The ethical issues linked to the use of assistive technology in dementia care
Alzheimer Europe (2006),The use of advance directives by people with dementia, Alzheimer Europe
Alzheimer’s Society (2008), Assistive technology, Accessed online on 22 October 2009 at: www.alzheimers.org.uk
Alzheimer's Society. (2008).Dementia: out of the shadows.Alzheimer's Society.
Alperovitch, A et al. (2009), Ethical issues raised by a possible influenza pandemic, National Consultative Ethics Committee for Health and Life Sciences. Internet article accessed online on 18/11/2009: http://www.ccne-ethique.fr/docs/Avis%20106_anglais.pdf
American Geriatrics Society (2001), Guideline for the prevention of falls in older persons,Journal of the American Geriatrics Society, 49, pp. 664-672
American Speech-Language-Hearing Association (2010),Ethical decision-making flowchart, Accessed online on 20 October 2010 at:
Anderman, G and Rogers, M (2003),Translation today: trends and perspectives, Multilingual Matters Ltd
Andrew, A (2006), The ethics of using dolls and soft toys in dementia care,Nursing and Residential Care, 8, 9, pp. 419-421
Astell, AA (2006), Technology and personhood in dementia care.Quality in Ageing – Policy, practice and research, 7 (1), pp.15-25
Astell, A et al. (2009), Developing technology to meet psychosocial needs.Journal of Dementia Care, 17 (1), pp.36-39
Audit Commission (2004),Assistive technology: independence and wellbeing 4, Audit Commission
Bail, KD (2003), Electronic tagging of people with dementia. Devices may be preferable to locked doors.British Medical Journal, 326 (7383), p. 281
Baldwin, C., & Capstick, A. (2007).Tom Kitwood on dementia: a reader and critical commentary.Open University Press.
Baldwin, C 82008), Toward a person-centred ethic in dementia care: doing right or being good? In Downs, M and Bowers, B (Eds.),Excellence in Dementia Care: research into practice, Open University Press
Balestreri, L, Grossberg, A and Grossberg, GT (2000), Behavioral and psychological symptoms of dementia as a risk factor for nursing home placement,International Psychogeriatrics, 12, Suppl. 1, pp. 59-62
Banerjee, S, Willis, R, Graham, N and Gurland, BJ (2010), The Stroud/ADI Dementia Quality Framework: a cross-national population-level framework for assessing the quality of life impacts of services and policies for people with dementia and their family carers,International Journal of Geriatric Psychiatry, 25, 249-257
Barich, J. (2009). A few thoughts on Martin Buber's I and Thou (Internet article accessed online on 15 March 2009 at: http://www.rigeib.com/barich/papers/martin-buber.html )
Beauchamp, T (2008), The principle of beneficence in applied ethics, The Stanford Encyclopedia of Philosophy. Internet article accessed online on 18/11/2009 at:
Beauchamp, TL and Childress, JF (2001), Principles of biomedical ethics. 3 rd Edition, Oxford: Oxford University Press
Beech, R and Roberts D (2008),Assistive technology and older people: research briefing 28, Social Care Institute for Excellence (SCIE)
Bharucha, AJ, London, AJ, Barnard, D, Wactlar, H, Dew, MA and Reynolds III, CF (2006), Ethical considerations in the conduct of electronic surveillance research.Journal of Law, Medicine and Ethics, 34, pp.611-619
Bjørneby, S, Topo, P and Holthe, T (1999),Technology, ethics and dementia: a guidebook on how to apply technology in dementia care, Norwegian Centre for Dementia Research , Oslo
Blackman, T, Mitchell, L, Burton, E et al. (2003), The accessibility of public spaces for people with dementia: a new priority for the “open city”,Disability & Society, 18, 3, pp.357-371
Blanchard, F. (2006), We have to fight against the idea that Alzheimer’s disease is death of the spirit. InLes Cahiers de la Fondation Médéric Alzheimer, Supporting and caring for people with dementia throughout end of life, Number 2, June 2006
Borges, I. et al. (2008),Older people and information and communication technologies – an ethical approach, AGE (European Older People’s Platform)
Bostrom, N (2008), Dignity and enhancement, Institute for Emerging Ethics and Technologies (accessed online on 3 March 2010 at: http://ieet.org/archive/bostrom-dignity.pdf )
Brickfield, CF (1984), Attitudes and perceptions of older peole toward technology. In PK Robinson and JE Birren (Eds.),Aging and technolgical advances(pp.31-38). New York: Plenum
Brody, E., Kleberman, M., Lawton, M., & Silverman, H. (1971). Excess disabilities of mentally impaired aged: Impact of individualized treatment.The Gerontologist; 11 (2), pp. 124-133.
Buber, M. (1970).I and Thou.New York: Touchstone.
Buchanan, A. (1988). Advance directives and the personal identity problem.Philosophy and Public Affairs, 17, pp. 277-302.
Burton, LC, German, P, Rovner, B Brant, LJ et al. (1992), Mental illness and the use of restraint in nursing homes,The Gerontologist, 32, 2, pp. 164-170
Cahill A, Begley E, Faulkner JP and Hagen I (2007), “It gives me a sense of independence” – findings from Ireland on the use and usefulness of assistive technology for people with dementia.Technology and Disability, 19, pp. 133-142
Cahill, S, Macijauskiene, J, Nygård, A-M, Faulkner, J-P and Hagen, I (2007), Technology in dementia care,Technology and Disability, 19, 55-60
Cahill, S, (2003), Technologies may be enabling,British Medical Journal, 326 (7383), p.281
Cameron, C (2007),Models of disability, unpublished article
Capezuti, E, Maislin, G, Strumpf, N and Evans, L (2002), Side rail use and bed-related fall outcomes among nursing home residents,Journal of the American Geriatrics Society, 50, pp. 90-96
Capezuti, E, Wagner, LM, Brush, BL Boltz, M, Renz, S and Talerico, KA (2007), Consequences of an intervention to reduce restrictive side rail use in nursing homes,Journal of the American Geriatrics Society, 55, 3, pp. 334-341
Caplan, A. (2010), Debating human dignity (book review),The Lancet, 375, 19
Carlson, EM (2001), Videotaping to protect nursing facility residents: a legal analysis.Journal of American Medical Directors Association, 2, pp. 41-44
Casas, R, Marco, A, Falco, JL, Artigas, JI and Abascal, J (2006), Ethically aware design of a location system for people with dementia. In K. Miesenberger et al. (eds.):International Conference ICCHP 2006(pp.777-784). LNCS 4061, Linz, Austria
Care Information Scotland (2010), Website: http://www.careinfoscotland.co.uk/how-do-i-get-care/national-care-standards.aspx (for information about Scotland’s national care standards)
Carvel, J. (2005), Babies given electronic tags to beat abductors, The Guardian(online version accessed on 26 February 2010 at: http://www.guardian.co.uk/uk/2005/jun/16/health.children/print )
Cash M (2003), Assistive technology and people with dementia.Reviews in Clinical Gerontology, 13, pp.313-319
Cash, M (2004),At home with AT: an evaluation of the practical and ethical implications of assistive technology and devices to support people with dementia and their carers, Accessed online on 23 October 2009 at:
Castellot Lou, R, Giuliano, A and Mulvenna, MD (2010), State of the art in electronic assistive technologies for people with dementia. InSupporting people with dementia using pervasive health technologies, Ed. Mulvenna, MD and Nugent, CD, Springer Publications
Cassidy, J (1994), Electronic tag plan “attacks civil rights”,Nursing Times, 90, 3, p.5
Caygill, J (1990), Dignity in dementia,New Zealand Nursing Journal, 83, pp. 18-20 (ask Iva for a copy)
Cesta, A, Cortellessa, G, Guiliani MV, Pecora, F, Scopelliti, M and Tiberio, L (2007), Psychological implications of domestic assistive technology for the elderly,PsychNology Journal, 5, 3, pp. 229-252
Chan, DK (2001), Bioethics: its origins, methods and importance for medicine today, Ethics and Professionalism, 5-6. Internet article accessed online on 1 September 2010 at: http://www.sma.org.sg/sma_news/3302/ethics.pdf
Cooley, D. R. (2007). A Kantian moral duty for the soon-to-be demented to commit suicide.The American Journal of Bioethics; 7, 6, pp. 37-44.
Corsi, JR. (2008), Hospitals tagging babies with electronic chips,WorldNetDaily(accessed online on 26 February 2010 at: http://www.wnd.com/news/article .asp?ARTICLE_ID=59690)
Counsel and Care (1993),People not parcels – a dicsussion document to explore the issues surrounding the use of electronic tagging on older people in residential care and nursing homes, Counsel and Care, Twyman House, London
Crisp, R. (1998), Ethics. In E. Craig (Ed.), Routledge Encyclopedia of Philosophy . London: Routledge. Retrieved October 11, 2010, from http://www.rep.routledge.com/article/L132
Cummings, J. L. (2007). Definitions and diagnostic criteria. In S. Gauthier,Clinical diagnosis and management of Alzheimer's disease: third edition(pp. 3-14). Informa Healthcare.
Davies, R, Nugent, CD and Donnelly, M (2010), Prototyping cognitive prosthetics for people with dementia. InSupporting people with dementia using pervasive health technologies, Ed. Mulvenna, MD and Nugent, CD, Springer Publications
Dawkins, VH (1998), Restraints and the elderly with mental illness: ethical issues and moral reasoning,Journal of Psychosocial Nursing, 36, 10, pp.22-27
Department of Health (2001),National Framework Service for Older People, London, NHS Executive
Dillon, RS (2007), Respect, The Stanford Encyclopedia of Philosophy. Internet article accessed online on 18/11/2009 at: http://plato.stanford.edu/entries/respect/
Dobranici, L (2010), Information provided in the context of consultation for Lawnet report on guardianship measures (Alzheimer Europe)
Duff, P and Dolphin, C (2006), Cost-Benefit analysis of assistive technology to support independence for people with dementia - Part 1: Development of a methodological approach to the ENABLE cost-benefit analysis,Technology and Disability, 18, pp. 1-6
Duff, P and Dolphin, C (2006), Cost-Benefit analysis of assistive technology to support independence for people with dementia - Part 2: Results from employing the ENABLE cost-benefit model in practice,Technology and Disability, 18, pp. 1-12
Dunham, C. C., & Cannon, J. H. (2008). "They're still in control enough to be in control": Paradox of power in dementia caregiving.Journal of Aging Studies, 22, pp. 45-53.
EASPD (European Association of Service Providers for People with Disabilities). (2006, June 9th). Graz Declaration.
Eastern Ontario Catholic Curriculum Cooperative (2005), Dignity of the human person. Internet article accessed online on 3 March 2010 at: http://www.eoccc.org/csfcs/themes/humandignity.html
Ebbesen, M and Pedersen, BD (2008), The principle of respect for autonomy – concordant with the experience of oncology physicians and molecular biologists in their daily work?BMC Medical Ethics, 9,5, 1-12
ENABLE (2004),Enabling technology for people with dementia: Cross-national analysis report,ENABLE
Essén, A (2998), The two facets of electronic care surveillance: an exploration of the views of older people who live with monitoring devices.Social Science & Medicine, 67, pp. 128-136
Ezeiza, A, Garay, N et al. (2008),Ethical issues on the design of assistive technology for people with mental disabilities, International conference on ethics and human values in engineering, Barcelona
Faife D (2007), The role of assistive technology in achieving dignity, equality and respect.Working with older people, 11, 2, pp. 20-23
Feil-Seifer, D, Skinner, K and Matarić, MJ (2007), Benchmarks for evaluating socially assistive robotics, Interaction Studies, 8,3, pp. 423-439
Fisk, M (1997), Telemedicine, new technologies and care management,International Journal of Geriatric Psychiatry, 12, pp. 1057-1059
Föbker, S and Grotz, R (2003), Leisure-related mobility of elderly people: ways to sustainability, Paper presented at the 43 rd congress of the European Regional Science Association (ERSA) in Jyväskylä, Finland, 27-30 August 2003 (abstract and paper)
Foster, K and Jaeger, J (2008), Ethical implications of implantable radiofrequency identification tags (RFID) in humans.American Journal of Bioethics, 8, 8, pp. 44-48
Frankena, WK (1998), Ethics (2 nd ed.),Englewood Cliffs:.NJ, Prentice Hall Inc.
Gaines, A. D., & Whitehouse, P. J. (2006). Building a mystery: Alzheimer's disease, mild cognitive impairment, and beyond.Philosophy, psychiatry and psychology, 13,1, pp. 61-74.
Gallinagh, R, Nevin, R, McAleese, L, Campbell, L (2001), Perceptions of older people who have experienced physical restraint,British Journal of Nursing, 10, pp. 852-859
Gastmans, C and Milisen, K (2006), Use of physical restraint in nursing homes: clinical-ethical considerations,Journal of Medical Ethics, 32, pp. 148-152
German Federal Ministry of Family Affairs, Senior Citizens, Family and Youth (2007),Charter of Rights for people in need of long-term care and assistance, German Federal Ministry of Family Affairs, Senior Citizens, Family and Youth, Accessed online on 29 September 2010 at:
Gitlin, LN, Luborsky, M and Schemm, RL (1998), Emerging concerns of older stroke patients about assistive device use,Gerontologist, 38, pp. 169-180
Godwin, B. (2008),Response to consultation of Nuffield Council on Bioethics, University of Bath
Godwin, B (2010),A twenty-first century straitjacket? Does assistive technology have a role in dementia care?Unpublished report
Goffman, E. (1963).Stigma: notes on the management of spoiled identity.Penguin Books
Grobstein, L (1981),From chance to purpose, Addison Wesley, London
Gubrium, J. F. (1986).Oldtimers and Alzheimer's: the descriptive organisation of senility.Connecticut: Jai Press Inc. 597-605
Hagen, I and Cahill, S (2009),Design and outcome measures in trials of assistive technologies for people with dementia: methodological and ethical challenges, AAATE Conference in Florence, August/September 2009
Hagen I, Holthe T, Gilliard J, Topo P, Cahill S, Begley E et al. (2004), Development of a protocol for the assessment of assistive aids for people with dementia,Dementia, 3, pp.281-296
Hagen, I, Cahill, S, Begley, E, Macijauskiene, J, Gilliard, Jones, K, Yopo, P, Sarikalle, K, Holthe T and Duff, P(2005) Assessment of usefulness of assistive technologies for people with dementiainAssistive Technology – from Virtuality to Reality. (Alain Pruski and Harry Knops,eds) IOS Press, pp. 348 – 352.
Häggblom Kronlöf, G and Sonn, U (1999), Elderly women’s way of relating to assistive devices.Technology and Disability, 10, pp. 161-168
Harris, PB (2006), The experience of living alone with early stage Alzheimer’s disease. What are the person’s concerns?Alzheimer’s Care Quarterly, 7, pp.84-94
Hawthorn, D (2003),How universal is good design for older users, CU 2003 November 10-11, Canada
Heeg, S, Heusel, C, von Lützau-Hohlbein, H, Mollenkopf, H et al. (2005),Erhaltung von Lebensqualität bei Demenz durch technische Unterstützung: Bericht der Werkstatt “Technologiegestütztes Wohnen”
“HENT” (2001), Ethical guidelines and ethical thinking, HENT (Holistic Education Network of Tasmania) – accessed online on 19 August 2010 at http://www.hent.org
Hertogh, C (2010), Information/opinion provided in the framework of Alzheimer’s Europe’s Dementia Ethics Network project on the ethical use of assistive technology by/for people with dementia
Ho, G, Wheatley, D and Scialfa, CT (2005), Age differences in trust and reliance of a medication management system.Interfacing with Computers, 17, 690-710
Hockey, J., & James, A. (1993).Growing up and growing old: ageing and dependency in the life course.Sage
Holmerová, I, Jurašková, B, Kalvach, Z, Rohanová, E, Rokosová, M and Vaňková, H (2007), Dignity and palliative care in dementia, The Journal of Nutrition,Health and Aging, 11, 6, pp.489-494
Homer, A. C., Honavar, M., Lantos, P. L., Hastie, I. R., Kollett, J. M., & Millard, P. H. (1988). Diagnosing dementia. Do we get it right?British Medical Journal,297 , pp. 894-896
Horton, R (2004), Rediscovering human dignity,The Lancet, 364, pp. 1081-1085
Hughes, R (2008), Using surveillance and tracking technology in care homes,Nursing and Residential Care, 10, no.7
Hughes, R and Campbell, G (2003), The electronic tagging and tracking debate,Nursing and Residential Care, 5, no.4
Hughes, R. (2008), Electronic surveillance and tagging people with dementia,International Journal of Palliative Nursing, 14, 2, pp.74-76
Hulko, W. (2009). From "not a big deal" to "hellish": Experiences of older people with dementia.Journal of Aging Studies, p. (in print).
Jacelon, CS, Connely, TW, Brown, R, Proulx, K and Vo T (2004), A concept analysis of dignity for older adults,Journal of Advanced Nursing, 48, 1, pp.76-83 (ask Iva for copy)
Jacobson, N. (2007), Dignity and health: a review,Social Science and Medicine, 64, pp.292-302
Jacques, A and Jackson, G (2000), Understanding dementia, 3 rd edition, Churchill Livingstone, Edinburgh
Jenkins, D and Price, B. (1996), Dementia and personhood: a focus for care?Journal of Advanced Nursing, 24, pp. 84-90
Jones, E. E., Farina, A., Hastorf, A. H., Markus, H., Miller, D. T., & Scott, R. A. (1984).Social stigma: the psychology of marked relationships.WH Freeman and Company.
Josephson Institute (2010), Making ethical decisions: the six pillars of character, Josephson Institute ( http://josephsoninstiute.org/Med/MED-2sixpillars.html )
Kant, I (1797),The metaphysics of morals, [translated and edited by Mary Gregor, Cambridge, Cambridge University Press (1996)]
Kapronczay, S (2010), Information/opinion provided in the framework of Alzheimer’s Europe’s Dementia Ethics Network project on the ethical use of assistive technology by/for people with dementia
Katzman, R., Terry, R. D., & Bick, K. L. (1978).Alzheimer's disease: senile dementia and related disorders.New York : Raven Press
Kemshall, H (2000), Conflicting knowledges on risk: the case of risk knowledge in the probation service, Health, Risk and Society, 2, 2, pp. 143-158
Kitwood, T. (1993). Towards the reconstruction of an organic mental disorder. In A. Radley,Worlds of Illness.London: Routledge.
Kirsi T, Hervonen A and Jylhä M (2004), Always one step behind: Husband’s narratives about taking care of their demented wives,Health: An interdisciplinary Journal for the Social Study of Health, Illness and Medicine, 8, pp.159-181
Kubitschke, L, Gareis, K, Lull, F, Müller, S, et al. (2009),ICT & Ageing: Users, markets and technologies: compilation report on ethical issues, unpublished report
Kuhse, H. (1999). Some reflections on the problem of advance directives, personhood and personal identity.Kennedy Institute of Ethics Journal, 9, 4, pp. 65-81.
Kwok, T, Mok, F, Chien, WT and Tam, E (2006), Does access to bed-chair pressure sensors reduce physical restraint use in the rehabilitative care setting?Journal of Clinical Nursing, 15, pp. 581-587
Landau, R, Werner, S, Auslander, GK, Shoval, N and Heinik, J (2009), Attitudes of family and professional care-givers towards the use of GPS for tracking patients with dementia: an exploratory study,British Journal of Social Work, 39, pp. 670-692
Landau et al. (2010), Families and professional caregivers’ views of using advanced technology to track people with dementia,Qualitative Health Research(March)
Lawrence, RM (2007), Dementia. A personal legacy beyond words,Mental Health, Religion & Culture, 19, 6, 553-562
Levinas, E (1961),Totality and Infinity, Pittsburgh: Duquesne University Press
Lilja, N, Bergh, A, Johansson, L and Nygard, L (2003), Attitudes towards rehabilitation needs and support from assisitve technology and the social environement among elderly people with disability,Occupational Therapy International, 10, 1, pp. 75-93
Link, B. G., & Phelan, J. C. (2006). Stigma and its public health implications.The Lancet, 367, pp. 528-529
Living made easy (2010), Ethical issues with assistive technology. Accessed online on 7 May 2010 at: http://www.livingmadeeasy.org.uk/scenario.php?csid=43
Luborsky, MR (1993), Sociocultural factors shaping technology usage. Fulfiling the promise.Technology and Disability, 2, 1, pp. 71-78
Lupton, D (1999),Risk, London, Routledge
Lupton, D (2005), Risk as moral danger. The social and political functions of risk discourse in public health. In P. Conrad (ed),The Sociology of Health and Illness: Critical Perspectives(New York: Worth Publishers), pp. 422-431
Lyman, K. (1989). Bringing the social back in: a critque of the biomedicalisation of dementia.Gerontologist, 29, pp. 5 Macquarrie, C. R. (2005). Experience in early stage Alzheimer's disease: understanding the paradox of acceptance and denial.Aging & Mental Health, 9, 5, pp. 430-441.
Mace, R (1985), Universal design: barrier free environments for everyone.Designers West, 33, 1, pp. 147-152
Mace, RL (1998), Universal design in housing,Assistive Technology, 10, 1, pp. 21-28
Macijauskiene, J, Topo, P, Holthe, T, Cahill S. and Begley, E (2006). Enabling Technologies for Persons with Dementia: Experience from the ENABLE Project.InAlzheimer’s Disease New Advances (K. Iqbal, B. Winblad and J. Avila,eds.) International proceedings, Medimond S.r.l. Italy, pp. 655 – 659.
Magnusson, L and Hansen, EJ (2003), Ethical issues arising from a research, technology and development project to support frail older people and their family carers at home,Health and Social Care in the Community, 11, 5, pp.431-439
Mahajan, A. P., Sayles, J. N., Patel, V. A., Remien, R. H., & Sawires, S. R. (2008). Stigma in the HIV/AIDS epidemic: a review of the literature and recommendations for the way forward.AIDS: Vol 22, suppl 2, pp. 67-79.
Maki-Petäjä, A (2010), Information provided in the context of consultation for Lawnet report on guardianship measures (Alzheimer Europe)
Margot-Cattin, I and Nygård, L (2006), Access technology and dementia care: influences on residents’ everyday lives in a secure unit,Scandinavian Journal of Occupational Therapy, 13, pp.113-124
Marmot, M (2004), Dignity and equality, The Lancet, 364, 1019-1021
Marr, J (1989), Electronic tagging,Nursing Standard, 4, 9, p.54
Marshall, M (1999), Technology to help people with dementia remain in their own homes,State of the Art for Practice in Dementia, Fall 1999, pp. 85-87
Marshall, M (2000), (ed.),ASTRID, a guide to using technology within dementia care, Hawker Publications, London , p.13
Marshall, M (1995), Technology is the shape of the future,Journal of Dementia CareMay/June, pp.12 – 14
Martin, S, Bengtsson, JE and Dröes, R-M (2010), Assistive technologies and issues relating to privacy, ethics and security. InSupporting people with dementia using pervasive health technologies, Ed. Mulvenna, MD and Nugent, CD, Springer Publications
Martin S, Nugent C, Wallace J, Kernohan G, McCreight B and Mulvenna M (2007), Using context awareness within the “Smart home” environment to support social care for adults with dementia.Technology and Disability, 19, 143-152
Marzanski, M (2000), Would you like to know what’s wrong with you? On telling the truth to patients with dementia.Journal of Medical Ethics, 26, pp. 108-113
Martin, S, Cunningham, C and Nugent, C (2007), Ethical considerations for integrating technology into community-based service models for adults with dementia,Alzheimer’s Care Today, 8, 3, 251-258
Matthews, E. (2006). Dementia and the identity of the person. In J. C. Hughes, S. J. Louw, & S. R. Post,Dementia: mind, meaning and the person(pp. 163-177). Oxford University Press.
May, A, Ross, T and Osman, Z (2005), the design of next generation in-vehicle navigation systems for the older driver,Interacting with Computers, 17, pp. 643-659
McReynolds, P (2002), Nussbaum’s capabilities approach: a pragmatist critique, The Journal of Speculative Philosophy, 16, pp.142-150
McShane, R, Gedling, K, Kenward, B., Hope, T and Jacoby, R (1998), The feasibility of electronic tracking devices in dementia: a telephone survey and case series.
McShane, R, Hope, T and Wilkinson, J (1994), Tracking patients who wander: Ethics and technology,Lancet, 343, Issue 8909, p. 1274
McShane, R and Skelt, L (2009), GPS tracking for people with dementia, Working with Older People, 13, 3, pp.34-37
Mental Welfare Commission for Scotland (undated),Safe to wander? Principles and guidance on good practice in caring for residents with dementia and related disorders where consideration is being given to the use of wandering technologies in care homes and hospitals,MWCS
Mental Welfare Commission for Scotland (2006),Rights, risks and limits to freedom, Mental Welfare Commission for Scotland (http://www.mwcscot.org.uk)
Mihailidis A, Fernie GR and Cleghorn WL (2000), The development of a computerized cueing device to help people with dementia to be more independent.Technology and Disability, 13, pp.23-40
Miskelly, F (2004), A novel system of electronic tagging in patients with dementia,Age and Ageing, 33, 3, pp.304-306
Molin G, Pettersson C, Jonsson O and Keijer U (2007), Living at home with acquired cognitive impairment – can assistive technology help?Technology and Disability, 19, 91-101
Monk, A. and Howard, S (1988), The rich picture: a tool for reasoning about work context,Interactions, March/April, pp. 21-30
Moody, J. (2003). Dementia and personhood: implications for advance directives.Nursing Older People; 15, 4, pp. 18-21.
Moore, TF and Hollett, J (2003), Giving voice to persons living with dementia. The reseracher’s opportunities and challenges.Nursing Science Quarterly, 16, 2, pp.163-167
Morgan, C (2003), The role of alert monitors in assistive technology,Nursing and Residential Care, 5, 9, pp. 442-444
Morris, J (1996),Pride against prejudice, London, Women’s Press
Mulvenna, MD and Nugent, CD (Eds.) (2010),Supporting people with dementia using pervasive health technologies, Springer Publications
Murphy SL, Gretebeck KA and Alexander NB (2007), The bath environment, the bathing task, and the older adult: A review and future directions for bathing disability research.Disability and Rehabilitation, 29 (14), pp.1067-1075
Myser, C. (2007). Person-al journeys: reflections on personhood and dementia based on ethnographic research and family experience.American Journal of Bioethics; 7 (6), pp. 55-59.
National Institute of Advanced Industrial Science and Technology (NIAST) (2010), Eebsite of the producers of Paro, http://paro.jp/english/model01.html
Nerney, T. (undated), Challenging incompetence the meaning of self-determination, (Internet article accessed on 4 March 2010 at: http://ruralinstitute.umt.edu/transition/Handouts/ChallengingIncompetence.Nerney.pdf )
NewsMax (2001), Lawmakers looking to allow “granny cams”, NewsMax.com (accessed online on 27 May 2010 at: http://archive.newsmax.com /archives/articles/2001/3/26/55959.shtml)
Niemeijer, A and Hertogh, C (2008), Implantable tags: don’t close the door for Aunt Millie!The American Journal of Bioethics, 8, 8, pp. 50-52
Niemeijer, A (2010), Information/opinion provided in the framework of Alzheimer’s Europe’s Dementia Ethics Network project on the ethical use of assistive technology by/for people with dementia
Niemeijer, AR, Frederiks, BJM, Riphagen, II, Legamaate, J, Eefsting, JA and Hertogh, CMPM (2010), Ethical and practical concerns of surveillance technologies in residential care for people with dementia or intellectual disabilities: an overview of the literature.International Psychogeriatrics, volume?, pp.1-14
Niemeijer, AR and Hertogh, CMPM. (2009), ‘Domotica in de intramurale zorg voor mensen met dementie’. In: Wel Thuis! Een verkenning van de grenzen bij zorg op afstand. Utrecht: Provincie Utrecht
Nordenfelt, L (2002), The varieties of dignity,Health Care Analysis, 12, pp.69-81
Nussbaum, M (2001), The enduring significance of John Rawls,The Chronicle Review, July edition
Nussbaum, M (2006),Frontiers of Justice, Cambridge: Harvard University Press
Nygård, L and Starkhammar, S (2007), The use of everyday technology by people with dementia living alone: mapping out the difficulties.Aging & Mental Health, 11 (2), pp.144-155
O’Neill, DJ (2003), Tagging should be reserved for babies convicted criminals and animals,British Medical Journal, 326 (7383), p.281
Open University (2006), Models of disability: social model, The Open University, Article accessed on line on 1 September 2010 at:
Open University (undated), T552: Systems thinking and practice: diagramming, Accessed online on 20 October 2010 at: http://systems.open.ac.uk/materials/T552/
Oppenheimer, C (1991), Ethics and the psychiatry of old age. In Jacoby, R and Oppenheimer, C (Eds.),Psychiatry in the elderly, Oxford University Press
Orpwood R (2001), Designing support equipment for the Gloucester Smart House.Dementia Care 2000 Conference Proceedings, Hawker Publications, London
Orpwood R, Sixsmith A, Torrington J, Chadd J, Gibson G and Chalfont G (2007), Designing technology to support quality of life of people with dementia.Technology and Disability, 19, pp.103-112
Parette, P. and Scherer, M (2004), Assistive technology use and stigma.Education and Training in Developmental Disabilities, 39, 3, pp.217-226
Parfit, D. (1985).Reasons and Persons.Oxford University Press, New York.
Penhale B (2001), Using electronic aids to assist people with dementia.Nursing & Residential Care, 3 (12), pp.586-589
Perry, J, Beyer, S and Holm, S (2009), Assistive technology, telecare and people with intellectual disabilities: ethical considerations,Journal of Medical Ethics, 35, pp.82-86
Petrini, C and Gainotti, S (2008), A personalist approach to public-health ethics,Bulletin of the World Health Organisation, 86, 8, pp. 624-629
Phillips, VL and Diwan, S (2003), The incremental effect of dementia-related problem behaviours on the time to nursing home placement in poor, frail, demented older people,Journal of the American Geriatrics Society, 51, 2, pp. 188-193
Plastow NA (2006), Is big brother watching you? Responding to tagging and tracking in dementia care.British Journal of Occupational Therapy, 69 (11), pp.525-27
Pollitt PA, Anderson I and O’Connor DW (1991), For better for worse: The experience of caring for an elderly dementing spouse,Ageing and Society, 11, pp.443-469
Post, S. G. (2006). Respectare: morale respect for the lives of the deeply forgetful. In J. C. Hughes, S. J. Louw, & S. R. Sabat,Dementia: mind, meaning and the person(pp. 223-234). Oxford University Press.
Pountney, D (2009), Telecare and telehealth: enabling independent living,Nursing and Residential Care, 11, 3, pp.148-151
Price, C. (2007), Monitoring people with dementia – controlling or liberating.Quality in Ageing – Policy, practice and research, 8 (3), pp.41-44
Rasquin SMC, Willlems C, de Vlieger S, Geers RPJ and Soede M (2007), The use of technical devices to support outdoor mobility of dementia patients.Technology and Disability,19, pp.113-120
Rendtorff, J and Kemp, P (2000), Basic ethical principles in European bioethics and biolaw. InAutonomy, Dignity, Integrity and Vulnerability, Volume I, Denmark: Centre for Ethics and Law (2000)
Riikonen, M, Mäkelä, K and Perälä, S (2010), Safety and monitoring technologies for the homes of people with dementia.Gerontechnology, 9, 1
Robinson L, Hutchings D, Corner L, Finch T, Hughes J, Brittain K and Bond J (2007), Balancing rights and risks: conflicting perspectives in the management of wandering in dementia.Health, Risk & Society, 9 (4), pp.389-406
Rössler, B (2005), The value of privacy. Cambridge, MA: Cambridge University Press
Royal Commission on Long Term Care (1999),With respect to old age: long term care – rights and responsibilities, London: The Stationery Office
Royal College of Nursing (2004), Restraint revisited – rights, risk and responsibility. Guidance for nursing staff.
Sabat, S. R. (2001).The Experience of Alzheimer's Disease: Life Through a Tangled Veil.Oxford and Malden, MA: Blackwell.
Sacks, J (2002),The dignity of difference, London, Continuum
Sävenstedt, S, Brulin, C and Sandman, PO (2003), Family members’ narrated experiences of communicating via video-phone with patients with dementia staying at a nursing home,Journal of Telemedicine and Telecare, 9, 216-220
Sävenstedt, S, Sandman, PO and Zingmark, K (2006), The duality in using information and communication technology in elder care.Journal of Advanced Nursing, 56, pp. 17-25
Scherer, MJ and Coombs, FK (undated), Ethical issues in the evaluation and selection of assistive technology, accessed on line on 28 October 2009 at: www.gatfl.org/Portals/gatfl/publications/ethical.pdf
Sävenstedt, S, Meiland, F, Dröes, R-M and Moelaert, F (2010), Evaluation of cognitive prosthetics InSupporting people with dementia using pervasive health technologies, Ed. Mulvenna, MD and Nugent, CD, Springer Publications
Schotsmans, P (1999), Personalism in medical ethics,Ethical Perspectives, 6, 1, pp. 10-20
Seman, D (2007), Defining dignity: a means to creative interventions,Alzheimer’s Care Today, July- September, pp.212-230
Shinoda-Tagawa, T, Leonard, R, Pontikas, J, McDonough, JE, Allen, D and Dreyer, PI (2004), Resident-to-resident violent incidents in nursing homes,Journal of the American Medical Association, 291, 591-598
Sidenvall, B, Fjellstrom, C and Ek, A (1994), The meal situation in geriatric care – intentions and experiences.Journal of Advanced Nursing, 20, 613-621 – check bibl.
Sifford, KS and Bharucha, A (2010), Benefits and challenges of electronic surveillance in nursing home research,Research in Gerontological Nursing, 3, 1, 5-10
Sigelman, C, Schoenrock, C and Spanhel, C 81980), Surveying mentally retarded persons: responsiveness and resones validity in three samples.American Journal of Mental Dificiency, 84, pp. 479-486
Sigelman, C, Winer, J and Schoenrock, C (1982, The responsiveness of mentally retarded persons to questions.Educ Train Ment Retard, 17, pp. 120-124
SikhNet (2009), Why do Sikhs wear turbans? Article accessed online on 1 September 2010 at: http://fateh.sikhnet.com/s/WhyTurbans
Silvers, A (2009), Feminist perspectives on disability. Accessed online on 22 March 2010 at: http://plato.stanford.edu/entires /feminism-disability/
Silvers, A and Pickering Francis, L (2005), Justice through trust: disability and the “outlier problem” in social contract theory.Ethics, 116, pp.40-76
Smith, GE, Lunde, AM, Hathaway, JC and Vickers, KS (2007), Telehealth home monitoring of solitary persons with mild dementia.American Journal of Alzheimer’s Disease and Other Disorders, 22, 1, pp. 20-26
Snowdon, D. (1997). Ageing and Alzheimer's disease: lessons from the nun study.Gerontologist, 37, pp. 150-156
Snyder, L. (1999).Speaking our minds: personal reflections from people with Alzheimer's disease.New York: Freeman.
Spring, HJ, Rower, MA and Kelly, A (2009), Improving caregivers’ wellbeing by using technology to manage nighttime activity in persons with dementia,Research in Gerontological Nursing, 2, 1, pp. 39-48
State of Victoria, Dept of Human Services (2006),Statement of ethical principles for biotechnology in Victoria,Report accessed online on 1 September 2010 at.
Stutchbury, K and Fox, A (2009), Ethics in educational research: introducing a methodological tool for effective analysis,Cambridge Journal of Education, 39, 4, 489-504
Sullivan-Marx, EM, Strumpf, NE, Evans, LK, Baumgarten, M and Maislin, G (1999), Predictors of continued physical restraint use in nursing home residents following restraint reduction efforts,Journal of the American Geriatrics Society, 47, 3, pp. 342-348
The Local (2010), One quarter of Germans fine with microchip skin implant, The Local: Germany’s news in English (accessed online on 3 March 2010 at: http://www.thelocal.de(sci-tech/20100301-25589.html )
Timmons, M (2002),Moral Theory: An Introduction. Lanham, MD: Rowman & Littlefield Publishers, Inc
Tomlinson, B. E., Blessed, G., & Roth, M. (1970). Observations on the brains of demented old people.Journal of Neurological Science, 11, pp. 205-242.
Topo, P (2009), Technology studies to meet the needs of people with dementia and their carers,Journal of Applied Gerontology, 28,1, pp. 5-36
Topo P, Jylhä M and Laine J (2002), Can the telephone-using abilities of people with dementia be promoted? An evaluation of a simple-to-use telephone.Technology and Disability, 14, pp.3-13
Topo, P, Mäki, O, Saarikalle, K, Clarke, N, Begley, E, Cahill, S, Arenlind, J, Holthe, T, Morbey, H, Hayes, K and Gilliard, J (2004). Assessment of a music-based multimedia program for people with dementia,Dementia: The international journal of social research and practice, 3 (3) 331 – 350.
Topo P, Saarikalle K, Begley E, Cahill S, Holthe T and Macijauskiene J (2007), “I don’t know about the past or the future, but today it’s Friday” – Evaluation of a time aid for people with dementia.Technology and Disability, 19, pp.121-131
Turkle, S (2007), Authenticity in the age of digital companions,Interaction Studies, 8, 3
United Nations (2006), Convention on the rights of persons with disabilities, Accessed online on 4 November 2009 at: http://www.un.org/disabilities/default.asp?id=259
University of Louisville (2010), The right to privacy by Samuel Warren and Louis D.Brandeis, accessed online on 13 October 2010 at: http://www.law.louisville.edu/library/collections/brandeis/node/225
Van Hoof, J and Kort, HSM (2009), Supportive living environments: a first concept of a dwelling designed for older adults with dementia,Dementia, 8, 2, pp. 293-316
Velasquez, M, Andre, C, Shanks, T, Meyer, SJ and MJ (1987), What is ethics? Issues in Ethics, IIE V1 N1 (Fall) – also available online at: http://www.scu.edu/ethics/practicing/decision/whatisethics.html
Waldemar, G., Dubois, B., Emre, M., Georges, J., McKeith, I. G., Rossor, M., et al. (2007). Recommendations for the diagnosis and management of Alzheimer's disease and other disorders associated with dementia: EFNS guideline.European Journal of Neurology; 14, pp. e1-e26.
Wallace, J, Mulvenna, MD, Martin, S, Stephens, S and Burns, W (2010), ICT interface design for ageing people and people with dementia. InSupporting people with dementia using pervasive health technologies, Ed. Mulvenna, MD and Nugent, CD, Springer Publications
Ward, G (2009),Ethics and assistive technology; How can we get it right? Power point presentation
Weiss, M., & Ramakrishna, J. (2004).Background paper: Health-related stigma: Rethinking concepts and interventions for the Research Workshop on Health-Related Stigma Conference.Amsterdam.
Welsh, S, Hassiotis, A, O’Mahoney, GO and Deahl, M (2003), Big brother is watching you – the ethical implications of electronic surveillance measures in the elderly with dementia and in adults with learning difficulties,Aging & Mental Health, 7, 5, pp.372-375
Wendell, S (1996),The rejected body: Feminist philosopical reflections on disability.London: Routledge
Werezak, L. J., & Morgan, D. G. (2003). Creating a therapeutic psychosocial environment in dementia care: a preliminary framework.Journal of Gerontological Nursing, pp. 18-25.
Wey, S (undated), The ethical use of assistive technology, “at dementia”. Accessed online on 7 May 2010 at: http://www.atdementia.org.uk
Whalley, LJ and Breitner, CS (2009),Fast Facts: Dementia, Oxford, Health Press
Wherton, JP and Monk AF (2008), Technological opportunities for supporting people with dementia who are living at home.International Journal of Human-Computer Studies, 66, pp.571-586
While, A (2006), Beware: technology has its limits,British Journal of Community Nursing, 11, 8, p.362
Wikipedia (2010),Data Protection Directive. Accessed online on 30 March 2010 at:
Wikipedia (2010),Paradigm. Accessed online on 11 May 2010 at:
Wikipedia (2010),Privacy. Accessed online on 13 October 2010 at:
Wollstonecraft, M (1792),A vindication of the rights of woman: with strictures on political and moral subjects, Boston, Peter Edes
Woolham, J (2005), Safe at Home: a second evaluation of a project that uses assistive technology to support the independence of people with dementia in their own homes, Hawker publications
World Health Organisation (2002a),Towards a common language for functioning, disability and health ICF, World Health Organisation, Geneva, 2002
World Health Organisation (2002b),Reducing stigma and discrimination against older people with mental disorders; a technical consensus statement,World Health Organisation, Geneva, 2002
Wrigglesworth, M (1996), Time for a fair assessment of options,Journal of Dementia Care, Nov/Dec, pp.14-15
Zimmer, Z and Chappell, NL (1999), Receptivity to new technology among older adults. Disability and Rehabilitation, 21, pp. 222-230
Last Updated: lundi 23 avril 2012