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P17: Minority groups

Detailed programme, abstracts and presentations

P17: Minority groups

P17.1. Alzheimer’s society’s information programme for south Asian families

CAMPBELL Zoe, SMITH Kathryn

The number of people from minority ethnic groups living with dementia in the UK is rising steeply, yet awareness levels and diagnosis rates remain worryingly low. It is estimated there are almost 25,000 people with dementia from BAME (Black, Asian and minority ethnic) communities in England and Wales with this number is expected to grow to 172,000 by 2051. Unfortunately the services available tend not to reflect this and are mainly delivered in English with activities bearing little relevance to cultural elements such as language, faith or family structure.

Alzheimer’s Society (UK) has been developing a number of tailored dementia services for BAME communities which aim to break down some of the barriers which can stop them from accessing services. The Information Programme for South Asian Families (IPSAF) has been funded by Lloyds Banking Group and comprises of a series four of face-to-face sessions and an educational DVD for participants to take home and share with family members. The sessions are run by Alzheimer’s Society staff or volunteers, who undergo Cultural Competence training, alongside local faith and community representatives. The service is the first of its kind and has been co-designed with South Asian people and evaluated by the Bradford Dementia Group.

By March 2015, 20 programmes will have taken place in 18 locations across England.  The project has been highly successful and will be available to all commissioners across England from April this year. To find out more about IPSAF visit www.alzheimers.org.uk/IPSAF.

P17.3. Women and dementia: a marginalised majority

RIDDICK Katy, SAVITCH Nada

Dementia is an issue that disproportionally affects women. However the facts about women and dementia and the experiences of women affected by dementia have been largely unrecognized by researchers, policy makers and practitioners.

We will present findings from two complementary projects which together address the issues around women and dementia in the UK.

Alzheimer’s Research UK has collated the facts and figures about women and dementia.  In the UK, dementia is the leading cause of death among all women. Not only are women more likely to have Alzheimer’s disease or another form of dementia, they are also more likely to be caregivers of those with dementia. Between 60 and 70% of all unpaid dementia carers are women. They are 2.5 times more likely than their male counterparts to provide intensive, on-duty care for someone 24-hours a day. Of those women, half found their caring responsibilities to be physically stressful, while even more, 62%, found the experience emotionally stressful.

The authors will discuss these and other findings from Alzheimer’s Research UK in the context of the real experiences of women collected as part of the Joseph Rowntree Foundation funded project – The Personal is Political: Women’s Experiences of Dementia. This project, run jointly by Innovations in Dementia and the Social Policy Research Unit at the University of York, worked in collaboration with women who have dementia, women who are unpaid caregivers for people with dementia and women who make up the majority of the dementia care workforce. Their words and photographs have been collated into a booklet that encapsulates the experiences of women and dementia.

Together these resources will spark a debate in Europe about women and dementia: the effect on their health, the services offered to support them, the assumptions made by policy makers and practitioners. The time to act is now.

P17.4. Cognitive assessment in cross-cultural situations –Specific case of elderly from minority groups in France

OULAHAL Rachid, DENOUX Patrick

Our research is part of the cross-cultural psychology field and aims at proposing guidance with respect to the evaluation and identification of cognitive impairments for elderly from minority groups and who may be illiterate or may not speak the language of the country they are living in. For such persons, due to the lack of appropriate evaluation tools and professionals, who can address the person in the appropriate language, the dementia diagnosis, such as for the Alzheimer disease, will be proposed at a late stage, when the impact on the person’s life becomes significant.

Thus, our research considers the way to take into account the specificity of these elderly as part of a cognitive assessment. Through our theoretical development, we first address the issue of dementia and cognitive impairment for elderly and we then evaluate the specificity of those who are illiterate or do not speak the language of the country they are living in. For such persons, the cognitive evaluation through standard evaluation tools may be biased because of language and cultural differences.

Therefore, our research considers the use of tests as part of a psychological assessment in cross-cultural situations. The research is based on 2 cognitive evaluation tools that we compare: one is the standard MMSE (Mini-Mental State Examination) used for elderly and the other one is a specific test developed for illiterate elderly.

Our analysis is based on the data obtained from 4 patients of a health center located in a major city in France. This analysis highlights biases linked to cultural differences for both proposed tests. Our general hypothesis, that evaluating elderly in cross-cultural situations requires an adaptation that goes beyond the only translation of an existing test, is partially verified.

P17.5. Spotlight series: integrating innovation

HALL Jennifer

Spotlight is an exciting new series of workshops born out of Alzheimer Scotland’s new learning & development framework for our staff & volunteers. By ‘shining a spotlight’ on a selection of topics which will inspire staff, stretch their thinking and integrate innovation through shared learning. At the heart of Spotlight is co-production in action, by working alongside people with dementia and their families, our staff, other providers and external agencies to showcase examples of great practice and innovation and tackle some hot topics that will raise awareness and develop our workforce. This year we will deliver 4 Spotlight events across the country on the following themes:

  • Whose Shoes: Harnessing creativity and helping people to engage with personalisation
  • Spirituality: Exploring the significance and comfort people find in this, in particular in the later stages of dementia
  • A Place to Sit: A closer look at a successful art project in Glasgow which had countless benefits for those involved living with dementia. We aim to share the learning from this project and transfer this model of support in a more rural setting
  • LGBT Community & Dementia:  Raising awareness and tackling the stigma and twin fear faced by members from this minority group. With a real focus on the emerging evidence base and implications for practice 

We want to build on the Glasgow Declaration of Alzheimer Europe 2014.

Through Spotlight we aim to keep Scotland at the forefront of innovation in dementia care and learning.

Spotlight takes the best of innovation from across health & social care to upskill Alzheimer Scotland staff to genuinely empower people with dementia our staff support in their homes and their communities.

 

 
 

Last Updated: Monday 28 September 2015

 

 
  • Acknowledgements

    The 25th AE Conference in Ljubljana received funding under an operating grant from the European Union’s Health Programme (2014-2020). Alzheimer Europe and Spominčica gratefully acknowledge the support of all conference sponsors.
  • European Union
  • Roche
  • SCA Global Hygiene
 
 

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