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Keynote lectures

Detailed programme, abstracts and poster presentations

K1. eHealth as effective support for family caregivers

DE VUGT Marjolein

Maastricht University, Netherlands

Ehealth interventions to support informal caregivers of people with dementia are a relatively new but promising field. It offers opportunities to increase accessibility and tailoring to individual needs in a cost-effective way. Ehealth interventions may be unguided self-help, or so-called blended care, including guidance of a professional. In this presentation different Ehealth interventions for informal caregivers of people with dementia will be discussed. Attention is paid to early as well as later stages of the dementia process, young as well as late onset dementia, development, effects and implementation of the interventions, and future perspectives for research and clinical practice.

K2. Empowerment and wellbeing among people with dementia

GERRITSEN Debby

Radboud University Medical Centre, Radboud Alzheimer Centre Nijmegen, Netherlands

In the last decades, improving wellbeing and quality of life has become important in research about and care for people with dementia. There is increasing insight into the experiences of people with dementia and into the strategies that they use to maintain a high level of wellbeing, for instance focused on keeping an emotional balance, or on having meaningful social contacts and activities. Recently, remaining engaged and being needed have been found to be highly important for experiencing wellbeing. Yet, as dementia progresses a person with dementia may become more dependent on others to experience wellbeing. However, unfortunately, not enough attention is being paid to focusing on people’s strengths and their need to feel useful in current health care. In long-term care, for instance, the focus has traditionally been on alleviating problems and care home staff have difficulties in connecting with the capabilities of persons with dementia.

There needs to be attention for how both informal and formal carers can contribute optimally to the wellbeing of persons with dementia, so that persons with dementia can live their life as they want to, for as long as possible. In this regard, the concept of empowerment may be helpful. Empowerment is considered a process that supports health and wellbeing and is expected to increase the extent to which people can manage their life and their illnesses. 

However, it is important to specify what empowerment means and includes for people with dementia, and how it can be shaped in the relationship between the individual and people in their environment. Thereto, new research efforts focus on the content and meaning of empowerment and wellbeing in people with dementia and the association between the two.

 

 
 

Last Updated: Tuesday 13 August 2019

 

 
  • Acknowledgements

    The 29th AE Conference in The Hague received funding under an operating grant from the European Union’s Health Programme (2014-2020). Alzheimer Europe and Alzheimer Nederlands gratefully acknowledge the support of all conference sponsors.
  • European Union
  • Roche
 
 

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