Personal experiences of living with dementia
Personal accounts of living with dementia can be an invaluable support to people with dementia and give insight to all who work in this area. The Dementia in Europe magazine runs a regular feature about peoples' experiences from different countries around Europe.
In this section we have contributions from and/or summaries of literature about peoples' experiences of living with dementia.
To read news articles written by people living with dementia, please also see our news section called Living with dementia.
- May: Nina Baláčková, member of the EWGPWD, reports on her experience of ADI’s 31st conference.
- April: Karin Gustafsson, member of the EWGPWD, writes about her Alzheimer's diagnosis.
- March: Helen Rochford Brennan, EWGPWD Vice-Chair says “Terrorism failed to prevent the EWGPWD from completing its work”.
- March: Agnes Houston, EWGPWD Vice-Chair, writes about her experience in Brussels for the AE newsletter.
- February: Nina Baláčková, member of the EWGPWD, writes about the Prague Memory Festival.
- December: Helga Rohra, Chair of the EWGPWD writes about a German initiative to combat loneliness at Christmas.
- November: Hilary Doxford, EWGPWD Vice-Chair writes “A month in the life of a volunteer”
- October: Helen Rochford Brennan, EWGPWD Vice-Chair writes about why the group thinks our Glasgow Declaration is so important.
- October: Agnes Houston, EWGPWD Vice-Chair, writes about her "Dementia and Sensory Challenges project" for the AE newsletter.
- September: The "Letters to Remember" project by The Alzheimer Society of Ireland marked World Alzheimer's Awareness Month.
- September: Alv Orheim, EWGPWD member, writes about the 25th Alzheimer Europe conference for the AE newsletter.
- June: Mojca Hladnik writes about her husband Matjaž Rižnarič being diagnosed with dementia at age 42, just after the birth of their first child.
- March: EWGPWD member Raoul Gröngvist and his wife and caregiver Milja Ahola share their experiences with movement recall and musical therapy.
- June: Jean-Pierre Frognet, Vice-chair of the EWGPWD, living with dementia in Belgium, writes about his “trial period” in a day care centre.
- April: Philip C. writes about the challenges of caring for his wife Carmen as she developed dementia.
- February: Ramona Amariei describes four years of caring for her mother, who lives with Alzheimer's disease.
- June: Paola describes her life since she was diagnosed with dementia.
- March: Helga Rohra reminds us that life is beautiful, even with dementia.
- September: James McKillop talks about the difficulties of driving after developing dementia.
- April: A carer from Spain describes his experience of caring for his wife who had dementia.
- December: Hasse and Birgitta Hansson describe their experience of living with dementia in Sweden.
- May: Stewart Cooper describes his life with Alzheimer's disease in his adopted country of Luxembourg.
- December: Roger Newman, co-founder of the Lesbian, Gay, Bisexual and Transgender (LGBT) Support Group of the Alzheimer's Society, talks about what can be done to ensure inclusion and diversity.
Last Updated: Friday 20 May 2016