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2 March 2016: EWGPWD Vice-Chair Hilary Doxford encourages people living with dementia to join research

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On 2 March, English newspaper The Western Gazette ran a story about Hilary Doxford, Vice-Chairperson of Alzheimer Europe’s European Working Group of People with Dementia (EWGPWD), encouraging people living with dementia to sign up for research studies via the UK service Join Dementia Research (JDR).

Funded by the UK Department of Health, JDR matches potential dementia study participants with researchers in the UK. The service is delivered in partnership with the National Institute for Health Research, Alzheimer's Research UK and the Alzheimer's Society.

Ms Doxford (pictured, with her husband Peter Paniccia), herself living with early onset Alzheimer’s dementia, is currently taking part in a research study looking at brain inflammation as dementia develops.

"I have enjoyed taking part in the study and love being involved in research. I am well looked after, I have interesting discussions, gain an insight into the latest theories; I am aware of the latest results and it keeps my brain active", she told The Western Gazette.

Ms Doxford also believes research participation has given her a better understanding of the disease progression that she might otherwise have had.

In an earlier online article by Bristol Health Partners, about an event to promote JDR in the South West of England, where Ms Doxford is from, she commented that “anything that can help researchers complete their research sooner has to be good news for people with dementia, and the register does just that.”



Last Updated: Tuesday 26 April 2016