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SS1. An invitation to communicate differently on dementia - “I’m still the same person”

Detailed Programme, abstracts and presentations

SS1. An invitation to communicate differently on dementia - “I’m still the same person” (Friday, 5 October, 13.00–14.00, Europa 1)

Marie Jo Guisset, Julia Wirth,Patrick de Rynckand EFID grantees

Since 2010, four foundations have joined forces through the EFID initiative (European Foundations’ Initiative on Dementia) to organise a Europe-wide call for projects that seeks to promote a community and grass roots approach best summarised by the statement:  ‘From living well with dementia… to living well in the community in a friendly environment’.

The 10 projects supported by EFID following the first call shared common features, most notably that they all aimed at improving the perception of dementia in society and sought to stimulate solidarity at the local level.

The starting point of this session is the observation that Alzheimer’s disease is aggravated for the person with the disease by the negative regard in which the illness is held by society. The image currently conveyed regarding Alzheimer’s disease does much harm to persons with dementia and their carers. It also has an impact on the quality of life of people with dementia. The EFID partners have developed a leaflet on how people with dementia should be presented in public information campaigns about this illness. This leaflet proposes that a shift of mindsets is needed to ensure that society stays connected with people with dementia.

During this symposium, the formulated communication advice will be discussed and illustrated with concrete examples drawn from the EFID grantees’ experiences. Ten EFID grantees will come to the symposium having selected in advance an image that portrays their work. They will reflect on a few messages embedded within the image that illustrate the values attached to their work.

Together with the author and journalist Patrick De Rynck, the participants will reflect about the frames used in the EFID grantees’ messages and other frames that could be used for a more balanced image on this illness. The use of frames is indeed encouraged to generating a more balanced image of Alzheimer’s disease. Through this practical exercise that will provide realistic and useful advice to organisations in the elaboration of their messaging, EFID wishes to encourage everyone to communicate differently about the disease and to do so, EFID provides new perspectives and proposes a shift of mindset to stay connected with all citizens with dementia.

This special symposium is sponsored by NEF, the Network of European Foundations.

This special symposium is sponsored by NEF, the Network of European Foundations.

 

 
 

Last Updated: Thursday 13 September 2012

 

 
 

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