- Alzheimer Europe
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- 2012 Work Plan
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- 2011: Legislation relating to restrictions of freedom
- 2011: The ethics of dementia research
- 2010: The ethical issues linked to the use of assistive technology in dementia care
- 2010: Legislation relating to legal capacity and proxy decision making
- 2009: Legislation relating to healthcare and decision making in dementia
- 2006-2008: EuroCoDe
- 2006: Dementia Carers' Survey
- 2004-2005: Advance directives
- 2004-2005: Support after diagnosis
- 2002-2003: Rare forms of dementia
- 2002-2003: Optimisation of the diagnosis of Alzheimer's disease and related disorders (OPDAL)
- 2000-2001: Equality in home care provision
- 1998-2000: Intranet
- 1997-2000: Lawnet
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- 1997: Rural areas
- 1997: Early onset dementia
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- Who we are
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- Our work
- Dementia
- A-Z of dementias
- Alzheimer's disease
- Who is affected by Alzheimer's disease?
- Is Alzheimer's disease hereditary?
- Is there a test that can predict Alzheimer's disease?
- How is Alzheimer's disease diagnosed?
- Is there any treatment for Alzheimer's disease
- Main characteristics of Alzheimer's disease
- What kind of research has been carried out?
- Other forms of dementia
- Neuro-Degenerative Diseases
- Familial Alzheimer's disease
- Dementia with Lewy Bodies (DLB)
- Dementia in Parkinson's disease (PDD)
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- Huntington's Disease (HD)
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- Neuro-Degenerative Diseases
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- After diagnosis - What next?
- Caring for someone with dementia
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- Contact your national Alzheimer Association
- Policy in Practice
- Paris Declaration
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- December 2011: "Public perceptions of Alzheimer’s disease and the value of diagnosis"
- June 2011: "The Alzheimer Cooperative Valuation in Europe"
- March 2011: "European activities on long-term care: What implications for people with dementia and their carers?"
- December 2010: "The Joint Programming of research in Neurodegenerative Diseases (JPND). What progress so far?"
- June 2010: “Alzheimer’s disease and dementia as a national priority: contrasting approaches by France and the UK”
- September 2009: "European Action on dementia"
- March 2009 "Towards a European Action Plan on Alzheimer's disease"
- December 2008 "The rising cost of dementia"
- September 2008: Launch of Written Declaration
- September 2008: "Current and future treatments for AD"
- MEPs speak out on dementia
- Jan Andersson (Sweden)
- Elena Oana Antonescu (Romania)
- John Bowis (United Kingdom)
- Frieda Brepoels (Belgium)
- Michael Cashman (United Kingdom)
- Nessa Childers (Ireland)
- Ole Christensen (Denmark)
- Brian Crowley (Ireland)
- Karl-Heinz Florenz (Germany)
- Françoise Grossetête (France)
- Maria Eleni Koppa (Greece)
- Katalin Levai (Hungary)
- Astrid Lulling (Luxembourg)
- Jan Tadeusz Masiel (Poland)
- Marisa Matias (Portugal)
- Linda McAvan (United Kingdom)
- Claude Moraes (United Kingdom)
- Elisabeth Morin-Chartier (France)
- Marie Panayotopoulos-Cassiotou (Greece)
- Antonyia Parvanova (Bulgaria)
- Sirpa Pietikäinen (Finland)
- Frédérique Ries (Belgium)
- Dagmar Roth-Behrendt (Germany)
- Keith Taylor (UK)
- Patrizia Toia (Italy)
- Kathy Sinnott (Ireland)
- Corien Wortmann-Kool (Netherlands)
- Marina Yannakoudakis (UK)
- Anna Záborská (Slovakia)
- Dushana Zdravkova (Bulgaria)
- Past supporters
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- EU Action on Dementia
- National Dementia Plans
- Country comparisons
- Restrictions of freedom
- Austria
- Belgium
- Bulgaria
- Croatia
- Cyprus
- Czech Republic
- Denmark
- Estonia
- Finland
- France
- Germany
- Greece
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- Iceland
- Ireland
- Italy
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- Lithuania
- Luxembourg
- Malta
- Netherlands
- Norway
- Poland
- Portugal
- Romania
- Slovakia
- Slovenia
- Sweden
- Switzerland
- Turkey
- United Kingdom - England
- United Kingdom - Scotland
- Acknowledgements
- Legal capacity and proxy decision making
- Austria
- Belgium
- Bulgaria
- Czech Republic
- Denmark
- Estonia
- Finland
- France
- Germany
- Greece
- Hungary
- Iceland
- Ireland
- Italy
- Latvia
- Lithuania
- Luxembourg
- Malta
- Netherlands
- Norway
- Poland
- Portugal
- Romania
- Slovenia
- Spain
- Sweden
- Switzerland
- Turkey
- United Kingdom - England
- United Kingdom - Scotland
- Acknowledgements
- Healthcare and decision-making in dementia
- Austria
- Belgium
- Bulgaria
- Cyprus
- Czech Republic
- Denmark
- Estonia
- Finland
- France
- Germany
- Greece
- Hungary
- Iceland
- Ireland
- Italy
- Latvia
- Lithuania
- Luxembourg
- Malta
- Netherlands
- Norway
- Poland
- Portugal
- Slovakia
- Slovenia
- Spain
- Sweden
- Switzerland
- Turkey
- United Kingdom - England
- United Kingdom - Scotland
- Acknowledgements
- Advance directives
- The legal status of advance directives in Austria
- The legal status of advance directives in Belgium
- The legal status of advance directives in Denmark
- The legal status of advance directives in Estonia
- The legal status of advance directives in Finland
- The legal status of advance directives in France
- The legal status of advance directives in Georgia
- The legal status of advance directives in Germany
- The legal status of advance directives in Hungary
- The legal status of advance directives in Ireland
- The legal status of advance directives in Italy
- The legal status of advance directives in Luxembourg
- The legal status of advance directives in the Netherlands
- The legal status of advance directives in Norway
- The legal status of advance directives in Spain
- The legal status of advance directives in Switzerland
- The legal status of advance directives in England and Wales
- The legal status of advance directives in Scotland
- Acknowledgements
- Home care
- Reimbursement of anti-dementia drugs
- Social support systems
- Austria
- Belgium
- Bulgaria
- Cyprus
- Czech Republic
- Denmark
- Estonia
- Finland
- France
- Germany
- Greece
- Hungary
- Iceland
- Ireland
- Italy
- Latvia
- Lithuania
- Luxembourg
- Malta
- Netherlands
- Norway
- Poland
- Portugal
- Romania
- Slovakia
- Slovenia
- Spain
- Sweden
- Switzerland
- Turkey
- United Kingdom - England
- United Kingdom - Scotland
- Restrictions of freedom
- Our opinion on ...
- Advance directives
- Anti-dementia drugs
- Participation of people with dementia in clinical trials
- Policy on collaboration with other organisations
- Disclosure of the diagnosis to people with dementia and carers
- Genetic testing
- The Hague Convention for the International Protection of Adults
- Participation of people with dementia in research
- Stem Cell Research
- Ethics
- Dementia Ethics Network
- Definitions and approaches
- Ethical issues in practice
- Advance directives and personhood
- End-of-Life care for people with dementia
- The ethical issues linked to the use of assistive technology in dementia care
- Ethics of dementia research
- The dementia ethics research project
- Background, definitions and scope
- Involving people with dementia
- Informed consent to dementia research
- Protecting the wellbeing
- Risk, benefit, burden and paternalism
- Clinical trials
- Epidemiological research
- Genetic research
- Research into end-of-fe care
- The donation of brain and other tissue
- Publication and dissemination of research
- Glossary
- Annexes
- References
- Research
- Value of knowing
- European Collaboration on Dementia
- Cost of dementia
- The health economical context (Welfare theory)
- Health economic aspects of dementia
- The impact of informal care
- Cost of illness and burden of dementia
- Regional/National cost of illness estimates
- Prognosis to 2030
- Sensitivity analysis
- Other European cost of illness estimates
- Regional Patterns: The societal costs of dementia in Sweden
- Regional patterns: The economic environment of Alzheimer's disease in France
- Regional patterns: Economic environment of Alzheimer’s disease in Mediterranean countries
- Regional patterns: Socio-economic impact of dementia and resourse utilisation in Hungary
- Conclusions and policy implications
- Acknowledgements
- Diagnosis and treatment of dementia
- Prevalence of dementia
- Prevention of dementia
- Psychosocial interventions
- Social Support Systems
- Cost of dementia
- PharmaCog
- Comparative studies
- Understanding dementia research
- Conferences
- News
- Publications
- Ethics
Ethics
Ethical questions pose challenges in the every day lives of family carers and professional caregivers when caring for people with dementia. Ethical principles such as dignity, solidarity, autonomy or respect all intervene in varying degrees in the different stages of the disease and different answers to these ethical questions may be provided depending on religious or cultural beliefs. Similarly, there may be differences in ethical appreciations between different nationalities or different professions.
Latest News
Last Updated: Monday 06 June 2011
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Acknowledgements
Alzheimer Europe gratefully acknowledges the support of the German Ministry of Health for the implementation of the Dementia Ethics Network. -
