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2018 Work Plan

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2018 Work Plan

The 2018 Work Plan was adopted by the Board on 6 December 2017.

Alzheimer Europe Core activities

Objective 1: Providing a voice to people with dementia and their carers

In 2018, Alzheimer Europe will

  • organise at least three meetings of the European Working Group of People with Dementia (EWGPWD) with one meeting coinciding with AE’s Annual Conference and one with a lunch debate in the European Parliament
  • carry out an inventory of existing working groups of people with dementia, their membership, working methods and funding and produce a report on its findings,
  • involve the EWGPWD in the organisation of the Annual Conference by including representatives in the Programme Committee to help with the selection of abstracts, by inviting them to deliver one keynote presentation and by asking them to organise a special symposium on the experience of living with dementia
  • involve the EWGPWD in various EU projects where AE is asked to provide the views of people with dementia
  • involve the Chairperson of the European Working Group of People with Dementia as a full voting member at AE Board meetings
  • ensure people with dementia and carers are represented in all AE projects and working groups

Objective 2: Making dementia a European priority

In 2018, Alzheimer Europe will

  • provide a detailed overview of existing national dementia strategies, develop a comparative report highlighting commonalities and differences in approaches and publish its findings in the 2018 Yearbook
  • coordinate with the Bulgarian and Austrian EU Presidencies
  • continue its work with the European Alzheimer’s Alliance and involve members of the European Alzheimer’s Alliance in the organisation of two lunch debates in the European Parliament
  • continue working with the new Joint Action on Dementia coordinated by the Scottish Government and contribute to the four priority actions of timely diagnosis and post-diagnostic support, crisis management and care coordination, quality of residential care and dementia-friendly communities
  • collaborate with the group of government experts on dementia convened by the European Commission
  • play an active role on the Patients’ and Consumers’ Working Party of the European Medicines Agency
  • organise two face-to-face meetings of the public affairs committee for an exchange on EU and national policy developments and campaigns
  • play an active role as a member of the European Patients’ Forum and European Disability Forum and support the development of positions in response to EU policy developments
  • collaborate with Alzheimer’s Disease International on its campaign to make dementia a priority at WHO, OECD, G7 and G20 level

Objective 3: Promoting a rights based approach to dementia

In 2018, Alzheimer Europe will

  • Analyse the situation of people with dementia, carers and professional carers coming from ethnic and cultural minorities, identify ethical considerations and existing good practices in this field and publish a report with the literature review and recommendations developed by a multi-disciplinary working group
  • Continue its collaboration with the European Disability Forum on the development of a European disability strategy and the implementation of the UN Convention on the Rights of Persons with Disabilities (UNCRPD)
  • continue working with the Council of Europe and contribute to ongoing discussions on legal capacity, guardianship systems and bioethics

Objective 4: Supporting dementia research

Supporting and involving national Alzheimer associations

In 2018, Alzheimer Europe will

  • continue with the development of its European Dementia Observatory by proactively identifying relevant research developments and communicating them to its member organisations and wider community
  • continue the inventory of all phase II and phase III clinical trials being conducted in Europe and present them on the AE website in an easy to access and easy to understand fashion
  • organise the 28th AE Conference in Barcelona, Spain from 28 to 31 October under the motto “Making dementia a European priority” in collaboration with CEAFA and Fundación Alzheimer España
  • issue a call for abstracts to be submitted under the following five key areas: policies and strategies, care approaches, care services, rights and dementia-friendly society, prevention and treatment
  • aim to attract 750 participants from 35 countries to the conference
  • improve the collaboration with the INTERDEM network and the European Alzheimer’s Disease Consortium for the organisation of the conference and the selection of topics to be addressed
  • improve the abstract submission and evaluation as well as the registration process by opting for a new online system
  • evaluate participants’ satisfaction with the conference programme and practical organisation
  • continue to partner with Newsweaver for the sending of its e-mail newsletter and aim to expand the list of people receiving the newsletter to 8,000
  • update its website and attract 900,000 unique visitors to its website in 2018
  • ensure social media are a full part of the organisation’s communication activities and aim to have 10,000 Twitter followers and 10,000 Facebook likes by the end of the year

Objective 5: Strengthening the European dementia movement

In 2018, Alzheimer Europe will

  • Develop a networking and partnership strategy based on a mapping exercise of European and international organisations active in the field of dementia,
  • update its member organisations on relevant EU policy developments and involve them in the development of policy positions through AE’s public affairs working group
  • organise its Alzheimer’s Association Academy in December 2018 and develop a programme based on the subjects and issues identified by its members
  • organise quarterly meetings of the AE Board to monitor the association’s financial situation and the implementation of its work plan.

Other activities and projects

EU Project participation

In 2018, Alzheimer Europe will

  • continue to engage with the Innovative Medicines Initiative, the Joint Programme Neurodegenerative Diseases Research (JPND), Horizon2020 and the European Innovation Partnership on Active and Healthy Ageing to identify additional opportunities to participate in EU projects,
  • continue its active involvement in a number of EU funded projects by representing the views of people with dementia and their carers in the research consortium, by contributing to the ethical discussions and by supporting the communication and dissemination activities towards a non-scientific audience:
    • AETIONOMY (development of an aetiology-based taxonomy of dementias)
    • AMYPAD (Amyloid imaging to prevent Alzheimer’s disease)
    • EPAD (European Prevention of Alzheimer’s Dementia)
    • MOPEAD (Models of Patient engagement in Alzheimer’s disease)
    • PACE (effectiveness of palliative care for elderly people in long term care facilities in Europe)
    • PredictND (objective and systematic ICT-based approach for the diagnosis of neurodegenerative diseases)
    • ROADMAP (Real world outcomes across the AD spectrum for better care)
  • Start its collaboration with
    • PARADIGM (Patients Active in Research and Dialogues for an Improved Generation of Medicines)
  • collaborate with the following EU projects
    • SYDAD
    • MIND
    • INDUCT

Corporate Affairs

In 2018, Alzheimer Europe will

  • develop a number of activities funded thanks to the support of its corporate sponsors and partners,
  • organise three company round tables bringing together the AE Board, representatives of corporate sponsors and AE member organisations to discuss the progress of the organisation’s different corporate projects,
  • publish three editions of the Dementia in Europe magazine (February, June and October),
  • organise three lunch debates in the European Parliament on prevention, dementia care and national dementia strategies
  • host an exhibition in the European Parliament dedicated to the findings of Alzheimer Europe’s Dementia Monitor findings
  • host a European Dementia Summit bringing together high representatives of key European organisations in the dementia field
  • present the findings of the Care survey in an AE report which will be launched at a lunch debate in the European Parliament.

Meetings organised by Alzheimer Europe in 2018

Date

Meeting

Venue

26-27 February

Alzheimer Europe Board

Brussels, Belgium

27 February

European Parliament Lunch Debate “Prevention of Alzheimer’s disease and dementia”

Brussels, Belgium

27 February

Company Round Table

Brussels, Belgium

28 February

Public Affairs Meeting

Brussels, Belgium

19-21 March

European Working Group of People with Dementia

Brussels, Belgium

25-26 June

Alzheimer Europe Board

Brussels, Belgium

26 June

European Parliament Lunch Debate “Dementia care in the European Union”

Brussels, Belgium

26 June

Company Round Table

Brussels, Belgium

27 June

Public Affairs Meeting

Brussels, Belgium

27 June

European Dementia Summit

Brussels, Belgium

26-28 June

European Working Group of People with Dementia

Brussels, Belgium

28 October

European Working Group of People with Dementia

Barcelona, Spain

29 October

Alzheimer Europe Board

Barcelona, Spain

29 October

Annual General Meeting

Barcelona, Spain

29-31 October

Alzheimer Europe Conference

Barcelona, Spain

3-6 December

European Parliament Exhibition

Brussels, Belgium

3-4 December

Alzheimer Europe Board

Brussels, Belgium

4 December

European Parliament Lunch Debate “National dementia strategies”

Brussels, Belgium

4 December

Company Round Table

Brussels, Belgium

4-6 December

European Working Group of People with Dementia

Brussels, Belgium

4-5 December

Alzheimer’s Association Academy

Brussels, Belgium

 

 
 

Last Updated: Friday 02 February 2018

 

 
 

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