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PO10. Volunteers and care in the community

Detailed programme, abstracts and poster presentations

PO10.1 Person-centred care in practice: Four perspectives on the support contact service in dementia care – A case study design

JOHANNESSEN Aud1, THORSEN Kirsten2

1Norwegian National Advisory Unit on Ageing and Health/University of South-Eastern Norway, Tonsberg, Norway, 2Norwegian National Advisory Unit on Ageing and Health/ OsloMet, Oslo, Norway

The number of people with dementia is increasing rapidly and will result in a growing demand for varied health and social services. Support contact is a potential service with positive implications, but it has yet to be explored fully. In Norway, support contacts work as ‘paid friends’ and their work tasks can be compared with befrienders, respite carers or voluntary workers in Norway and other Western countries. The aim of this study was therefore, to explore these questions: (1) Will the support contact service be a favorable service for people with dementia at different age and stages of the disorder? (2) How is the service experienced by patients with dementia, their carers, the support contacts, and the municipality’s administration of the service? (3) What experiences do those involved have of the service, and what do they regard as essential for a good service? A case-study design with qualitative studies of the included participants illustrates the concept. The study concludes that support contact can be a highly appropriate service for people with dementia and their carers, and eventually can be coordinated with other services.

PO10.2. The volunteer's customer journey at Alzheimer Nederland

RICHTER Willem, BULSINK Mirella

Alzheimer Nederland, Amersfoort, Netherlands

At Alzheimer Nederland 25.000 volunteers help us to achieve our goals. Well over 20.000 of them participating in the national door-to-door collection. The other 5.000 volunteers undertaking regional activities and providing support for people with dementia and their caregivers. We have 48 regional chapters which host 241 Alzheimer Cafés.

Volunteers are important for regional awareness and programs. To recruit more volunteers, the national office supports the regional volunteers by launching special (online) campaigns. We have recently developed a ‘Where are you good at?’ test which will be promoted on Facebook and Instagram. Through this test people can find out which volunteer-position might match well with their talents. On a special overview at the corporate website we’ve put all the volunteer’s job-vacancies together. From here it's just one easy click away from applying to a volunteer’s job.

When a volunteer starts, he/she receives a special newsletter as a personalised welcome. Information in this digital newsletter is adjusted to the volunteer’s job to give them a smooth start. All the information and communication with volunteers goes through “het Vrijwilligersplein”. This is a community-platform especially designed for volunteers. Here they can find all the necessary information, such as documents, practical information, tools, news and upcoming events like trainings.  To keep the Vrijwilligersplein and other digital channels (such as Facebook) up-to-date an editioral staff places new items and information every day. We inform our volunteers by sending them a newsletter every month.

The Vrijwilligersplein started over five years ago with 500 visitors a month. Now we have a community of almost 3.000 visitors. We take all the efforts to improve it. We ask for feedback and we monitor visitor’s behaviour. When a volunteer stops he/she receives an exit survey, because we find it important to know how we can improve our service.

PO10.3. Cross-cultural perspective on cognitive functioning and activities of daily livings of elderly in rural Jamaica. Records of a pilot study

KACZMAREK Beata

Poznan University of Medical Science; WSWOP Hospicjum Domowe, Poznan, Poland

The poster presents observations and preliminary results of a series of assessments comprising mood and cognitive functioning of elderly Jamaicans living in Maggotty, Jamaica, gathered during a period of voluntary work at a local clinic and community center.

Cross-cultural psychology perspective seems to apply especially to seniors living in remote environments who assimilate globalization induced changes differently than younger people. For example, Patios, a language traditionally used in Jamaica, is commonly used by elderly in everyday communication as opposed to English, Jamaica’s official state and media language, which is rarely used actively among the elderly population. Poverty, low social awareness, poor education and high levels of illiteracy result in propagating incorrect behavioral patterns, for example unhealthy diet and sugar rich fizzy drinks, which are ubiquitous across diabetic population. Additionally, weak social bonds motivated culturally, e.g. low percentage of official marriages or multiple offspring, increase poverty and reduce mutual support within families. Interestingly, mood swings were reported rarely, which may be attributed to cultural no-stress-attitude or, alternatively, poor understanding of old-age related medical and social conditions. In such communities everyday living activity and neuropsychological assessment is especially difficult as it requires culture specific knowledge. Respondents were initially assessed based on internationally recognized Addenbrooke’s Cognitive Examination in American English. However, due to high percentage of illiteracy I decided to shift to a different, culturally neutral diagnostics tool, which additionally requires no literacy skills, Rowland Universal Dementia Assessment Scale. Moreover, participants were asked to answer several questions about their daily activities. The questionnaire included issues connected with personal independence, social relations, mood and general wellbeing.

To sum up, the study points to a need for further research in rural Jamaica.

PO10.4. Volunteer’s view for participating in outpatient service of quick determination of people with dementia

WU Rong-Hung, HSU Ya-Chuan, WANG Yu-Liang, LIN Shao-Ping

Taipei City Hospital, Taipei City, Taiwan, Province of China.

Taipei is a well developed city with friendly medical environments and prosperous facilities. Yet, because of the high population density, the determination of the people with dementia always need to wait 3 to 6 months. The suspected people with dementia in community then loss the chance of early determination because they can’t match the multiple examinations time due to several factors. Taipei City United Hospital Hopin Range realize the difficulty, therefore coordinate the radiology department and psychologist to provide the outpatient service of quick determination for people with dementia and hold the dementia training course for volunteers. Via involvement of volunteers, the determination for people with dementia can be accomplished in half day. As a family member of person with dementia, l deeply feel the importance of early determination for the people with dementia and family member, so my wife and I join the dementia volunteers training course together. The training course includes: Understand the dementia, How to communicate with the people with dementia, How to treat the behavior and psychological symptoms of dementia, etc. After the training, we formally participate the outpatient service of “quick determination for the people with dementia”, accumulated yearly in total 25 person-times.

PO10.5. Constructing a dementia friendly community - The model of Taipei City Hospital

YANG Chun-Yi, WU Chien Hui

Taipei City Hospital, Taipei, Taiwan, Province of China

A dementia friendly community is a place or a culture where dementia patients and their care givers are supported by the society. In Taiwan, over 90 percent of dementia patients live in their home and take care by their family. Living in a friendly community makes the person with dementia not only have a respectful and safety life, but also feel themselves belong to the community.

In order not to make the person with dementia feel being supplant, Taipei City Hospital is devoted on developing dementia friendly society. We also dedicated on promoting the cognition of disease to the public, setting up the mutual assistant network, and providing continually medical caring service.

Social worker department has been the main unit in charge of promoting dementia friendly community since 2016. We actively visit many organizations, such as schools, clinics, shops, and so on. In present, we have been in contact with 491 friendly stores. The main distribution of friendly unit is the office of the chief of villages. Local clinics, non-government organizations, and the post offices are the secondly distribution.

We designed a dementia friendly logo, which is the identifier of organizations being in contact with Taipei City Hospital. It has been divided into 5 phases based on the willingness of providing dementia friendly service.

·         First phase: Agree with the idea of being friendly of people with dementia and willing to raise public’s awareness about dementia

·         Second phase: Willing to take the training lesson of being a dementia friendly volunteer

·         Third phase: Willing to provide friendly service for person with dementia

·         Forth phase: Willing to improve the environment for the person with dementia

·         Fifth phase: Willing to join the promotion of being dementia friendly stores.

PO10.6. Progetto "Il PassaTempo" (the Pastime project): Living in the community

BERTANI Eleonora, BIGLIARDI Mila, CARRETTI Barbara, BEDINI Ilaria, IOTTI Linda, MIZZI Alessandra, MORELLI Milva, VALERIANI Maria Teresa

AIMA Associazione Italiana Malattia di Alzheimer Reggio Emilia, Albinea (Reggio Emilia), Italy

The "Il PassaTempo" project offers free activities and workshops to adults who wish to cultivate their own pastimes and discover new ones in company.

The project has been conceived by five voluntary service organisations in a hilly area with small towns - 10 km far from the main city. Meetings are open to everybody, with the aim of allowing people to live more and more in community contexts and to benefit from all the possibilities that surround them. Therefore, people with dementia - including people with young onset dementia - participate in meetings together with others adults without cognitive impairment.

Participants meet every Wednesday afternoon for three hours, during which they perform various activities in the company of volunteers coordinated by a psychologist: they play cards, watch films, listen to music, knit, cook, do craft projects or gardening. These activities take place mainly in a community centre located in a large green park, but every last Wednesday of the month they move to a wonderful botanical garden, where beauty and nature offer their healing power.

In the three summer months (June, July and August) middle school students volunteer in the project, enriching the meetings with intergenerational exchanges. As a matter of fact, they learn new activities from adults and the elderly, while passing on their own skills in turn.

 

 
 

Last Updated: Monday 07 October 2019

 

 
  • Acknowledgements

    The 29th AE Conference in The Hague received funding under an operating grant from the European Union’s Health Programme (2014-2020). Alzheimer Europe and Alzheimer Nederlands gratefully acknowledge the support of all conference sponsors.
  • European Union
  • Roche
 
 

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