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European Working Group of People with Dementia - EWGPWD

Who we are

The  European Working Group of People with Dementia - EWGPWD - was launched by Alzheimer Europe and its member associations in early 2012. The group is composed entirely of people with dementia who are nominated by their national Alzheimer associations. They work to ensure that the activities, projects and meetings of Alzheimer Europe duly reflect the priorities and views of people with dementia. The group operates independently, with members electing their own Board and setting an agenda of activities. The Chairperson is also an ex-officio member on the Board of Alzheimer Europe with full voting rights.

The members of the EWGPWD actively participate in Alzheimer Europe's annual conferences and give presentations at the European Parliament. In addition, they contribute to consultations for different European projects in which Alzheimer Europe is involved and to other areas of the organisation's work.

Members of the group have also contributed to research conducted by external organisations, on topics such as outcome measures that are meaningful to people with dementia and their carers, social health and people with dementia as peer-researchers. They attend international events and give media interviews, both in their countries and internationally.

EWGPWD members and supporters/care partners 2018-2020 at the 28th Alzheimer Europe Conference, Barcelona, October 2018.

 

 
 

Last Updated: Friday 09 November 2018

 

 
 

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