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Special symposia

Detailed programme, abstracts and presentations

SS1. MOPEAD: Citizen’s engagement in early patient engagement for Alzheimer’s disease: Call to action

BOADA Mercè1, RODRIGO SALAS Adrián2, RODRÍGUEZ GÓMEZ Octavio1, CIUDIN Andreea3, DUMAS Annette4

1Fundació ACE, Barcelona, Spain, 2GMV Soluciones, Madrid, Spain, 3Hospital Universitari Vall d´Hebron, Barcelona, Spain, 4ASDM Consulting, Brussels, Belgium

MOPEAD, Models of Patient Engagement for Alzheimer’s Disease, is an IMI-funded project that is looking at innovative patient engagement strategies to detect early cases of Alzheimer’s disease (AD) in the community.

This symposium will shed light on these strategies that are already revealing interesting trends. The participants will also discuss what still needs to be done to improve the citizens’ engagement, in particular how to improve Primary Care Professionals’ engagement.

The project partners testing the project four patient engagement strategies will share their experience and participants from the ground in Spain, Slovenia, the Netherlands, Sweden will add their insight.

The discussion will be followed by a call to action to the full AD community to stimulate patient engagement for the early diagnosis of AD.

SS2. I have dementia and life goes on

Members of the European Working Group of People with Dementia

In this symposium all members of the European Working Group of People with Dementia will make a brief statement about what is important to them and how they have been living with the condition since diagnosis. Petri Lampinen, a member of the EWGPWD, will give a speech about his experience of receiving a diagnosis of fronto-temporal dementia in Finland, the impact it had on him and his family and his approach to keeping positive and living life to the fullest. Chris Roberts, Vice Chair of the EWGPWD, will support Petri by translating each section of his speech into English. There will be an opportunity for members of the audience to ask questions to the whole group at the end of the session. 

SS3. Dementia in ethnic minority groups

GOVE Dianne1, NIELSEN Thomas Rune2, PLEJERT Charlotta3, RAUF Mohammed Akhlak4, HERZ Michal5, LAHAV Debi6

1Alzheimer Europe, Luxembourg, Luxembourg, 2Denmark, 3Sweden, 4United Kingdom, 5Israel, 6Israel

The provision of intercultural care and support is of utmost importance in today’s society in the light of the ageing population and the number of older people from minority ethnic groups who have or will develop dementia in the coming years. There have, for example, been estimates of a seven-fold increase in dementia prevalence amongst people from minority ethnic groups in the next 40 years compared to a two-fold increase amongst the general population. People from minority ethnic groups have a right to receive good quality, appropriate and timely dementia care and support. This does not always happen. All too often, care and various services are provided within a framework which reflects the cultural traditions, norms and awareness of majority ethnic groups.

In this special symposium, members of Alzheimer Europe’s expert group on the development of intercultural care and support for people with dementia from minority ethnic groups will discuss a broad range of issues related to prevalence, diagnosis, assessment, care and support.  Speakers will present some of the latest research in these areas and highlight some of the key issues that still need to be addressed within Europe.  The presentations will provide a brief overview of ongoing work, carried out in collaboration with other members of Alzheimer Europe’s working group and with input from external contributors, which will ultimately result in the publication of a report and recommendations, as well as a database of existing intercultural practices and initiatives, for policy makers and health and social care service providers across Europe. This work has been made possible through funding from the European Commission and the Robert Bosch Stiftung.

SS4. Biogen: Getting health systems ready for medical innovation: A new era for Alzheimer’s

LIU Jodi1, KRIPP Monika2, ROHRA Helga3, RITCHIE Craig4

1RAND Corporation, Santa Monica, California, United States, 2Alzheimer Austria, Austria, 3European Working Group of People with Dementia, Germany, 4Centre for Clinical Brain Sciences, University of Edinburgh, Edinburgh, United Kingdom

New innovations are a crucial part of addressing the huge and rising unmet need in managing Alzheimer’s disease. This Biogen special symposium will discuss results from a new RAND study on EU health system preparedness (six countries: France, Germany, Italy, Spain, Sweden and the United Kingdom) and feature speakers who will discuss health infrastructure challenges from various perspectives. This panel session moderated by Jodi Liu, Associate Policy Researcher and co-author of the new RAND report Assessing the Preparedness of the Health Care System Infrastructure in Six European Countries for an Alzheimer’s Treatment, will ask the question of whether countries are ready for a new innovation in the area of Alzheimer’s Disease. The session will hear from Jakub Hlavka, co-author of the new RAND report presenting the results of the study, followed by a panel discussion hearing from a range of patient representatives and a medical expert, as well as giving delegates an opportunity to challenge the expert panel through a question and answer session.

SS5. Roche: The carer’s voice in national dementia plans

DUSSEY-CAVASSINI Tania1, LYNCH Chris2

1Daughter and carer, Lausanne, Switzerland, 2Alzheimer Disease International, London, United Kingdom

In May 2017, in response to what has become a public health priority around the world, the 194 countries members of the World Health Assembly adopted unanimously the Global Action Plan on Dementia.  All 194 countries committed to adopting national dementia plans by 2025. Approximately 30 countries have adopted a dementia plan and about 30 countries have plans currently in development.   Are the national plans considering the perspectives and needs of people that care for people with Alzheimer’s Disease and dementia?   Is the carer voice being heard?   Please join Tania Dussey-Cavassini, daughter, carer and Former Vice-Director General of the Swiss Federal Office of Public Health as well as Chris Lynch, Deputy CEO of Alzheimer Disease International to find out more. 

 

 
 

Last Updated: Friday 14 September 2018

 

 
  • Acknowledgements

    The 28th AE Conference in Barcelona received funding under an operating grant from the European Union’s Health Programme (2014-2020). Alzheimer Europe, CEAFA and Fundación Alzheimer España gratefully acknowledge the support of all conference sponsors.
  • European Union
  • Roche
 
 

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