- Alzheimer Europe
- Our work
- Aims
- Strategic Plan (2011-2015)
- 2013 Work Plan
- Current projects
- Annual Reports
- Completed AE projects
- 2011: Legislation relating to restrictions of freedom
- 2011: The ethics of dementia research
- 2010: The ethical issues linked to the use of assistive technology in dementia care
- 2010: Legislation relating to legal capacity and proxy decision making
- 2009: Legislation relating to healthcare and decision making in dementia
- 2006-2008: EuroCoDe
- 2006: Dementia Carers' Survey
- 2004-2005: Advance directives
- 2004-2005: Support after diagnosis
- 2002-2003: Rare forms of dementia
- 2002-2003: Optimisation of the diagnosis of Alzheimer's disease and related disorders (OPDAL)
- 2000-2001: Equality in home care provision
- 1998-2000: Intranet
- 1997-2000: Lawnet
- 1997-1999: Children's book
- 1997: Rural areas
- 1997: Early onset dementia
- 1996-1998: Care Manual
- 1996-1998: ERICA
- 1995-1997: Telephone Helpline
- Who we are
- Statutes and Finances
- Our partners
- Alzheimer Europe publications
- Contact us
- Our work
- Dementia
- A-Z of dementias
- Alzheimer's disease
- Who is affected by Alzheimer's disease?
- Is Alzheimer's disease hereditary?
- Is there a test that can predict Alzheimer's disease?
- How is Alzheimer's disease diagnosed?
- Is there any treatment for Alzheimer's disease
- Main characteristics of Alzheimer's disease
- What kind of research has been carried out?
- Other forms of dementia
- Neuro-Degenerative Diseases
- Familial Alzheimer's disease
- Dementia with Lewy Bodies (DLB)
- Dementia in Parkinson's disease (PDD)
- Fronto-Temporal Degeneration
- Progressive Supranuclear Palsy (PSP)
- Corticobasal degeneration (CBD)
- Argyrophilic Grain Disease (AGD)
- Multiple System Atrophy (MSA)
- Amyotrophic Lateral Sclerosis (ALS)
- Ataxias
- Huntington's Disease (HD)
- Down syndrome
- Familial British dementia
- Infectious Diseases
- Metabolic Diseases
- Traumatic Diseases
- Toxic Diseases
- Cerebro-Vascular Diseases
- Other Rare Causes of Dementia
- Neuro-Degenerative Diseases
- Living with dementia
- After diagnosis - What next?
- Caring for someone with dementia
- Personal experiences of living with dementia
- Contact your national Alzheimer Association
- Policy in Practice
- Paris Declaration
- European Alzheimer's Alliance
- Members
- Alliance activities
- December 2012: “Living with dementia: Learning from the experiences of people with dementia.”
- June 2012: "Alzheimer's disease in the new European public health and research programmes"
- February 2012: "IMI in the spotlight" & "Speeding up drug discovery for Alzheimer’s disease: the PharmaCog project"
- December 2011: "Public perceptions of Alzheimer’s disease and the value of diagnosis"
- June 2011: "The Alzheimer Cooperative Valuation in Europe"
- March 2011: "European activities on long-term care: What implications for people with dementia and their carers?"
- December 2010: "The Joint Programming of research in Neurodegenerative Diseases (JPND). What progress so far?"
- June 2010: “Alzheimer’s disease and dementia as a national priority: contrasting approaches by France and the UK”
- September 2009: "European Action on dementia"
- March 2009: "Towards a European Action Plan on Alzheimer's disease"
- December 2008 "The rising cost of dementia"
- September 2008: Launch of Written Declaration
- September 2008: "Current and future treatments for AD"
- MEPs speak out on dementia
- Jan Andersson (Sweden)
- Elena Oana Antonescu (Romania)
- Maria Badia i Cutchet (Spain)
- John Bowis (United Kingdom)
- Frieda Brepoels (Belgium)
- Milan Cabrnoch (Czech Republic)
- Michael Cashman (United Kingdom)
- Nessa Childers (Ireland)
- Ole Christensen (Denmark)
- Brian Crowley (Ireland)
- Karl-Heinz Florenz (Germany)
- Françoise Grossetête (France)
- Maria Eleni Koppa (Greece)
- Katalin Levai (Hungary)
- Astrid Lulling (Luxembourg)
- Jan Tadeusz Masiel (Poland)
- Marisa Matias (Portugal)
- Linda McAvan (United Kingdom)
- Claude Moraes (United Kingdom)
- Elisabeth Morin-Chartier (France)
- Marie Panayotopoulos-Cassiotou (Greece)
- Antonyia Parvanova (Bulgaria)
- Sirpa Pietikäinen (Finland)
- Frédérique Ries (Belgium)
- Dagmar Roth-Behrendt (Germany)
- Keith Taylor (UK)
- Patrizia Toia (Italy)
- Kathy Sinnott (Ireland)
- Angelika Werthmann (Austria)
- Glenis Willmott (UK)
- Corien Wortmann-Kool (Netherlands)
- Marina Yannakoudakis (UK)
- Anna Záborská (Slovakia)
- Dushana Zdravkova (Bulgaria)
- Past supporters
- EU Presidencies
- EU Action on Dementia
- National Dementia Plans
- Country comparisons
- National Dementia Strategies (diagnosis, treatment and research)
- Austria
- Belgium
- Bulgaria
- Croatia
- Cyprus
- Czech Republic
- Denmark
- Estonia
- Finland
- France
- Germany
- Greece
- Hungary
- Ireland
- Italy
- Jersey
- Latvia
- Lithuania
- Luxembourg
- Malta
- Netherlands
- Norway
- Poland
- Portugal
- Romania
- Slovakia
- Slovenia
- Spain
- Sweden
- Switzerland
- Turkey
- United Kingdom (England)
- United Kingdom (Northern Ireland)
- United Kingdom (Scotland)
- United Kingdom (Wales)
- Acknowledgements
- Restrictions of freedom
- Austria
- Belgium
- Bulgaria
- Croatia
- Cyprus
- Czech Republic
- Denmark
- Estonia
- Finland
- France
- Germany
- Greece
- Hungary
- Iceland
- Ireland
- Italy
- Latvia
- Lithuania
- Luxembourg
- Malta
- Netherlands
- Norway
- Poland
- Portugal
- Romania
- Slovakia
- Slovenia
- Sweden
- Switzerland
- Turkey
- United Kingdom - England
- United Kingdom - Scotland
- Acknowledgements
- Legal capacity and proxy decision making
- Austria
- Belgium
- Bulgaria
- Czech Republic
- Denmark
- Estonia
- Finland
- France
- Germany
- Greece
- Hungary
- Iceland
- Ireland
- Italy
- Latvia
- Lithuania
- Luxembourg
- Malta
- Netherlands
- Norway
- Poland
- Portugal
- Romania
- Slovenia
- Spain
- Sweden
- Switzerland
- Turkey
- United Kingdom - England
- United Kingdom - Scotland
- Acknowledgements
- Healthcare and decision-making in dementia
- Austria
- Belgium
- Bulgaria
- Cyprus
- Czech Republic
- Denmark
- Estonia
- Finland
- France
- Germany
- Greece
- Hungary
- Iceland
- Ireland
- Italy
- Latvia
- Lithuania
- Luxembourg
- Malta
- Netherlands
- Norway
- Poland
- Portugal
- Slovakia
- Slovenia
- Spain
- Sweden
- Switzerland
- Turkey
- United Kingdom - England
- United Kingdom - Scotland
- Acknowledgements
- Home care
- Reimbursement of anti-dementia drugs
- Social support systems
- Austria
- Belgium
- Bulgaria
- Cyprus
- Czech Republic
- Denmark
- Estonia
- Finland
- France
- Germany
- Greece
- Hungary
- Iceland
- Ireland
- Italy
- Latvia
- Lithuania
- Luxembourg
- Malta
- Netherlands
- Norway
- Poland
- Portugal
- Romania
- Slovakia
- Slovenia
- Spain
- Sweden
- Switzerland
- Turkey
- United Kingdom - England
- United Kingdom - Scotland
- National Dementia Strategies (diagnosis, treatment and research)
- Our opinion on ...
- Advance directives
- Anti-dementia drugs
- Participation of people with dementia in clinical trials
- Policy on collaboration with other organisations
- Disclosure of the diagnosis to people with dementia and carers
- Genetic testing
- The Hague Convention for the International Protection of Adults
- Participation of people with dementia in research
- Stem Cell Research
- Ethics
- Dementia Ethics Network
- Definitions and approaches
- Ethical issues in practice
- The ethical issues linked to restrictions of freedom of people with dementia
- Preface
- Introduction
- Restriction of the freedom to choose one’s residence or place of stay
- Freedom to live in least restrictive environment
- The restriction of the freedom to act according to individual attitudes, values and lifestyle preferences
- The restriction of the freedom to play an active role in society
- Formal acknowledgements and disclaimer
- Appendices
- Glossary
- References
- Ethics of dementia research
- The dementia ethics research project
- Background, definitions and scope
- Involving people with dementia
- Informed consent to dementia research
- Protecting the wellbeing
- Risk, benefit, burden and paternalism
- Clinical trials
- Epidemiological research
- Genetic research
- Research into end-of-fe care
- The donation of brain and other tissue
- Publication and dissemination of research
- Glossary
- Annexes
- References
- The ethical issues linked to the use of assistive technology in dementia care
- End-of-Life care for people with dementia
- Advance directives and personhood
- The ethical issues linked to restrictions of freedom of people with dementia
- Research
- Value of Knowing
- European Collaboration on Dementia
- Cost of dementia
- The health economical context (Welfare theory)
- Health economic aspects of dementia
- The impact of informal care
- Cost of illness and burden of dementia
- Regional/National cost of illness estimates
- Prognosis to 2030
- Sensitivity analysis
- Other European cost of illness estimates
- Regional Patterns: The societal costs of dementia in Sweden
- Regional patterns: The economic environment of Alzheimer's disease in France
- Regional patterns: Economic environment of Alzheimer’s disease in Mediterranean countries
- Regional patterns: Socio-economic impact of dementia and resourse utilisation in Hungary
- Conclusions and policy implications
- Acknowledgements
- Diagnosis and treatment of dementia
- Prevalence of dementia
- Prevention of dementia
- Psychosocial interventions
- Social Support Systems
- Cost of dementia
- PharmaCog
- Comparative studies
- Understanding dementia research
- Conferences
- News
- Publications
- Living with dementia
Living with dementia
Having dementia or caring for someone who has dementia will present new and often challenging issues to cope with. From the point of being diagnosed with dementia, both the person with dementia and their carer has to find ways of dealing with the very practical issues which arise, such as changing behaviour, memory loss and finding out not only what type care may be required but how to find it. This section offers tips for people with dementia and their carers on the different aspects which arise.
Last Updated: jeudi 21 juin 2012
