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Dementia Ethics Network

The Dementia Ethics Network has the following aims:

  • collecting ethical positions and recommendations developed by different professional and/or medical organisations and thus becoming a reference on ethical issues in the care and treatment of people with dementia,
  • providing in-depth coverage of specific ethical dilemmas and developing, where possible, consensual positions on such ethical issues,
  • collecting requests of individual carers and health care professionals faced with ethical dilemmas and providing guidance when possible.

Reference library on ethical issues

The Secretariat will carry out an extensive literature search of positions and recommendations on ethical issues developed by professional, medical and carers associations. The Dementia Ethics Network will establish reading lists on a number of ethical issues and make these available on the network’s website. Where possible, the full positions will be included in a searchable database to build up a comparative reference library of existing ethical positions and discussions.

Literature search and consensus development

On identified priority areas, the secretariat will carry out a more in-depth literature search and develop a report with the findings of the literature search. These reports will highlight the areas where ethical positions diverge, as well as areas where a consensus exists. These reports will be made available on the network’s website.

Guidance on ethical dilemmas

The network will also aim to provide support to individual carers and healthcare professionals faced with ethical dilemmas.

While the network recognises that it will not be possible to provide direct answers to people faced with an ethical dilemma and comment on individual cases, the network will provide a list of existing helplines, structures and experts who may be in a position to provide such guidance.

At the same time, the network will ensure that it actively seeks out the opinions and real-life situations of individuals. Individuals will be asked to submit ethical issues which are of particular relevance for them and these requests will guide the network when establishing the priorities of the network.

Interesting case studies will also be presented with guidance provided by different experts.



Last Updated: vendredi 09 octobre 2009

  • Acknowledgements

    Alzheimer Europe gratefully acknowledges the support of the German Ministry of Health for the implementation of the Dementia Ethics Network.
  • Bundesministerium für Gesundheit


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