Personal experiences of living with dementia
Personal accounts of living with dementia can be an invaluable support to people with dementia and give insight to all who work in this area. The Dementia in Europe magazine runs a regular feature about peoples' experiences from different countries around Europe.
In this section we have contributions from and/or summaries of literature about peoples' experiences of living with dementia.
To read news articles written by people living with dementia, please also see our news section called Living with dementia.
- March: "Living with dementia in Finland – my experience" by EWGPWD member Markku Parkkisenniemi.
- March: “Awareness Activities as a member of the EWGPWD”- by Idalina Aguiar member of the EWGPWD
- February: EWGPWD member Nina Baláčková writes about her trip to Asia Pacific Alzheimers
- February: “Getting involved in Cultural Activities even when we have Dementia” - by Idalina Aguiar member of the EWGPWD
- January: EWGPWD member Helga Rohra writes about speaking at Alzheimer Society of Finland conference
- January: EWGPWD member Carol Hargreaves tries to stay positive
- December: New EWGPWD member Idalina Aguiar introduces herself and tells us about her recent trip to 26AEC in Copenhagen
- November: New EWGPWD member Amela Hajrić introduces herself and tells us what’s happening in Bosnia and Herzegovina
- November: New EWGPWD member Carol Hargreaves introduces herself and writes about her diagnosis
- November: 26AEC Copenhagen - a travel diary by Idalina Aguiar, EWGPWD member from Portugal and her daughter Nélida
- October: Helen Rochford Brennan, EWGPWD Vice-Chair, gives moving acceptance speech on behalf of group for Mano Amiga award
- September:Agnes Houston, EWGPWD Vice-Chair, co-hosts Scottish Conference Gov.Connect.
- September: Helga Rohra, EWGPWD Chairperson, writes about being patron of “Move for Dementia” event.
- August: Hilary Doxford, EWGPWD Vice-Chair, writes “A new (un)diagnostic tool?”
- August: James McKillop publishes booklet on driving with dementia
- June: Nina Baláčková, member of the EWGPWD, tells us about "The Potato Soup"
- June: Agnes Houston, EWGPWD Vice-Chair discusses dementia and sensory challenges on Australian TV
- May: Nina Baláčková, member of the EWGPWD, reports on her experience of ADI’s 31st conference.
- April: Karin Gustafsson, member of the EWGPWD, writes about her Alzheimer's diagnosis.
- March: Helen Rochford Brennan, EWGPWD Vice-Chair says “Terrorism failed to prevent the EWGPWD from completing its work”.
- March: Agnes Houston, EWGPWD Vice-Chair, writes about her experience in Brussels for the AE newsletter.
- February: Nina Baláčková, member of the EWGPWD, writes about the Prague Memory Festival.
- December: Helga Rohra, Chair of the EWGPWD writes about a German initiative to combat loneliness at Christmas.
- November: Hilary Doxford, EWGPWD Vice-Chair writes “A month in the life of a volunteer”
- October: Helen Rochford Brennan, EWGPWD Vice-Chair writes about why the group thinks our Glasgow Declaration is so important.
- October: Agnes Houston, EWGPWD Vice-Chair, writes about her "Dementia and Sensory Challenges project" for the AE newsletter.
- September: The "Letters to Remember" project by The Alzheimer Society of Ireland marked World Alzheimer's Awareness Month.
- September: Alv Orheim, EWGPWD member, writes about the 25th Alzheimer Europe conference for the AE newsletter.
- June: Mojca Hladnik writes about her husband Matjaž Rižnarič being diagnosed with dementia at age 42, just after the birth of their first child.
- March: EWGPWD member Raoul Gröngvist and his wife and caregiver Milja Ahola share their experiences with movement recall and musical therapy.
- June: Jean-Pierre Frognet, Vice-chair of the EWGPWD, living with dementia in Belgium, writes about his “trial period” in a day care centre.
- April: Philip C. writes about the challenges of caring for his wife Carmen as she developed dementia.
- February: Ramona Amariei describes four years of caring for her mother, who lives with Alzheimer's disease.
- June: Paola describes her life since she was diagnosed with dementia.
- March: Helga Rohra reminds us that life is beautiful, even with dementia.
- September: James McKillop talks about the difficulties of driving after developing dementia.
- April: A carer from Spain describes his experience of caring for his wife who had dementia.
- December: Hasse and Birgitta Hansson describe their experience of living with dementia in Sweden.
- May: Stewart Cooper describes his life with Alzheimer's disease in his adopted country of Luxembourg.
- December: Roger Newman, co-founder of the Lesbian, Gay, Bisexual and Transgender (LGBT) Support Group of the Alzheimer's Society, talks about what can be done to ensure inclusion and diversity.
Last Updated: Monday 03 April 2017