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Helga Rohra (Member)


Helga Rohra was born in 1953. She trained as an interpreter and speaks six languages.

She received a diagnosis of Lewy body dementia in 2008 and has actively advocated for the rights of people with dementia ever since. In 2010, her book “Stepping out of the shadow” was published in Germany and Romania. She has since made many public appearances to raise awareness of dementia.

She was the first Chairperson of the EWGPWD, and served in this position for two consecutive terms, 2012-2014 and 2014-2016.

Helga was nominated by the German Alzheimer Association DAlzG in 2012, 2014 and 2016 and by the  Societatea Alzheimer Romania in 2018.



Last Updated: Friday 09 November 2018