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P15. Migration and dementia

Detailed programme and abstracts

P15.1. Co-creation with Turkish migrant carers: towards culture sensitive care

SMITS Carolien, JUKEMA Jan, DURAN Gözde, CUMERT Güler, BAKKER Franka

Background: The migrants that have come to work in western Europe in the last century are currently ageing. They run a much higher risk of dementia than non-migrants (Uysal-Bozkir, 2016).  Migrants, however, make little use of professional care as it does not meet their needs. Most care is offered by relatives. Family caregivers struggle with the combination of informal care of a parent with dementia, work and the care of their own family. In our co-creation project Getting There Together five caregiving daughters collaborate to improve their own situation and the situation of their Turkish migrant parents with dementia. They are supported in this co-creation process by a researcher, a professional from a voluntary organization and undergraduate students (applied gerontology). These students also evaluate the co-creation process and the factors that help or hinder the project.

Project design: This co-creation project started in 2016 and is continuing. It is based on action research and a participatory design. Collaboration and equal contribution are key elements. The carers have (2-) monthly meetings. The first product is a persona that reflects the personal expertise of the carers. It describes the experiences and emotions that accompany their caregiving. This persona is used in the subsequent steps of goal setting and planning. The goal set is the provision of culture sensitive care in the carers’ hometown. Currently the collaboration is sought with professional care organizations to achieve this goal.

Research findings: Co-creation includes the expertise of end-users. Important facilitating factors are: time, flexibility, social capital building (network construction, relationship and emotion, expertise and action), recognition of carers’ role and expertise, and the directive role of the researcher and professional. The persona is the basis for criteria for culture sensitive care. These criteria help the carers in the co-creation steps that are currently made.

P15.2. Breaking the isolation: Turkish migrants with dementia in stationary elderly care


Only a small number of Turkish migrants can be found in stationary elderly care in Austria. The choice of a nursing home is regarded to be a difficult decision for family members, who, on the one hand, start to realize that they are unable to cope with the situation, but, on the other hand, are afraid of gossip and shame within their community. What happens to isolated migrants with dementia in homes for elderly care?

In my presentation I first will speak about the problematic issue of a delayed dementia testing for migrants. Second, I will discuss the case of a Turkish migrant with dementia in a nursing home who is only able to respond in his mother language. The staff of the elderly home cannot provide communication in his mother language and one might think that he is isolated at all. Fortunately, by chance, this is not the case. The isolation is broken by several people and their commitment: His wife, who visits him daily, students who participate in an internship and visit the nursing home once a week, and, finally, another Turkish migrant resident who started to care about him.

P15.3. Thinking about the wellbeing of people living with dementia who are survivors of trauma – the Holocaust as a study case

HERZ Michal Karen

Over the years I have met and worked with many stories of people with different experiences around their personal story and WWII, which came up in the context of care. I chose three different people to present an discuss with members of the Association for dementia studies, University of Worcester and a reflection session linked to Holocaust memorial day. The aim of the paper is to explore some of the difficult topics which can emerges in our field of work.

I shall start by describing the three people, followed by the discussion points which were explored.

The three were different stories – two of child survivors and the third of care workers experiences.

The reflective discussion which followed touched on the following themes

  • How do we cope as individual when presented with our own history and others trauma
  • How can we learn from this for other populations who have experience trauma and are now living with dementia
  • Impact on care staff

P15.4. Prevalence of mild cognitive impairment and dementia in older non-western immigrants in the netherlands: a population-based study


Introduction: In the Netherlands, Turkish, Moroccan and Surinamese immigrants form the largest groups of non-western immigrants. Higher prevalence of mild cognitive impairment (MCI) and dementia has been described for immigrant populations in the United States of America (USA) and the United Kingdom (UK). For the European continent prevalence is unknown. The aim of our study was to determine the prevalence of MCI and dementia in community-dwelling older adults in the largest non-western immigrant groups in the Netherlands.

Methods/Design: Turkish, Moroccan (Arabic or Berber), Surinamese (Creole or Hindustani) or native Dutch participants, aged 55 years and older, were recruited via their general practitioners (GP). Cognition was screened with the Cross-Cultural Dementia screening (CCD), which was designed for and validated in low-educated people from different cultures. Differences in prevalence rates of MCI and dementia between the immigrant groups and the native Dutch group were analyzed.

Results: We included 2254 participants. Mean age was 65.0 years (Standard Deviation (SD), 7.5), and 44.4% were male. Highest MCI prevalence was found among Turks and Arabic Moroccans (both 18.5%) and Surinamese-Hindustani (16.8%), compared to 3.7% among native Dutch. Dementia prevalence was 14.8% in Turks, 12.2% in Arabic Moroccans, 11.3% in Moroccan Berbers and 12.6% in Surinamese-Hindustani compared to 3.5% in native Dutch.

Discussion: MCI and dementia were two to four times more prevalent in most non-western immigrants, compared to the native Dutch. Awareness of this increased prevalence is important for improving current and planning future health facilities.

P15.5. Ethnic minority family members’ experiences and needs when caring for a person with dementia: a scoping review


Background: People with dementia require support from families and friends to live well in the community. Many countries have an aging ethnic minority population. A number of interventions have been implemented over the last decade to support minority family caregivers. However, there is a need to understand the current impact of culture on the experiences and needs of ethnic minority family members caring for a person with dementia.

The aim of this scoping review was to explore the impact of culture on the experiences and needs of ethnic minority family caregivers for a person with dementia.

Methods: A scoping review of current literature was completed: databases searched included: Medline, CINAHL, PsycINFO and PubMed for articles published in English from 1st Jan 2006 to 31st December 2016.

Results: A total of seven studies met the eligibility criteria for inclusion in the review. All explored the experiences of ethnic minority family caregivers, and applied qualitative methodology via interview and focus group data collection. A meta-synthesis from these studies identified three themes: 1) a lack of information and knowledge 2) an emotional response, and 3) the need to adapt and change.

Discussion: Ethnic minority family caregivers described the need for timely information to prevent them ‘navigating without a map’ and experiencing difficulties negotiating services due to a lack of knowledge. Many family caregivers discussed the emotional difficulty of caring including feeling stressed, guilty and frustrated, although an element of learning and the value of caregiving were simultaneously expressed. A supportive element to enable ethnic minority family caregivers to adapt and change was that of acculturation.

Conclusion: There remains a need for the provision of timely information for ethnic minority family caregivers, with the inclusion of resources to support family caregivers emotionally and culturally appropriate and specific to support acculturation.



Last Updated: Monday 23 October 2017


  • Acknowledgements

    The 27th AE Conference in Berlin received funding under an operating grant from the European Union’s Health Programme (2014-2020). Alzheimer Europe and Deutsche Alzheimer Gesellschaft e.V. gratefully acknowledge the support of all conference sponsors.
  • European Union
  • Roche