DE VUGT Marjolein¹, HENDRIKS Stevie¹, VAN DE VEEN Dennis², KOOPMANS Raymond²

¹Alzheimer Centre Limburg, Maastricht, Netherlands, ²Radboud Alzheimer Centre, Nijmegen, Netherlands

People with young-onset dementia (YOD), with a symptom onset at a relatively young age, have specific care needs directly linked to the younger active life phase. Healthcare services should be equipped to meet these needs. However, there is no consensus regarding the terminology and operational definition of YOD, and data on the prevalence and incidence of YOD is scarce. The Prevalence, REcognition and Care pathways in Young-Onset DEmentia (PRECODE)-study aims to provide a univocal understanding of YOD. A common terminology and adequate estimate of the prevalence are prerequisite to plan appropriate care and support in YOD. After a brief introduction of the PRECODE-study, first results of a Delphi-study concerning terminology and prevalence rates will be discussed. Consensus was reached on the majority of the statements on terminology and definition, however some statements remained without consensus. This one-hour session has the aim to discuss in person these statement with experts in the field in a World Café session. Participants will discuss in a group of 6-8 persons every statement during about 10 minutes. The session will end with a wrap-up of the outcomes.

This session is organised by Alzheimer Nederland and PRECODE