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April 2014: EWGPWD Vice Chair Nina Balackova appears in a US Against Alzheimer’s video

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On 8 April, US Against Alzheimer’s released a video online, featuring people with early onset Alzheimer’s disease from around the world, the aim being to promote awareness of young onset dementia and of the need for investment in research.

Each person with dementia in the video selected a photograph of themselves and submitted a quote to go with it. These were put in a virtual “book” which is shown, page by page, in the video.

Nina Balackova, Vice Chairperson of the European Working Group of People With Dementia (EWGPWD), appears in the video alongside her husband and says “I am training my brain, exercising, walking, sharing my opinion about life with dementia with others. My hobbies are travelling, music and our grandchildren”. Nina is 55 years old and has been living with dementia for the past 6 years.

Dr. Rudolph Tanzi, chairperson of the Cure Alzheimer’s Fund Research Consortium is also quoted in the video, saying “Alzheimer’s is the ultimate budget-constrained, not knowledge-constrained, field…We have tons of stuff we need to do, and it sits on the shelf because we are constrained by budget”.

The video can be found here:

More information about USAgainst Alzheimer’s can be found here:



Last Updated: Thursday 02 October 2014