2010: Legislation relating to legal capacity and proxy decision making
Completed AE projects
This project focused on legislation relating to various forms of legal capacity and proxy decision making. The main themes covered include guardianship measures, powers of attorney, the capacity to marry, vote and make a will, as well as civil and criminal responsibility.
Funding and Duration
This project was part of the 2010 Work Plan of Alzheimer Europe, which received funding from the European Union, in the framework of the Health Programme.
Alzheimer Europe also gratefully acknowledges the support it received from Fondation Médéric Alzheimer for this project.
The project started in January 2010 and was completed in December 2010.
The objective of this project was to make an inventory of legislation in each country relating to legal capacity and proxy decision making in dementia. It is hoped that such information will contribute towards a greater awareness of the legal provisions relating to people with dementia throughout Europe, enable a comparison of the weaknesses and strengths of legislation insofar as this represents the kind of protection and rights accorded to people with dementia, highlight areas needing attention and provide examples of “good legal provisions” which might eventually contribute towards future legal reform in other countries.
A legal expert from each country covered in the report was contacted and asked to assist in the preparation of a legal report for his/her country. Alzheimer Europe then carried out the ground work and provided the legal expert with an initial report in which all legislation relating to restrictions of freedom were described. This information was obtained mainly from sources publicly available on the Internet (e.g. legal databases and websites of national Ministries of Justice or Health). The information was organised in the same way for each country according to a set list of titles covering the main themes and several sub-themes. For a couple of countries, no information whatsoever was publicly available in English, French or German and it was therefore necessary for the legal expert to write the whole report.
The legal expert then checked the accuracy of the information, made corrections where necessary, added additional information and in some cases made comments about the actual applicability of the law (e.g. whether the law corresponds to the particular situation of people with dementia and whether it is enforced).
The following legal experts were responsible for writing, updating and/or checking the reports on legal capacity and proxy decision making:
- Irene Müller (VertretungsNetz – Recht), Austria
- Philip Bentley, Belgium
- Lora Ivanova, Bulgaria
- Iva Holmerová, Czech Republic
- Daniela Bruthansova, Czech Republic
- Dorthe Buss, Denmark
- Eve Lääts, Estonia
- Anna Mäki-Petäjä-Leinonen, Finland
- Federico Palermiti (Fondation Médéric Alzheimer), France
- Harold Kasprzak, (Fondation Médéric Alzheimer), France
- Bénédicte Toussaint, France
- Bärbel Schönhof, Germany
- Magda Tsolaki, Greece
- Vassiliki Siapera, Greece
- Stefania Kapronczay (Hungarian Civil Liberties Union), Hungary
- Eleanor Edmond, Ireland
- Marina Presti, Italy
- Association Luxembourg Alzheimer, Luxembourg
- Charles Scerri, Malta
- Kees Blankman, the Netherlands
- Berit A. Holmlimo, Norway
- Miroslawa Wojciechowska, Poland
- Paula Guimarães, Portugal
- Maria Rosário Zincke dos Reis, Portugal
- Letician Dobranici, Romania
- Sten-Sture Lidén, Sweden
- Marianne Wolfensberger, Switzerland
- Murat R. Özsunay, Turkey
- Luke Warren, United Kingdom (England)
- Jan Killeen, United Kingdom (Scotland)
- Hilary Patrick, United Kingdom (Scotland)
We would like to thank the above experts for their work as without them we would not have been able to do this study. They all contributed their time and effort freely.
The result of this project is a series of 30 national reports which describe in detail (in English) the legal provisions covering restrictions of freedom of people with dementia, covering three main topics, namely, involuntary internment, coercive measures and restrictions linked to driving. All countries of the European Union (except Slovakia) are covered. There are separate reports for England and Scotland as some of the laws are different in each country. In addition, there are reports for Iceland, Norway, Switzerland and Turkey. These reports can be found in the Dementia in Europe Yearbook 2010 which can be ordered from our website: http://www.alzheimer-europe.org/index.php/Publications/Dementia-in-Europe-Yearbooks
This report can also be consulted online at: http://www.alzheimer-europe.org/Policy-in-Practice2/Country-comparisons/Legal-capacity-and-proxy-decision-making
Last Updated: Wednesday 02 May 2012