Basket | Login

 
 
 
 

P2. Dementia strategies

Detailed programme and abstracts

P2. Dementia strategies (Tuesday 1 Nov., 14.00 to 15.30)

P2.1. The Israeli national strategic plan addressing Alzheimer's and other types of dementia – achievements and challenges

LARON Michal, LEMBERGER John, BRODSKY Jenny, BENTUR Netta, BEN-ISRAEL Joshua, RASOOLY Iris

Background: The Israeli National Strategic Plan Addressing Alzheimer's and Other Types of Dementia was developed during 2012-2013. It was a joint effort of group composed of 35 experts from government ministries (Health, Social Affairs and Social Services, National Insurance, and Senior Citizens), health plans, hospitals, non-profit organizations and leading academics. The Center for Research on Aging at the Myers-JDC-Brookdale Institute headed the process, with the support of the Helen Bader Foundation. The Ministry of Health adopted the Plan and established an implementation committee. On October 31st, 2013, the Strategic Plan was announced to the public at a national conference.

The lecture will include:

Presenting the recommendations in the National Plan regarding the issues that the experts identified as central, vis-à-vis issues addressed in similar national plans from other countries.

Reflecting on the process of developing the National Plan - dilemmas, compromises and decisions (such as whether to include budgetary recommendations). 

Describing the structure, achievements and challenges of the implementation committee. We will highlight the launch of a new program to engage the health plans in dementia care by raising awareness and encouraging diagnosis and care of people with dementia by general practitioners and other health professionals in the community.

Relating the way the National Plan engages the professional community in addressing the social, economic, and health needs of our rapidly aging society and especially those of people with dementia and their families.

Facing the future – strategizing the next phase.

Summary: The National Plan continues to generate influence beyond the field of dementia care, and has become a role model for developing national health strategies in other fields such as diabetes, palliative care and so on.

P2.2. Using political advocacy to make dementia a national priority

JOYCE Joanna

“Words are not enough; we need to see action and implementation. We need to see a realisation of our basic human rights. And we need to see political leadership to transform this potential into actual results.”

Helen Rochford-Brennan, Chair of the Irish Dementia Working Group

Helen made this statement at the launch of Ireland’s first National Dementia Strategy in December 2014.The Strategy’s publication represented a pivotal moment for the 48,000 people living with dementia and their 50,000 carers, and followed years of advocacy work by people with dementia, family carers and The Alzheimer Society of Ireland (ASI).

This presentation will highlight ASI’s political advocacy agenda in the run-up to the development of the Strategy and our concentrated work since then to ensure the Strategy is implemented and that there is continued political engagement and support for dementia at a national level.

The presentation will showcase the ASI’s 2016 election campaign ‘Vote to Remember’, which centred on building political support for implementation of the Strategy. The content of this national campaign, including visual examples, will be highlighted, and the impact of the campaign will be discussed.

The presentation will conclude by reflecting on the challenges organisations face in gaining political support for dementia, and by summarising how we can use political advocacy to ensure dementia becomes a national priority.

P2.3. Living well with dementia, the contribution of allied health professions

HUNTER Elaine

Background: As a key commitment in Scotland’s Dementia Strategy (Scottish Government 2013) the Government commissioned Alzheimer Scotland to produce an evidence-based policy document outlining the contributions of allied health professions (AHP’s) to ensuring implementation of the 8 pillar-model (Alzheimer Scotland 2012). This presentation will share the AHP policy document. 

Aims: AHP’s are a distinct group of ten health and social care practitioners. The presentation will describe how the AHP policy in dementia care brings together, for the first time, the AHP contribution to health promotion, self-management, rehabilitation and enablement for people living with dementia and their families.

The evidence informing the AHP policy will be shared, highlighting formal evidence developed through research on AHP-led interventions, current AHP practice, however highlighting the evidence draws heavily on evidence from people living with dementia and their families and what they told us is important to them. 

The presentation will share the content of the policy document, describing a model of allied health professionals practice outlining a vision, priorities and the expected roles of the different AHP groups. Actions to apply the AHP model will be shared and describe how these are underpinned by principles of human rights, person centeredness, collaborative and partnership working.

Conclusion: Allied health professionals have much to offer people to live well with dementia and this AHP policy document aspires to support and drive transformational change to the way allied health professionals practice now and in the future. The policy document invites AHP’s to provide services tailored to people’s individual needs, adjusting their approach appropriately for each person to whom they provide a service, to really make a difference. The presentation will consider the support required to implement the AHP policy and the transferability of Scottish policy to practice for AHP’s in Britain, Europe and internationally.

References: Alzheimer Scotland 2012 Delivering Integrated Dementia Care: The 8 Pillars Model of Community Support

Scottish Government 2013 Scotland’s National Dementia Strategy: 2013-16, enabling and health improvement interventions to the forefront of dementia care

P2.4. How does Austria take care for migrants with dementia?

ALTINTOP Nevin

Vulnerable groups in society often have less chance for participation because their special needs are poorly covered. Health care is strongly challenged with the inclusion of minorities of any kind. A special topic focuses on health care of migrants with dementia where language and communication is a looming problem. In addition, a correct diagnosis of migrants with dementia is often delayed because of misinterpretation, missing knowledge or missing language-based examination. This situation results in inappropriate medical treatment, in social isolation or in a burn-out of informal caregivers.

Now a dementia report and a national dementia strategy 2015 were developed for Austria and it must be asked how migrants with dementia are included. The Austrian dementia report discusses the topic of migrants with dementia in one subchapter only insufficiently: previous local scientific studies as well as positive results with specific health care solutions for migrants in other European countries stay disregarded. The report itself is not free of contradictions: Overload and stress of family caregivers is indeed known, however, the report inexplicably predicts that language-based information and possible programmes of support for migrants with dementia will not be accepted by the target group. Such odd conclusions are not acceptable! The national dementia strategy finally contains generalized recommendations for stakeholders. A strategy, however, demands planning and elaboration of concrete measures for individual stakeholders and must include financial plans and budgeting.

In my talk I will critically review the Autrian dementia report and the national dementia strategy. Selected examples from my field research on elder Turkish migrants in the last five years clearly demonstrate existing problems for migrants with dementia and their urgent demands: the overload of migrant families with care-giving, lack of professional language-based solutions, and system-related barriers that impede mutual aid and solidarity within migrant communities.

P2.5. An investigation into the impact of Scotland’s dementia strategy on the practice of older adult community mental health nurses in a rural area in Scotland

COUPLAND Gillian, WAUGH Anna, BROWN Margaret

Research question:What impact has Scotland’s Dementia Strategy had on the practice of Older Adult Community Mental Health Nurses (OA CMHNs) in a rural area in Scotland?

Background:Both the incidence and prevalence of dementia are increasing rapidly and dementia is now accepted as being a major health and social care issue. In Scotland there are approximately 88 thousand people living with dementia – this figure is expected to have doubled in 25 years time. In response, Scotland launched the Dementia Strategy in 2010. Although the initial Strategy does not appear to have been a ‘top-down’ Strategy, but purports to have had an ethic of involvement with key stakeholders throughout, information pertaining to the impact of the Strategy on the practice of front-line staff would contribute to the overall evaluation, and inform those involved in the implementation of both the initial Strategy and its successor - particularly as no literature currently exists in relation to this aspect of the Strategy.

Study aim:To learn of the Strategy’s impact on the practice of OA CMHNs working in a rural area in Scotland.

Methods:Qualitative Description (QD) has been chosen for this study, appropriate as straight description of the phenomenon under study is desired. The researcher and individual semi-structured interviews (open-ended questions) are the data collection tools.

Sample:A purposive sample (given the demographics of this rural area in Scotland) of 7 OA CMHNs from this rural area was utilised following the distribution of Participant Information Sheets and Consent forms.

Data analysis:A framework approach to thematic analysis was taken: audio-taping, written transcripts, and member checking safeguarding validity and enhancing accuracy and rigour.

Findings:Findings from this study describe both positive and negative impacts of the Strategy on the practice of OA CMHNS in this area in Scotland, significantly on confidence, competence and Quality of Working Life; findings may be of interest to other OA CMHNs working in Scotland, managers, and policy makers, and may influence the implementation processes of future strategies.

P2.6. The home based memory rehabilitation programme; towards a national roll out and developing evidence base for occupational therapy in Scotland

CHAMBERS, Wendy, MCKEAN Alison,

Background: Scotland’s National Dementia Strategy (2013-16) outlines commitments to provision of timely diagnosis, access to non medical, early interventions and post-diagnostic support for people with dementia.   It is recognized that Allied Health Professionals (AHP National Delivery Plan, 2012) have the expertise to support people with dementia, their families and carers to live well with the condition.  A national scoping exercise was undertaken to enquire about the AHP contribution in this area

Amongst the numerous interventions reported by occupational therapists across Scotland, the Home Based Memory Rehabilitation (HBMR) Programme was highlighted.  HBMR is an evidence based occupational therapy (OT) early intervention for dementia, initially developed and researched in Belfast (McGrath and Passmore, 2007).  It enables people with dementia to learn new skills to self manage their everyday memory problems, promoting independence, strengthening capabilities and enabling people to live well with dementia.  HBMR has been implemented, evaluated embedded into Dumfries and Galloway Mental Health OT service between 2012-15, demonstrating positive value as an early intervention in dementia.

Method: A recommendation from the national scoping work was the need to build upon the evidence base for ‘best interventions’ in Dementia and consistent access to these.  Following national consultation, HBMR was selected and a programme is now in place to roll this out across Scotland’s occupational therapy services.  Working in partnership with NHS Dumfries & Galloway, Alzheimer Scotland, College of Occupational Therapy and Queen Margaret University.

Aims:

  • Contribution to a developing evidence base for occupational therapy interventions in dementia, promoting efficient and sustainable services
  • Ensure greater consistency of researched person centered care across Scotland
  • Promote new learning of self management skills at early stages dementia to maximize and   promote resilience, independence, supporting capabilities
  • Monitor and consider the impact and value of rolling out evidence based practice models nationally

 

 
 

Last Updated: Tuesday 10 January 2017

 

 
  • Acknowledgements

    The 26th AE Conference in Copenhagen received funding under an operating grant from the European Union’s Health Programme (2014-2020). Alzheimer Europe and Alzheimerforeningen gratefully acknowledge the support of all conference sponsors.
  • European Union
  • Roche
 
 

Options