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P14. (Inter)National dementia strategies

Detailed programme, abstracts and presentations

P14.1. National Dementia Strategy 2014-2019 from Switzerland – Findings from 6 years of implementation


Federal Office of Public Health, Bern, Switzerland

The main objective of the «National Dementia Strategy 2014-2019» is to support those affected by dementia and promote their quality of life while consistently taking their individual circumstances into account. The Strategy defines four areas requiring priority action:

1. «Health literacy, information and participation»:In order to draw attention to the realities of people with dementia and to promote an open approach to dementia, two professional organizations have launched an awareness-raising campaign in order to draw attention to the realities of people with dementia and to promote an open approach to dementia.   

2. «Needs-appropriate services» and 3. «Quality and professional skills»:Dementia patients and the people closest to them should have the possibility to call on flexible, high-quality and needs-appropriate care services. In this context, for example, recommendations for improving early detection, diagnosis and treatment in primary care have been developed. Other professional organizations launched an online tool in order to provide specialists with knowledge and models for the support, care and nursing of people with dementia in long-term care.

4. «Data and knowledge transfer»: Systematically collected data is necessary to ensure that the improvement of quality of care can be assured in the future. Therefore, data of existing health statistics have been collected and three studies (surveys among family doctors, memory clinics and the population) have been carried out.

The strategy was evaluated, as it will run out by the end of 2019. The evaluation focused on how the implementation of the strategy is to be assessed (strengths, gaps, weaknesses, appropriateness of the measures, impacts, etc.) and what needs for action or recommendations can be derived for future action. These evaluation results, the achieved project results and an outlook on future activities are the contents of our presentation.

P14.2. From plan to impact: National plan responses to the WHO Global action plan on dementia


Alzheimer's Disease International, London, United Kingdom

The adoption of the global action plan on dementia at the World Health Assembly in May 2017 and the subsequent initiation of the Global Dementia Observatory (GDO) later that year ensured that dementia became an international priority. The global action plan is ambitious in scale and scope, with 7 key action areas. Data has also started to be uploaded to the GDO through 21 pilot countries, with more coming online. By October 2018, 18 months on, what progress is being made? 

Developing, funding, deploying and monitoring national dementia plans is the best tool available to governments to tackle the challenge. This presentation will review the global progress, identifying what is working well and what are the barriers, highlighting global examples, including in low- and middle- income countries, alongside European plan developments.

At the time of submission, there are 30 national plans in existence, with up to 6 more forecast for 2019. Currently, this equates to just 15% of the global action plan target. The presentation will explore strategies for supporting plan development in key regions and countries to tackle the deficit and look to exemplar or benchmark plans, that are being managed well, to act as a source of inspiration. In key regions, there are no plans at all (sub-Saharan Africa) but encouragingly, many of the plans in development are in low- and middle- income countries.

In addition, the presentation will review progress in the other action areas, including dementia awareness and friendliness (including a review of PAHO regional awareness campaign); risk reduction; diagnosis, treatment & care; support for carers; information systems; and research & innovation. In the contunued absence of a disease modifying treatment, the focus continues to fall on key areas of awareness, care and risk reduction.

P14.3. Measures to implement the Austrian dementia strategy “Living well with dementia”


Federal Ministry of Labour, Social Affairs, Health and Consumer Protection, Vienna, Austria

Around 130,000 people are currently living in Austria with dementia. As a result of demographic developments and rising life expectancy, this number is expected to double by 2050. In addition, 30% of cases on the long-term care benefit registry cite dementia as the responsible factor. Dementia is therefore a key challenge for the Austrian long-term and health-care system (integrated care). In 2015, the former Federal Ministry of Social Affairs and Health developed a national dementia strategy. In order to support a coordinated approach, the dementia strategy platform was set up in 2016 and up to now, the federal government, the states, and social insurance authorities have implemented more than 70 measures to achieve the goals of this strategy.

The Federal Ministry of Social Affairs recently funded the project “People with dementia in public transport”, with the aim of developing a brochure for employees of transport companies to help improve the social participation of people with dementia.  

On 29th September 2019, the second congress of the Dementia Strategy Platform will take place in Vienna, where over 100 participants of the Austrian platform will discuss about the inclusion of people with dementia and perspectives for the further implementation of the dementia strategy.

The presentation will highlight current measurements to include, support and strengthen people with dementia as well as their caregiving relatives and will furthermore present the first results of the upcoming guidelines “Living well with dementia in nursing homes” to support suitable conditions for a good life and working in nursing homes in Austria. 

P14.4. Developing a Dutch dementia care registry to stimulate the improvement of dementia care – Progress & lessons learned

DÖPP Carola1, FRANCKE Anneke1, VAN DER HEIDE Iris1, JOLING Karlijn2, KWINT Karlijn3, BLOM Marco4, VERHEIJ Robert1

1Nivel, Utrecht, Netherlands, 2Amsterdam UMC, Amsterdam, Netherlands, 3Vilans, Utrecht, Netherlands, 4Alzheimer Nederland, Amersfoort, Netherlands

In the Netherlands, a national dementia care registry is developed to facilitate ‘learning and improving’ in dementia care. More specifically, the registry will provide information about the use and quality of formal care for people with dementia and their informal caregivers, both on a national and regional level. In addition, the registry will be available for research contributing to the quality of dementia care. A basic principle in developing this registry is that we reuse and link existing data. This is data that is routinely recorded by care professionals and will be derived from national databases. This concerns data on for example the medication that is used, hospital visits, and visits to the general practitioner. 

The steps along which the registry is developed will be discussed such as identifying and consulting relevant stakeholders, identifying relevant data sources, data extraction and linking, and testing the usability of the information from the registry during pilot studies with networks delivering integrated dementia care.

In addition, we will elaborate on the lessons we have learned up to now in developing this registry. Lessons learned relate to the necessity to create bearing surface among main stakeholders, such as representatives of people with dementia, care providers and data suppliers. Other lessons involve the need to avoid additional administrative burden for professionals, the development of an effective governance structure, and taking measures to protect the privacy of people with dementia, informal caregivers, professionals, and organizations.

P14.5. Development of the Czech National Action Plan for Alzheimer’s disease and related illnesses


1Ministry of Health of the Czech Republic, Prague, Czech Republic

This study describes the current experience of the Czech Republic with the process of revising its National Action Plan for Alzheimer’s disease and related illnesses (the Plan) from the perspective of the Plan’s coordinator. After encountering serious issues in implementation of the Plan’s previous version, the recent efforts have been following guidelines, recommendations and tools recently issued by the World Health Organization. In line with the step-by-step methodology proposed by the WHO Guide, the Czech Republic has divided the Plan development into several stages: situation analysis, setting priorities, creating strategic framework, assessing resource needs, and obtaining political and stakeholder approval. At the moment, the only completed stage is the situation analysis; it was carried out by collecting Global Dementia Observatory indicators, which enables systemic identification of existing gaps as well as an international comparison. Additional stages will have been completed by the 2019 Alzheimer Europe conference. During the whole development process, considerable effort is being devoted to engaging stakeholders since their low buy-in hindered the success of the previous Plan. With the Plan being developed in parallel to the National Action Plan for Mental Health, there are synergies between the two strategy documents, such as promotion of community services operating on the borderline of social and health care.

P14.6. The Flemish reference framework for quality of life, housing and care for people with dementia

DELY Herlinde

Flanders Centre of Expertise on Dementia, Antwerp, Belgium

Quality of care and quality of life for people with dementia is a constant aim for care professionals, policy makers and a hot topic for researchers. But what is quality of care? What are the foundations of good care and how can we put these into practice?

On request of the Flemish government, the Flemish Centre of Expertise on Dementia published the first Flemish reference framework for quality of care & quality of life for people with dementia. It was launched in October 2018 and is now being implemented all over Flanders.

The reference framework describes six foundations of good care and illustrates them with best practices from all over the world. The document wants to encourage conscious thinking about quality of care, inspire health care organizations and care professionals and stimulate them to optimize the care and support they give to people with dementia and their relatives. The framework is relevant to hospitals, nursing homes and home care organizations. Together with the book/publication, we launched an educational package for health care students and are running several pilot projects in Flanders.

At the Alzheimer Europe conference, we will share our vision on care for people with dementia with other countries. In an oral presentation, we will present the reference framework with its six foundations and how we put it into practice in Flanders.



Last Updated: Tuesday 10 December 2019


  • Acknowledgements

    The 29th AE Conference in The Hague received funding under an operating grant from the European Union’s Health Programme (2014-2020). Alzheimer Europe and Alzheimer Nederlands gratefully acknowledge the support of all conference sponsors.
  • European Union
  • Roche