Basket | Login | Register

 
 
 
 

2019 Work Plan

Our work

2019 Work Plan

Adopted by the Annual General Meeting on 29 October 2018.

Alzheimer Europe Core activities

Objective 1: Providing a voice to people with dementia and their carers

In 2019, Alzheimer Europe will

  • organise four meetings of the European Working Group of People with Dementia (EWGPWD) with one meeting coinciding with AE’s Annual Conference and one with a lunch debate in the European Parliament
  • develop recommendation on dementia-friendly initiatives taking into account the recommendations of the 2nd EU Joint Action on Dementia,
  • involve the EWGPWD in the organisation of the Annual Conference by including representatives in the Programme Committee to help with the selection of abstracts, by inviting them to deliver one keynote presentation and by asking them to organise a special symposium on the experience of living with dementia
  • involve the EWGPWD in various EU projects where AE is asked to provide the views of people with dementia
  • involve the Chairperson of the European Working Group of People with Dementia as a full voting member at AE Board meetings
  • ensure people with dementia and carers are represented in all AE projects and working groups

Objective 2: Making dementia a European priority

In 2019, Alzheimer Europe will

  • Carry out an overview of epidemiological studies in European countries and pr9ovide an updated report on the numbers of people with dementia currently living in the European Union/Europe with estimates of future trends of these numbers and publish its findings in the 2019 Yearbook
  • coordinate with the Romanian and Finnish EU Presidencies
  • continue its work with the European Alzheimer’s Alliance and involve members of the European Alzheimer’s Alliance in the organisation of two lunch debates in the European Parliament
  • use the 2019 European Parliament elections to campaign for a greater recognition of dementia at a European level by asking candidates to support the Barcelona Declaration and newly elected MEPs to join the reformed European Alzheimer’s Alliance
  • continue working with the 2nd Joint Action on Dementia coordinated by the Scottish Government and contribute to the four priority actions of timely diagnosis and post-diagnostic support, crisis management and care coordination, quality of residential care and dementia-friendly communities
  • coordinate and support the European group of government experts on dementia
  • play an active role on the Patients’ and Consumers’ Working Party of the European Medicines Agency
  • organise two face-to-face meetings of the public affairs committee for an exchange on EU and national policy developments and campaigns
  • play an active role as a member of the European Patients’ Forum and European Disability Forum and support the development of positions in response to EU policy developments
  • collaborate with Alzheimer’s Disease International on its campaign to make dementia a priority at WHO, OECD, G7 and G20 level

Objective 3: Promoting a rights based approach to dementia

In 2019, Alzheimer Europe will

  • Translate and publish its report on the situation of people with dementia, carers and professional carers from ethnic minorities into French and German
  • Carry out a literature review on issues affecting the participation of people with dementia in research, develop recommendations promoting a rights-based approach to dementia research and publish a report with the findings
  • Continue its collaboration with the European Disability Forum on the development of a European disability strategy and the implementation of the UN Convention on the Rights of Persons with Disabilities (UNCRPD)
  • continue working with the Council of Europe and contribute to ongoing discussions on legal capacity, guardianship systems and bioethics

Objective 4: Supporting dementia research

In 2019, Alzheimer Europe will

  • continue with the development of its European Dementia Observatory by proactively identifying relevant research developments and communicating them to its member organisations and wider community
  • carry out an inventory of national treatment and management guidelines and develop a comparative database
  • organise the 29th AE Conference in The Hague, Netherlands from 23 to 25 October under the motto “Making valuable connections” in collaboration with Alzheimer Nederland
  • aim to attract 800 participants from 40 countries to the conference
  • improve the collaboration with the INTERDEM network and the European Alzheimer’s Disease Consortium for the organisation of the conference and the selection of topics to be addressed
  • evaluate participants’ satisfaction with the conference programme and practical organisation
  • continue to partner with Newsweaver for the sending of its e-mail newsletter and aim to expand the list of people receiving the newsletter to 8,000
  • continue the development of its website and aim to attract 750,000 unique visitors to its website
  • ensure social media are a full part of the organisation’s communication activities and aim to have 12,500 Twitter followers and Facebook likes by the end of the year

Objective 5: Strengthening the European dementia movement

In 2019, Alzheimer Europe will

  • Carry out a mapping exercise of its national organisations to understand their membership, staffing, funding, activities and services,
  • update its member organisations on relevant EU policy developments and involve them in the development of policy positions through AE’s public affairs working group
  • organise its Alzheimer’s Association Academy in December  and develop a programme based on the subjects and issues identified by its members
  • organise quarterly meetings of the AE Board to monitor the association’s financial situation and the implementation of its work plan.

Other activities and projects

EU Project participation

In 2019, Alzheimer Europe will

  • continue to engage with the Innovative Medicines Initiative, the Joint Programme Neurodegenerative Diseases Research (JPND), Horizon2020 and the European Innovation Partnership on Active and Healthy Ageing to identify additional opportunities to participate in EU projects,
  • continue its active involvement in a number of EU funded projects by representing the views of people with dementia and their carers in the research consortium, by contributing to the ethical discussions and by supporting the communication and dissemination activities towards a non-scientific audience:
    • AETIONOMY (development of an aetiology-based taxonomy of dementias)
    • AMYPAD (Amyloid imaging to prevent Alzheimer’s disease)
    • EPAD (European Prevention of Alzheimer’s Dementia)
    • MOPEAD (Models of Patient engagement in Alzheimer’s disease)
    • PACE (effectiveness of palliative care for elderly people in long term care facilities in Europe)
    • PARADIGM (Patients Active in Research and Dialogues for an Improved Generation of Medicines)
    • PRODEMOS (Prevention of Dementia using Mobile phone Applications)
    • ROADMAP (Real world outcomes across the AD spectrum for better care)
  • Continue its collaboration with the following EU projects
    • INDUCT
    • MIND
    • SYDAD
  • Start its active involvement with
    • AD Detect-Prevent (Alzheimer's Disease (AD) Detect & Prevent - Presymptomatic AD detection and prevention)
    • NEURONET
    • RADAR-AD

Corporate Affairs

In 2019, Alzheimer Europe will

  • develop a number of activities funded thanks to the support of its corporate sponsors and partners,
  • continue including phase II and phase III clinical trials being conducted in Europe on the AE website
  • carry out an update of the European Dementia Monitor
  • organise three company round tables bringing together the AE Board, representatives of corporate sponsors and AE member organisations to discuss the progress of the organisation’s different corporate projects,
  • publish three editions of the Dementia in Europe magazine (February, June and October),
  • organise two lunch debates in the European Parliament dedicated to an update on EU research activities in dementia (February) and the presentation of the European Dementia Monitor findings (December).

Annex 1: Meetings organised by Alzheimer Europe in 2019

Date

Meeting

Venue

25-26 February

Alzheimer Europe Board

Brussels, Belgium

26 February

European Parliament Lunch Debate “Dementia as a European research priority”

Brussels, Belgium

26 February

Company Round Table

Brussels, Belgium

27 February

Public Affairs Meeting

Brussels, Belgium

18-20 March

European Working Group of People with Dementia

Brussels, Belgium

24-25 June

Alzheimer Europe Board

Brussels, Belgium

25-26 June

Government Expert Group on Dementia

Brussels, Belgium

26 June

Company Round Table

Brussels, Belgium

27 June

Public Affairs Meeting

Brussels, Belgium

26-28 June

European Working Group of People with Dementia

Brussels, Belgium

22 October

European Working Group of People with Dementia

The Hague, Netherlands

23 October

Alzheimer Europe Board

The Hague, Netherlands

23 October

Annual General Meeting

The Hague, Netherlands

23-25 October

Alzheimer Europe Conference

The Hague, Netherlands

9-10 December

Alzheimer Europe Board

Brussels, Belgium

10 December

European Parliament Lunch Debate “Benchmarking national dementia policies”

Brussels, Belgium

10 December

Company Round Table

Brussels, Belgium

10-11 December

Alzheimer’s Association Academy

Brussels, Belgium

10-11 December

Government Expert Group on Dementia

Brussels, Belgium

10-12 December

European Working Group of People with Dementia

Brussels, Belgium

 

 
 

Last Updated: Wednesday 14 November 2018

 

 
 

Options