Promotion Division, Department of Health, Taipei City Government, Taipei, Taiwan, Province of China, 6Department of pharmacy, Taipei City Hospital, Taipei, Taiwan, Province of China

The Global action plan on the public health response to dementia 2017-2025 had been issued by World Health Organization in May 2017. Taiwan responded the global action plan to the National action plan for dementia in Taiwan in Dec 2017. The Zhongzheng district of Taipei was one of demonstration sites of the project of dementia friendly communities which was released by Health Promotion Administration in Taiwan. The population of Zhong-zheng District in Taipei City is about 160,000, and the population of people with dementia is estimated to be 2,438. The working group of dementia in long-term care committee supervised the district-level organization of the Zhongzheng District Community Safety and Health Promotion Association to manage this project. This project had four major topics and 14 items of work to provide the dementia friendly community.

The one-year project achieved the following results:

·         conducts community resource inventory

·         conducts family centered needs surveys

·         recruits 156 dementia friendly organizations and conducts the grading system in 5 levels

·         cultivates 3,193 dementia friends in general population

·         1,390 children as dementia friends

·         cultivates 267 dementia-friendly volunteer

·         build 3 dementia friendly demonstration units

·         carried out the environment improvement for people with dementia

·         establish the web based map of dementia care resources

·         chatbot for some key issues of dementia care resources and knowledge

·         Virtual Hospital APP for strengthening the self-care through the technology.

All of the results had been established a perfect care service network in the Zhongzheng District of Taipei City.

PO11.12. An evolving model of policy campaigning and representation work in Scotland

REID Muriel1, BEYT David1, NDCAN Member 2

1Alzheimer Scotland, Edinburgh, United Kingdom, 2National Dementia Carers Action Network (Alzheimer Scotland), Edinburgh, United Kingdom

Scotland’s 3rd national dementia strategy’s vision is that people with dementia and their carers access timely, quality support at every stage of the condition, focused on personal outcomes.

The National Dementia Carers Action Network (NDCAN), within Alzheimer Scotland campaigns nationally on issues faced by people caring for someone with dementia.

The network has shaped the emphasis on carers’ support/involvement in successive dementia strategies. It contributes to other relevant policy work in Scotland e.g. Carers 2016 Act and Carers Charter.

In Scotland, implementation of national dementia strategy commitments is held at local level. Joint Boards of Health and Social care partners manage how national strategy is delivered in 32 local authority areas. There is excellent vision in Scotland’s dementia strategy, however, engagement with local service users and performance data indicates inconsistency and a ‘policy /practice gap’ in how strategy commitments are implemented at locality level.

NDCAN is evolving, reaching out to hear ‘collective’ voices and experiences of carers across Scotland to represent them at national level, while exploring how NDCAN can support local carers influence decision makers at local level to close the ’policy/practice’ gap. 

NDCAN, is part of Alzheimer Scotland’s Active Voice work and the refocus is at early stages. Linking NDCAN members with Alzheimer Scotland local carers groups is underway so that we hear local dementia carers priorities about strategy commitments to support local and national campaigning.

This presentation will describe how NDCAN is working with Alzheimer Scotland’s local networks to hear and build that ‘collective voice’ of dementia carers to inform national campaigning and the different ways in which NDCAN members are working to support the carer networks campaign for local implementation of national government commitments.

National Dementia Carers Action Network (NDCAN)

PO11.13. Capacity building for dementia-friendly communities in Austria

PLUNGER Petra1, RÖSLER Petra2

1Department of Nursing Science, University of Vienna, Vienna, Austria, 2Kardinal König Haus, Vienna, Austria

Background: Initiating dementia-friendly communities as a means to foster awareness and to develop community-based activities is gaining attention in Austria. Also, the Austrian Dementia Strategy ‘Living well with dementia’ has called upon communities to support citizen engagement in developing dementia-friendly communities.

The Kardinal König Haus coordinates a network of dementia-friendly communities, mostly in rural areas, providing support for emerging dementia-friendly communities as well as for professional and lay actors interested in initiating a dementia-friendly community. Based on the latter task, the Kardinal König Haus commissioned a study to assess the challenges and needs related to community development, as well as to develop a training concept to tackle these challenges.

Methods: The study was carried out in close cooperation with the Kardinal König Haus, using repeated feedback loops to discuss preliminary findings and proposed strategies. At start, the author participated in one network meeting of the dementia-friendly communities. Four expert interviews were carried out with coordinators of dementia-friendly communities, assessing their role, the evolutionary history of the respective community, actors involved and interventions developed, as well as resources and challenges. Findings from the empirical part were validated with one interviewee. To relate these findings to international perspectives, a literature research was carried out. A training concept was developed using a capacity building approach.

Results and Discussion: Findings show four core areas derserving attention when developing dementia-friendly communities: approaching and working with interested communities, enabling participation, addressing stigma, and taking into account health equity. These findings largely mirror experience gained in other communities, and may be linked to concepts of community development. Capacity building for dementia-friendly communities could benefit from knowledge and experience gained in health promotion, related to community development, networking and partnership-buidling, while health promotion might benefit from experience gained in dementia-friendly communities, related to participation and tackling stigma.

PO11.14. The digital value of social media platforms: Alzheimer’s disease and other dementias on Facebook

MEGGES Herlind, FREIESLEBEN Silka Dawn, RÖSCH Christina, PETERS Oliver

Charité – Universitätsmedizin Berlin, Memory Clinic and Dementia Prevention Center, Berlin, Germany

Objective: Social media platforms have the potential to drive wide-reaching educational campaigns on dementia risk factors and prevention strategies by promoting self-awareness and self-management strategies. However, systematic research on what aspects optimize the visibility and success of social media platforms in this regard is limited. Here, we examined dementia-related Facebook pages of German-speaking countries with the aim to establish key guidelines for better visibility.

Methods: Dementia-related Facebook pages in Germany, Switzerland and Austria were analyzed with the search terms: “dementia”, “Alzheimer’s”, “prevention” and “risk” in April 2019. A visibility index score (VIS) was created by dividing the number of followers by the number of likes of the last 10 posts. In a further step, we will perform a content analysis on the pages with the highest VIS, as well as a comparison with leading English-speaking countries.

Results: Overall, 12 pages met the search criteria (n=7 non-profit organizations, n=3 research institutions, n=1 governmental institution, n=1 service provider). Facebook pages with the largest amount of followers were from the Swiss non-profit organization “alzheimer.ch”(13456), followed by the German service provider “Demenz Spezial”(12208) and the Swiss non-profit organization “Demenz Zürich”(10283). No Austrian dementia-related Facebook page was found. The top five VIS was found for the “Freunde Demenz Zürich”(4.5), followed by the “Alzheimer Forschung Schweiz AFS - Stiftung Synapsis”(4.7), the German “Demenz Partner”(5.8), the German “Alzheimer Selbsthilfe e.V.”(8.5) and the German “Dialog- und Transferzentrum Demenz“(8.8).

Discussion: Our results show that non-profit organizations and research affiliated institutions have a big reach on Facebook. Therefore, all national dementia prevention strategies should include the promotion of a social media presence. Key guidelines on how to optimize the visibility and reach of dementia on social media platforms may lead to heightened self-awareness on both an individual and societal level, which is in-line with worldwide dementia prevention efforts.

PO11.15. 5 tips for successful growth in online donations

STRUNK Femke

Alzheimer Nederland, Amersfoort, Netherlands

Alzheimer Nederland managed to realize a growth in income by online donations from less than €100.000 per year in 2014 to over €1.000.000 in 2018. And we’re still growing much faster than other Dutch Health Foundations. How did we get there?

Tip 1: Get traffic to your website

One of our most important channels is Google. 65% of our visitors come through Google (15% advertising, 50% free search results). We benefit from the Google Ad Grants program, which provides us monthly $ 40.000 of free advertising. Other powerful ways are e-mail marketing, Facebook advertising and offline campaigns.

Tip 2: Get to know your visitors

Use tools, like Google Analytics, Hotjar and VWO, to get to know your visitors. Then you can optimize your website based on their needs: create the right content, make logical paths and avoid ‘dead ends’.

Tip 3: Explore new ways to get donations

The regular donation form on the website is one way to get donations. Other successful ways for us are product selling and leadgeneration forms combined with prefilled donation forms. We’re always exploring new ways to get donations, like ‘Tikkie’ (payment requests via WhatsApp) and Facebook birthday-fundraisings.

Tip 4: Optimize your website through ‘CRO’

Optimize the donation form, but even more important: the entire website. It’s all part of the visitor’s journey. We started with Conversion Rate Optimization (CRO): a process of continuously improving the website to increase the percentage of visitors that make a donation.

Tip 5: Get in touch with other marketeers

Isn’t just the market of donating shifting to online? True. But our growth is much larger than our competitors’ growth, according to our yearly Dutch charity benchmark. So get in touch with other marketeers from charity organizations and exchange knowledge and results.  

PO11.16. Talking about dementia – A Living Library on the topic of dementia

BEGEY Karine, ACKERMANN Maya, BECKER Stefanie

Alzheimer Switzerland, Bern, Switzerland

Organising a Living Library on the topic of dementia is an excellent way in order to raise awareness and challenge the stigma that surrounds dementia. It is an event where the interested public, family caregivers, people with dementia, experts and scientists meet to talk about dementia. A Living Library is a public event where the “books” are people with a personal experience or expertise in dementia who are willing to share their experience with unknown “readers”. These talks offer the possibility to speak freely, to ask questions people usually would not ask and broaden one’s horizon.

Alzheimer Switzerland organised three Living Libraries on the topic of dementia in three different language regions. The evaluation underlined the suitability of this format to talk about dementia. Both the “living books” as well as the visitors were able to learn from each other and appreciated the unusual dialogue at eye level. As a product, Alzheimer Switzerland developed a practical manual that contains useful hints and recommendations on what to keep in mind when organising a Living Library on the topic of dementia.   

PO11.17 The organization of nformative campaigns on Alzheimer’s and related disorders, by the Karelleion integrated Alzheimer and related disorders unit

EFTHYMIOPOULOU Catherine1, CHRYSIKAKOU Iliana2, ZACHARIADIS Andreas2

1Karelleion Integrated Alzheimer and related disorders Unit, “Apostoli”, Holy Archdiocese of Athens, Greece 2Athens, Greece

Fοllowing the axiom that valid information on any problem lays the foundations for its timely identification and thus in the finding of various alternatives, our Unit conducts an information campaign about dementia.

These actions are organized throughout our capital Athens, but also at a national level, in cooperation with both health structures such as nursing institutions, and intermediate rehabilitation structures, as well as ocal branches of the Greek Church, the municipalities, the open protection centers for the elderly etc.  In the context of the aforementioned, we are visiting provincial cities such as Ioannina, Alexandroupolis, Orestiada, Didimoticho Komotini, Preveza, Grevena, as well as the islands of Kos, Mitilini, Chios, Rhodes, Samos, Tilos, Astypalea, Fourni, Ikaria, Karpathos, Syros, Crete, Corfu, Kefalonia etc. The common feature of all this is the enthusiastic reception, which is our initiative, as well as the touching response of the local community.

The above mentioned activity is carried out by members of our Unit’s scientific team, who present to patients, their relatives, and their carers, theoretical issues, on layman’s terms, about dementia as well as practical advice on what to do and how to take care of a person with dementia. Our staff, also administers memory assessments, free of charge, to anyone interested and suggests appropriate medical referrals, when necessary.

The main purposes of these campaigns are to provide thorough information on dementia, to anyone who is interested, and at the same time to give them the ability of freely expressing their feelings or inner thoughts. Also, it is very important for us to diminish the stigmatization associated with Αlzheimer’s disorder and dementia in general. The warm response to our initiative and the positive feedback we are receiving by people, show us that local communities have already embraced it.

PO11.18 Leadgeneration, involvement and donations through Forget-me-not-pins

STRUIF BONTKES Elsien

Alzheimer Nederland, Utrecht, Netherlands

Mid 2016, Alzheimer Nederland wanted to identify and involve the almost 40.000 Facebook followers through a new sympathetic leadgeneration proposition. From a previous campaign, we had 4.000 Forget-me-not pins left. The Forget-me-not stands for uniting against dementia and remembering people with dementia and their loved ones. To celebrate our 40.000th Facebook follower, we offered our followers one free Forget-me-not pin per person. After ordering the free pin, we would thank them and give them the opportunity to donate a gift.
 To our surprise, within 36 hours all 4.000 Forget-me-not-pins were ordered. The reach of the Facebook post was 90.000, the comments were very positive and we gained 300 (instead of 45) extra followers in the first day. About 10% of the people who ordered the pin, directly made a donation (€10 average). The people who ordered the pin were mostly new to us. From then, we informed them regularly by email, post and telephone, with informative and fundraising propositions.

In the following weeks, people asked if they could re-order and even buy the pins. They wanted to give them to colleagues, health workers or guests at a funeral. We re-ordered the pins and expanded this successful campaign. People can still order 1 pin for free per address and buy more pins for €1 per pin. We also created Forget-me-not-charms and Forget-me-not-keychains to sell online. The distribution is done by a social workplace, to manage costs. With the voluntary donations and the profit on the sales, the revenue model is positive. Today, we’ve distributed 135.000 free pins and sold more than 150.000 pins, 25.000 keychains and 6.000 charms. 

With these products, we reach a new target audience, new leads and donations. In addition, the forget-me-not-products help us increase social impact. Nowadays, the pin is a known symbol amongst informal carers and healthcare professionals.

 

 
 

Last Updated: Monday 07 October 2019

 

 
  • Acknowledgements

    The 29th AE Conference in The Hague received funding under an operating grant from the European Union’s Health Programme (2014-2020). Alzheimer Europe and Alzheimer Nederlands gratefully acknowledge the support of all conference sponsors.
  • European Union
  • Roche
 
 

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